CADASIL Support Group - 1st Meeting

  • February 22, 2014 · 10:30 AM

Location and date subject to change.

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  • Michelle

    I'd like to start up a Greater Philadelphia CADASIL support group for patients, those 'at risk' for CADASIL, and for caregivers, friends & colleagues of CADASIL patients. The meeting will be in the King of Prussia area during February or March. If you are interested in joining this meeting or a future Philly meeting, please message me your email address. The intent is to:
    1. share our personal stories and create a local, in-person community so we can better support each other and enhance our understanding of the disease
    2. create a local network of doctors & healthcare providers based on the community's experience to date and to grow that network via advocacy and awareness
    3. catalog the social services available in our network that can assist patients and families

    January 7, 2014

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Rafaël

We just grab a coffee and speak French. Some people have been coming every week for months... it creates a kind of warmth to the group.

Rafaël, started French Conversation Group

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