Resources

Here are some of the many resources amassed so far!

(Please note, re: products listed...we can not endorse or "approve", as you must always consult with your own physician.)


General Information on VTE (DVT/PE):

American Heart Association
Venous Thromboembolism & Pulmonary Embolism--Statistics
http://www.americanhe...

APS Foundation of America, Inc.
About Deep Vein Thrombosis
http://www.apsfa.org/...

APS Foundation of America, Inc. e-Store
Sells DVT Awareness merchandise, includes products that say, "Someone I love had a DVT".
http://www.cafepress....

BC Health Guide on Deep Vein Thrombosis
http://www.healthlink...

Canadian Medical Association Journal
Diagnosis and treatment of deep-vein thrombosis
http://www.cmaj.ca/cg...

Cancer and Deep Vein Thrombosis
http://www.clotcare.c...

Centers for Disease Control and Prevention
DVT information, topics, and section for practitioners. http://www.cdc.gov/nc...
Thrombophilia/Clotting Disorders. http://www.cdc.gov/nc...

ClotCare
Blood Clots Get the Facts About DVT & PE, http://www.clotcare.c...
DVT Risk Assessment, http://www.clotcare.o...

The Coalition to Prevent Deep-Vein Thrombosis
https://www.preventdv...

Deep Vein Thrombosis Documentary--a university student's project
http://www.youtube.co...

DVT Awareness – videos with Melanie Bloom

  • On the Today Show, March 2010. http://today.msnbc.ms...
  • On the Today Show with Katie Couric. (This one is a few years old now, but well worth watching.)
    http://video.aol.com/...
  • On the Today Show (newer):
    http://video.aol.com/...
  • Preventing Deep Vein Thrombosis with Melanie Bloom
    http://video.aol.com/...
  • Spotlight on Deep Vein Thrombosis--regarding the U.S. Surgeon General's Call to Action 2008
    http://today.msnbc.ms...

    eMedicine from WebMD
    Deep Venous Thrombosis
    http://www.emedicine....

    Factor V Leiden
  • Factor V Leiden, http://circ.ahajourna...
  • Learning About Factor V Leiden Thrombophilia, http://www.genome.gov...

    FamilyDoctor.org.
    Deep Vein Thrombosis: What You Should Know.
    http://familydoctor.o...

    Info for Your Life. A short Canadian video about DVT and PE. (Takes a minute to load.)
    **Features Dr. Agnes Lee, Director of Thrombosis, Vancouver General Hospital
    http://www.youtube.co...

    Jobst.com (makes compression stockings)
    Information about Veins and Valves
    http://www.jobst.com/...

    Mayo Clinic
    Re: DVT http://www.mayoclinic...
    Re: PE http://www.mayoclinic...

    MedicineNet.com
    Deep Vein Thrombosis
    http://www.medicinene...

    MedlinePlus Medical Encyclopedia
    Deep Vein Thrombosis
    http://www.nlm.nih.go...

    National Alliance for Thrombosis and Thrombophilia (NATT) – Stop the Clot
    http://www.stoptheclo...

    National Heart Lung and Blood Institute
    Deep Vein Thrombosis
    http://www.nhlbi.nih....

    North American Thrombosis Forum (NATF)
    Includes public policy and patient advocacy: http://www.natfonline...
    Their YouTube channel with relevant videos: http://bit.ly/5yRYt2...

    U.S. Surgeon General's Call to Action. Sept. 15, 2008.
  • Acting Surgeon General Issues "Call to Action to Prevent Deep Vein Thrombosis and Pulmonary Embolism".
    Press Release.
    http://today.msnbc.ms...
  • 49 page booklet--downloadable pdf.
    http://www.surgeongen...
  • Fact sheet
    http://www.surgeongen...

    Vascular Disease Foundation
  • "Focus on Blood Clots" – full color pamphlet:
    http://www.vdf.org/pd...
  • How Blood Clots Form (video)
    http://www.vdf.org/in...
  • Interactive Vein and Artery Map
    http://www.vdf.org/in...
  • Interactive Podcasts on a wide variety of vascular disease topics
    http://www.vdf.org/in...
  • Children's activity book that teaches about the vascular system
    http://www.vdf.org/es...

