Emeryville, CA
Hometown: Philadelphia PA

Member since:

September 27, 2013

How long have you or a loved one had Lyme Disease?

I have recently been diagnosed in September of 2013. My symptoms began when I was 12 years old when I got Bells Palsy and then my health went south for years. After seeing hundreds of doctors and being misdiagnosed time and time again, I finally have found a doctor who is treating me.

What is your treatment protocol like?

I used Chinese Medicine for years, but when I got diagnosed with Hypothyroidism I began seeing a Naturopathic doctor and began taking a natural dessicated pig thyroid. My body did not agree at all with it and I ended up in the ER. Thats when I had testing done for Lyme and found an LLMD here in the Bay Area. Working with him I now use Eastern and Western medicine. I am being treated with Doxycycline, an atiparasitic herb, a few herbs for drainage, an antifungal and now I am taking two different thyroid medication for my low T3 and TSH (levothyroxine and a compounded T3, my body does not convert T3 very well.) I am on disability right now and I make sure to exercise religiously every day. The thirteen different medications I am on can make me feel sick at times.

What would you like to get out of LEAPS meetings?

I am interested in learning more about my hard to read test results, and to also learn more about insurance options and just listen to people who have been there. I have lost everything to this disease and it is hard for me to relate to friends and family anymore, I feel like a different breed of person because it separates me from everyone else. My family is all located on the East Coast and I am on disability so it is a very lonely situation at times. I feel having support from others who are familiar with your situation can help me to relate better with people again.


My name is Annie, I have recently been diagnosed with Lyme disease. I am from a small town in Pennsylvania and have been unknowingly living with Lyme for 17 years.

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