Carolyn H.


Emeryville, CA
Hometown: San Francisco, CA

Member since:

September 26, 2013

How long have you or a loved one had Lyme Disease?

I've had Lyme Disease for 5 years. I was bit by a tick while camping in the Santa Cruz Mountains. After returning home, about three days later I found a bullseye rash on my back shoulder blade. My primary care physician refused to see me. An E.R. Physician confirmed Lyme Disease a couple of days later. It still took me almost 2 years to be treated. I finally found a LLMD, he's been treating me ever since. I also see a great LLNP.

What is your treatment protocol like?

It took almost two years before a physician Started treating me. Started protocol of Doxycycline 50 mg. 2 x day with Tindamax 500 mgs. Using VSL 3 DS, Vitamin D3 & Ester C 1,000. I've also taken courses of Zithromycim, Biaxin and Omnicef. I'm also working with a lyme literate Naturopath who is very knowledgeable and I've just started with supplements. I have just started 2,000 mg. of Amoxicillin along with Clarithromycin 1,000 mg. And Armour thyroid 30.

What would you like to get out of LEAPS meetings?

I've been coming to LEAPS for almost 2 years now, and I've met some of the best people ever. I joined wanting support and education about Lyme Disease and all the confusion around it. I have definitely found that here. Each time I come. I learn more about this crazy disease.


Born and raised in California. Lived Marin County, San Francisco, Pasadena and San Diego

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