BioCurious Message Board › New Meetup: Sophia's Garden Foundation and Insights from the Neonatology Dep
Palo Alto, CA
I've updated this Meetup. For more details, see the full listing:
When: Tuesday, February 22, 2011 6:15 PM
Where: Institute for the Future
124 University Avenue
Palo Alto, CA 94301
Suggested donation: $5.00 per person
About Dr. Weiss
Sunshine Weiss is the Director of Family Centered Care in the Neonatal Intensive Care Unit at Santa Clara Valley Medical Center. She is a full time neonatologist who cares for infants and families in the NICU. Dr. Weiss completed her perinatal-neonatal fellowship at the University of California in San Diego in 2008, her pediatrics residency at UCLA-Cedars Sinai in 2005, and medical school at the University of California in San Diego in 2002. She graduated from the Symbolic Systems program at Stanford University and maintains an active interest in biomedical informatics, data visualization, and basic electronics.
Dr. Weiss will give an overview of the kinds of patients cared for in NICUs (premature babies, babies with birth defects, and babies with other problems), the kinds of testing babies get (universal state newborn screen, elective general and focused genetic testing, and other blood tests), the ethical issues of making decisions at the beginning of life for individuals, families, and populations, and the training in communication that healthcare providers receive.
About Sophia's Garden
On March 15, 2002, Richard Sachs and Karen Herzog were told that their soulful, browned-eyed daughter, Sophia, would most likely not survive past the age of three. At the age of ten months, she was diagnosed with Niemann-Pick Disease, Type A, a rare and incurable genetic disorder.
As they began their journey of coping with Sophia and their family’s needs, they discovered that our present healthcare system did not meet many of the physical, emotional, spiritual and financial needs that arose. What was missing? How would they care for Sophia? How would their family heal? How would they survive?
What happened over the next four years was nothing short of extraordinary. Drawing upon their backgrounds in sales and high-tech marketing, they began to reach out for help. The response amazed them. Individuals and groups from all walks of life and fields of endeavor were drawn into what became a palpable circle of healing. Moved by Sophia’s radiant presence and the family’s optimism and openness, as well as inspired by the experience of community, people began to respond in unprecedented ways. The walls between people, disciplines, and geographic boundaries dissolved—fostering collaboration, compassion and creativity. The level of integrated care that Sophia received rose exponentially. In this supportive, family-centered environment, people’s hearts were free to break open, and a healing community was born.