    Venous Disease Coalition
    http://www.venousdise...
    Deep Vein Thrombosis: What is it?
    http://www.venousdise...

    WikiDoc:
    on DVT http://www.wikidoc.or...
    on Pulmonary Embolism http://www.wikidoc.or...


    Additional for VTE (DVT/PE) Patients

    American Venous Forum
    http://veinforum.org/...

    The Anticoagulation Forum
    http://www.acforum.or...

    APS Foundation of America, Inc. e-Store. Sells DVT Awareness merchandise.
    http://www.cafepress....

    Children's activity book that teaches about the vascular system
    http://www.vdf.org/es...

    ClotCare "Helping others improve lives through anticoagulation".
    Online Resource: http://www.clotcare.c...
    Specific Medicines: http://www.clotcare.c...
    Type of Medicines: http://www.clotcare.c...
    Various postings for Patients and Caregivers: http://www.clotcare.c...

    Clot Connect Blog (For patients and health care professionals)
    http://www.clotconnec...
    This blog is written by Dr. Stephan Moll, a hematologist at the University of North Carolina in Chapel Hill, whose clinical care and research interests focus on clots and clotting disorders.
    Clot Connect Patient Support Forum
    http://www.clotconnec...

    Clot Ed
    Coagulation Lysis or Thrombosis
    site under construction http://www.clot-ed.co...

    Deep Vein Thrombosis and Pregnancy
    http://organizedwisdo...

    Gradient Compression
    http://www.jobst.com/...

    INATE - Investigators Against ThromboEmbolism: "the facts on post-thrombotic syndrome"
    http://www.inate.org/...

    Heparin
    Heparin: A Patient's Guide, http://healthcare.uta...

    INR
  • INR--my eHealth--Providing BC patients with secure access to their lab results
    http://myehealth.ca/...
  • Understanding the PT-INR Test
    http://www.clotcare.c...
  • INR point-of-care (at home & travel) testing machine: CoaguChek XS by Roche
    http://www.rochecanad...
  • CoaguChek
    http://www.coaguchek....
  • PT INR. America's Anticoagulation Resource
    http://www.ptinr.com/...

    Leg Health - Helping Yourself
    http://www.jobst.com/...

    Medical ID Bracelets
  • Beading Hearts - "Affordable medical bracelets." Local Canadian company recommended by one of our support group members. http://www.beadinghea...
  • Lifewear Medical ID - Vancouver, http://www.lifewearme...
  • MedicAlert – Canada, http://www.medicalert...
  • Universal Medical ID - Canada, http://canada.univers...

    Patient Stories:
  • "I expected antibiotics but life turned upside-down". 22 year old woman with pulmonary embolism.
    http://lifeafterdvt.f...

    Pulmonary Embolism
    Patient information:
    http://www.uptodate.c...

    QuitNow.ca British Columbia. The Lung Association of British Columbia.
    Quit Smoking All Together
    http://bc.quitnet.com...

    Sigvaris (compression stockings) Life for Legs
    An informative guide for patients.
    Pathttp://www.sigvarisus...

    Simple low-impact movements that may help reduce the risk of deep-vein thrombosis (DVT).
    http://www.preventdvt...

    Support Groups (Live)
  • DVT Support Group of the Lower Mainland (BC, Canada) http://www.meetup.com...
  • International Deep Vein Thrombosis Alliance http://www.meetupalli...

    Support Groups (Online)
  • DVT Support Group of the Lower Mainlaind (on Twitter): www.twitter.com/DVTSupportGroup
  • Life After DVT Group/Forum. An absolutely invaluable support system and patient education resource! An international forum, however its founder is Canadian and working hard towards the creation of the first non-profit organization for patient advocacy and public awareness education in Canada.
    http://lifeafterdvt.f...
  • Daily Strength: Deep Vein Thrombosis Support Group
    http://dailystrength....
  • MSN Group for Survivors of DVT and PE.
    http://groups.msn.com...
  • Yahoo Group for Thrombosis, DVT, and Pulmonary Embolism.
    http://health.groups....

