July 25, 2013
to support other people with this illness by sharing experiences and arranging meet ups to go swimming or other activities that are possible for us..suggestions are welcome.. thanks..
through social media
yes , my aim is for this group to get together when we can.. we need to stay in touch and get to know one another be be the butterfly friendship chain..
Suffering from Lupus and Sjogrens isn't nice but its real, am trying to build a bridge and get over it by getting out and about with other people. For me it is a major roller coaster so plenty of ups and downs ..I would love to hear your story...
had a great morning and look forward to the next meet up..!!