addressalign-toparrow-leftarrow-rightbackbellblockcalendarcameraccwchatcheckchevron-downchevron-leftchevron-rightchevron-small-downchevron-small-leftchevron-small-rightchevron-small-upchevron-upcircle-with-checkcircle-with-crosscircle-with-pluscrossdots-three-verticaleditemptyheartexporteye-with-lineeyefacebookfolderfullheartglobegmailgoogleimageimagesinstagramlinklocation-pinmagnifying-glassmailminusmoremuplabelShape 3 + Rectangle 1outlookpersonplusprice-ribbonImported LayersImported LayersImported Layersshieldstartickettrashtriangle-downtriangle-uptwitteruseryahoo

Mailing List Archive

Subject Sender Date
RE: [East-Bay-L-E-A-P-S] which llmd? - cb Aug 30, 2016 9:14 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Preview not available Vicki Aug 29, 2016 6:11 PM
Kris kristofferson - Does anyone know who the amazing Dr is that diagnosed kk Sent from my Assurance Wireless Phone. Vicki Aug 29, 2016 6:10 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Preview not available Vicki Aug 29, 2016 5:59 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Can't recommend Dr. Toth . Saw him for months at $100 per fifteen minutes and he does all the talking !! He does believe in Lyme but not up t kim F. Aug 29, 2016 5:57 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - I've never done it. Dr Toth didn't encourage me to use it & it's not cheap. Joe Aug 29, 2016 3:42 PM
hyperbaric oxygen? - Since Joe mentioned it, wondering about experiences folks have with hyperrbaric? thanks ahead of time. Jodie ------------------------------­-------------- On Mon, 8/29/16, Joe wrote: Subject: Re: the Dr. Toth v jodie a. Aug 29, 2016 3:36 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Joe, can you tell a little about hyperbaric, how it works and how it helps you? thanks ------------------------------­-------------- On Mon, 8/29/16, Joe wrote: Subject: Re: the Dr. Toth vein of eMails.... Re: [E jodie a. Aug 29, 2016 2:23 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Preview not available Joe Aug 29, 2016 2:14 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Hi there. I will add my little bit to this vein of emails. I have seen dr. Toth several times since January. I don't think he is a brilliant doctor or diagnostician. But he fully believes in Lyme disease and he is one of the kindest docto Laila S. Aug 29, 2016 2:08 PM
Re: [East-Bay-L-E-A-P-S] which llmd? - I've been seeing Dr. Leone. I like him a lot - and I've seen several other doctors, some of whom helped a bit, others not so much. He also focuses first on mold, and as part of my protocol I had to deal with my house and possessions josephine c. Aug 29, 2016 1:45 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Yes I realize that many LLMDs are wrongly targeted for all sorts of things. I didn't say I thought Dr Toth was a bad guy. I just wondere Grace P. Aug 29, 2016 1:33 PM
Re: [East-Bay-L-E-A-P-S] which llmd? - Definitely agree that the practitioner matter Angela A. Aug 29, 2016 12:28 PM
Re: [East-Bay-L-E-A-P-S] which llmd? - Yes. But are you happy with Dr Patel.&nb karen Aug 29, 2016 12:20 PM
RE: [East-Bay-L-E-A-P-S] which llmd? - cb Aug 29, 2016 12:15 PM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Preview not available Joe Aug 29, 2016 12:13 PM
Re: [East-Bay-L-E-A-P-S] which llmd? - karen Aug 29, 2016 12:09 PM
Re: [East-Bay-L-E-A-P-S] which llmd? - I too was super sceptical and thought it was Angela A. Aug 29, 2016 11:53 AM
Re: [East-Bay-L-E-A-P-S] Need primary care dr - Highly recommend Dr Robert Tufft in Oakland.  He may or may not be open to new Medicare patients, but he is great and I'd call and ask.  Last I heard he was only accepting medicare-ag Jennifer L. Aug 29, 2016 11:33 AM
RE: [East-Bay-L-E-A-P-S] which llmd? - cb Aug 29, 2016 11:33 AM
Health nut news; 1 year, 50 dead - http://www.healthnutnews.com/r­ec Angela A. Aug 29, 2016 11:22 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Preview not available Vicki Aug 29, 2016 11:21 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - OMG you guys Angela A. Aug 29, 2016 11:14 AM
Re: [East-Bay-L-E-A-P-S] which llmd? - What about schweig he Vicki Aug 29, 2016 11:13 AM
Re: [East-Bay-L-E-A-P-S] which llmd? - Edit: The way I accomplished recording the sessions w Angela A. Aug 29, 2016 10:58 AM
Re: [East-Bay-L-E-A-P-S] which llmd? - If this is redundant or you’ve already done Angela A. Aug 29, 2016 10:51 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Oh ok, maybe it was his father. I wasn't sure which is why I asked. This article says the one convicted was 58 years old in 2008. App Grace P. Aug 29, 2016 10:39 AM