    Support Groups (Online--Facebook Groups):
  • Blood Disorders Awareness http://www.facebook.c...
  • DVT and PE Support in Vancouver http://www.facebook.c...
  • DVT Deep Vein Thrombosis forum: http://www.facebook.c...
  • Deep Vein Thrombosis Awareness http://www.facebook.c...
  • Deep Vein Thrombosis Awareness (a different one) http://www.facebook.c...
  • Deep Vein Thrombosis Awareness DVT Awareness Worldwide http://www.facebook.c...
  • Factor V Leiden Support Group http://www.facebook.c...
  • National Alliance for Thrombosis and Thrombophilia http://www.facebook.c...
  • North American Thrombosis Forum http://www.facebook.c...
  • Protein S Deficiency and Thrombophilia http://www.facebook.c...
  • Pulmonary Embolism Awareness http://www.facebook.c...
  • Pulmonary Embolism Group http://www.facebook.c...
  • Stop DVT http://www.facebook.c...

    Travel and DVT
    http://www.jobst.com/...

    Thrombophilia Awareness Project
    "The web's resource for patient based thrombophilia information.
    http://www.fvleiden.o...

    Thrombosis Advisor - for patients and physicians
    http://www.thrombosis...

    The Thrombosis Interest Group of Canada. Patient guides.
    http://www.tigc.org/...

    University of Michigan Cardiovascular Center
    Anticoagulation Service Patient Education Booklet
    http://www.med.umich....

    The Vein Handbook: A Layman's Version of Venous Disorders
    http://veinforum.org/...

    Veins of the Leg. An anatomy illustration.
    http://www.doereport....

    VeinForum.org. "The site for vein information." Includes a free on-line book, "The Layman's Handbook of Venous Disorders".
    http://veinforum.org/...

    Venous Thromboembolism in Pregnancy
    http://www.patient.co...

    Warfarin
  • Helping My Anti-Coagulant Do Its Job Safely, http://www.mybloodthi...
  • Staying Active and Healthy: Blood Thinners (video), http://healthcare411....
  • Vitamin K and Warfarin, http://stoptheclot.or...
  • Warfarin/Coumadin--FAQs About Warfarin (brand name Coumadin) http://www.clotcare.c...
    http://www.clotcare.c...
  • What to eat when you're on Warfarin (includes Coumadin cookbook with recipes) http://www.drgourmet....
  • Vitamin K smartphone app: http://www.hollender....
  • Understanding the implications of oral anticoagulation therapy: http://tinyurl.com/39...
  • A Patient's Guide to Taking Coumadin/Warfarin
    The Vascular Disease Foundation
    http://www.keepinginc...
  • Warfarin Therapy: Evolving Strategies in Anticoagulation
    http://www.aafp.org/a...
  • Warfarin & Drug Interactions
    http://www.drugs.com/...


    News

    Cancer and Blood Clots
    http://stoptheclot.or...

    Clot Risks Jump on Long Flights - USA Today
    http://www.usatoday.c...

    San Jose Sharks Jed Ortmeyer nominated for NHL's Masterton Trophy
    "Right wing Jed Ortmeyer, who is on a strict medical regimen that enables him to continue his hockey career despite a life-threatening blood clotting disorder, has been nominated for the Masterton Trophy."
    For full story: http://www.mercurynew...

    Low Dose Warfarin Prevents Recurrence of Blood Clots — NHLBI Stops Study
    http://www.nlm.nih.go...

    Red Bull "increased the 'stickiness' of the blood and raised the risk of life-threatening clots."
    http://www.dailymail....

    Ultrasounds being used to break up DVTs (was on CNN).
    http://www.washington...


    How to Form Support Groups

    Meetup.com
    http://dvt.meetup.com...

    PeerNetBC. Peer Support Toolbox.
    http://www.peernetbc....

    Self Help Resource Centre
    http://www.selfhelp.o...


    Please email us if you have more VTE (DVT/PE) resources links to share!

    • Table of Contents

    Page title Most recent update Last edited by
    Resources August 1, 2011 10:54 PM anonymous
    Members' Stories February 24, 2010 12:49 AM anonymous
    NATF Advocacy Committee June 29, 2009 11:21 AM anonymous
    DVT Facts July 9, 2011 3:24 PM anonymous
    About DVT Support Group of the Lower Mainland October 6, 2009 11:45 PM anonymous
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