East Bay L.E.A.P.S. Monthly Meetup

  • November 21, 2013 · 6:00 PM
  • This location is shown only to members

At our monthly meetings, Lyme patients and their loved ones can meet to discuss the challenges faced in diagnosing, treating, and coping with Lyme disease and other tick-borne illness (including babesiosis, bartonella, and erlychiosis). In general, we do not discuss the political aspects of this controversial disease, but on occasion we take on special projects of political activism.

Come with your knowledge and compassion, a willingness to share your experience, and most importantly, to listen to others. LEAPS is a place where Lyme patients and their supporters can feel accepted in a constructive, nonjudgmental group setting and work toward healing.

Meeting Date: Third Thursday of the month.

Meeting Time: 6:00-8:00 PM

Meeting Location:
Kaiser Hospital-Oakland (Campus Map)
Mosswodd Building, Room 1130A / 1171
3505 Broadway St, Oakland (Google Map)

Parking: Underneath the Mosswood Building or on nearby side streets.  Do NOT give your keys to the valet parking attendants.  Tell them you will be staying late.

Public Transportation: Free Kaiser Shuttle Bus from Oakland BART station to Kaiser Main Hosptial (Shuttle Bus Info).  You'll need to walk a block or two from the Main Hospital Building to the Mosswood Building.  Kaiser campus map here.

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  • Kara

    Great speaker. Very informative. (My dad, non-Lyme sufferer, said he will definitely have that heat scan done within a year). If I have any "extra" money, I want to have it done as well, along with the Bio-Set. I wish more people could have shown up though.!!!!

    November 21, 2013

  • Meryl C.

    Does anyone come from Lafayette/WC area? I could use a ride

    1 · November 4, 2013

    • Justin

      Also Meryl, if you can handle it, BART is a great way to get out to Oakland to our meetings. From the MacArthur station you can take the Kaiser shuttle bus most of the way to the Mosswood building. It's about a two block walk from the main hospital building where the shuttle drops people off at it's second stop. There are maps and links to information about the shuttle bus in the meeting description above. Unfortunately the shuttle doesn't stop at the Mosswood buildings in the evening.

      Another option would be to take BART to an Oakland or Emeryville station, then have Carolyn pick you up. I hope you both can make it!

      1 · November 17, 2013

    • Carolyn H.

      Thanks. I am coming tonight, although, not feeling well at all. I am definitely looking forward to the meeting. Feel very positive about it.

      November 21, 2013

  • Meryl C.

    JW if there's anyone who can possibly give me a ride from Lafayette?

    November 18, 2013

  • Kim H.

    Was hoping to come to my first meeting but I'm recovering from mono. See you all next month and enjoy the speaker!

    1 · November 20, 2013

    • Lisa G.

      Hi Kim, if youre physically feeling up to it, you could still come. We all have EBV already, so just dont kiss anyone and your safe. Dont push it though if youre still pooped. Best wishes, Lisa

      2 · November 20, 2013

    • Carolyn H.

      Yes I had mononucleosis when I was 15 it was going around my highschool. So I'm immune.

      November 21, 2013

  • Annie

    Sorry again everyone, just got out of the hospital again and on the mend. Wont be able to make it. I was wondering if anyone is familiar with reading test results though. My Dr has gone over them with me, but I am a bit confused. If your interested in helping out, I can email you copies of my tests and would be forever grateful. Private message me if interested and hope to see you all at next months meeting.

    1 · November 21, 2013

    • Grace P.

      Oops meant Laura Wild. You can PM her once you're in the group. Or just ask on their main page.

      November 21, 2013

    • Carolyn H.

      I might be able to help you with reading that. How do I private message you?

      November 21, 2013

  • Carolyn H.

    Annie could YOU come if you had some one pick you up? Carolyn

    November 21, 2013

  • Lisa G.

    Hello all, we will have a speaker this Thursday. Dr. Lori Mancuso NE. She will talk about endocrine and immune system support. Hope to see you there. Lisa

    1 · November 18, 2013

    • Carolyn H.

      Thank you. I'm planning on coming if I have to drag myself. Endocrine, will that be about thyroid? Adrenals? Basic immune system ? I had mononucleosis when I was 14 or 15 years old. Wondered how that affects the Lyme I have now. Looking forward to my first mtg. Have been wanting to go since last month's mtg. I was too tired to make it . :-(

      November 18, 2013

  • Mary Jane B.

    Hi, Carolyn- thanks for the offer of a ride. I'll be running around, so it's best if i get there myself. See you there…

    Mary Jane

    November 18, 2013

  • Carolyn H.

    I believe/feel as though I am in the second stage of Lyme.
    My memory is a real problem for me.
    ie: I went to see a new Gyn a few weeks ago.
    When she came into the exam room she wondered why no one had given me a clipboard to fill out. I thought, yes, why didn't they?
    She excused herself to find out. When she returned she explained to me that I had been there last December.
    I had 0, nothing, completely no idea that I had ever been in that office or ever had met and been examined by her.
    This really frightened me. How many other things have I forgotten?
    I worked in healthcare, a group of Internal medicine doctors for 15 years of my life. I would like to think that I would have known that I had been in that Gyn's office before.
    Has anyone else had experienced loss of memory like this?
    Thanks.
    Carolyn

    October 22, 2013

    • Annie

      I hope to be there. Just got out of the hospital again this morning and hopefully I'll be up on my feet again by Thursday.

      November 18, 2013

    • Grace P.

      Annie, rest up and hope to see you... if not this time then next month

      November 18, 2013

  • Mary Jane B.

    I've been trying to get myself to these meetings so long! As with most of us who've had Lyme for many years, I have little predictability with how I'll feel from day to day. (And yes, Carolyn, the memory issues are daunting, devastating, horrifying and embarrassing all at once.) Right now I'm trying to find two leads: I need a new Lyme doc or personal doc/NP who at least is willing to TRY to get Lyme AND I am looking for info/mentor/anything on Rife.(The only person I know who knows about Rife is not local). Any comments would be welcome.

    1 · November 14, 2013

    • Carolyn H.

      Mary Jane, I just now saw this. Sorry. You know how much we Lyme ? Victoms ( feels like victims) How much trouble we have doing anything. I am planning on coming to the Thursday night meet if I have to drag myself. I hope you will be there. Would you like a ride? Hope to meet you. I just feel that at this point, I have to go to save my life. I'm just too alone and need a doctor and need some support from others. Although, I don't want to sound 'needy". I just need/want these things. I suppose that I do need this though just to get hope back. See you Thursday? I will try and help you get there. If you need some help. Carolyn

      November 17, 2013

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