This is a support for CADASIL patients, people 'at risk' for CADASIL, caregivers, family members, friends, health professionals and anyone interested supporting the CADASIL community in the Greater Philadelphia area.

I'd like to start up a Greater Philadelphia CADASIL support group for patients, those 'at risk' for CADASIL, and for caregivers, friends & colleagues of CADASIL patients. 

The 1st meeting will be in the King of Prussia area during February or March. Time and date are TBD 


The intent of the support group is to:
1. share our personal stories and create a local, in-person community so we can better support each other and enhance our understanding of the disease
2. create a local network of doctors & healthcare providers based on the community's experience to date and to grow that network via advocacy and awareness 
3. catalog the social services available in our network that can assist patients and families


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CADASIL Support Group of Greater Philadelphia http://photos2.meetupstatic.com/photos/event/9/8/0/0/global_322058912.jpeg
Founded Jan 7, 2014
20140107

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