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Emily E.


Berkeley, CA

Member since:

May 13, 2013

How long have you or a loved one had Lyme Disease?

I am not sure how long I've had it but I think it's been at least a year. It started out as the flu and progressively got worse. Doctor after doctor, no one knew what was going on. I got scared for my life. I thought at one point that I was going to die. Thyroid issues, goiter, arrhythmias, air hunger, dizziness, vertigo, chronic fatigue, degenerative disc disease, vision problems, fainting. I thought my body was falling apart.

What is your treatment protocol like?

Cefdinir, azithromycin, artemisinin, herbs, and enough supplements to sink a battle ship with.

What would you like to get out of LEAPS meetings?

Being able to be around people who relate to this disease is a relief for me. I live alone, so it's hard sometimes. On the flipside, being alone has taught me a lot - such as keeping toxic people out of my life and being my own best friend. Still, supportive people are always a bonus, and this group of people truly understands this illness. I got so many resources from the wonderful people in this group, I don't think I'd be on my way to healing if it wasn't for this group. I'd still he wondering what was making me so sick. I'm so grateful for that.


I'm 32 years old and I have Lyme, possibly Babesia and Bartonella. I'm healing but the process is hard, it has a lot to teach me. I'm currently studying acupuncture, my goal is to someday use my skills and the medicine.

What Emily E. is saying about this Meetup Group

I get a lot of good information here and support from everyone, I really feel alone with this illness all the time and it is nice to connect with others who have it or have had it and can relate to what I'm experiencing.

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