Re: [East-Bay-L-E-A-P-S] which llmd? - How about neither? (yet) Do th Angela A. Aug 29, 2016 10:24 AM
which llmd? - karen Aug 29, 2016 10:21 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Wow, Im shocked. Joe Aug 29, 2016 9:19 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Dr Toth came highly recommended, and I was Mark B. Aug 29, 2016 8:55 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - !?! Never heard that. You must be writing of someone else. You s Joe Aug 29, 2016 8:47 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - I thought Dr Toth is the one was convicted of wing responsible for the death of a patient? And fraud? On Aug 29, 201 Grace P. Aug 29, 2016 8:29 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Vicki Aug 29, 2016 5:01 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Hello!! First of all wanted to share Dr Strickers NP is Melissa McElroy - very sweet, very smart. any unsure she Shymala H. Aug 29, 2016 1:34 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Vicki Aug 29, 2016 1:20 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Vicki, Thank you for your input. I hope you are doing well. I haven't seen you in a while. &nbs Kara Aug 29, 2016 1:06 AM
Re: the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - Kara Sounds like that Vicki Aug 29, 2016 12:28 AM
the Dr. Toth vein of eMails.... Re: [East-Bay-L-E-A-P-S] Need primary care dr - I'm getting ready to switch from Dr. Grieder to Dr. Toth for my Lyme treatment. I'm very happy with Dr Grieder but the trip to SF is a bit mu Kara Aug 29, 2016 12:06 AM
Re: [East-Bay-L-E-A-P-S] Need primary care dr - I just wanted to pipe in about Dr. Toth! All sorts of awesome and really seems to understand how Lyme in all of its colors looks! So mu Jolie H. Aug 28, 2016 11:24 PM
Re: [East-Bay-L-E-A-P-S] Need primary care dr - Vicki Aug 28, 2016 9:54 PM
Need primary care dr - Hi everyone , Does anyone have a recommendation for a primary care doctor that accepts Medicare ? I live in the east bay. Thank you, Kim Sent from my iPhone kim F. Aug 28, 2016 3:42 PM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - Thanks Jennifer! -----Original Message----- F Susan W. Aug 28, 2016 2:07 AM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - That is correct, because he is an MD. Medicare will not cover tests ordered by a chiropractor. Medicare will cover tests ordered by an MD, e Jennifer L. Aug 27, 2016 9:06 PM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - Jennifer, I realize you are the health care practioner, but I have had lab tests covered by Medicare that were ordered by physicans and PTs who do not take Medicare. I'm no Susan W. Aug 27, 2016 7:54 PM
Re: [East-Bay-L-E-A-P-S] Microscopic Blood Screenings - I posted that Vanessa.  I had a repeat session with her and my results were not as good as the first time, but I do understand why, and its not lyme related.  It's good to keep in Jennifer L. Aug 26, 2016 12:45 PM
Microscopic Blood Screenings - I forgot who posted about the Microscopic Blood Screenings a while ago. I went to get it done and thought it was interesting, but I c Vanessa S. Aug 26, 2016 11:58 AM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - If you are a Medicare patient, then yes, an MD needs to order it for it to be covered by Medicare. Jennifer L. Aug 25, 2016 2:51 PM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - Vicki Aug 24, 2016 10:52 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Thanks all! Jennifer, I really appreciate you reaching out as a practitioner. I will give your office a call later to see what the rates and copays and such would be as I have always wanted to try chiropractor work at least a little. I live in SF tho Zakk Aug 24, 2016 9:46 AM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Zakk, Im am SO SORRY to hear about what you"re going through.  In the meantime, while you try to figure out which way you wanna go with it---have you been icing it?  If the injury is mechanical, that won't fix it obviously, but i Angela A. Aug 24, 2016 8:48 AM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - HI Zak,   I am a low force chiropractor in Berkeley, I do gentle adjustments with an Activator instrument.  For the knees you might Jennifer L. Aug 22, 2016 8:12 PM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - As a chiropractor I can sign off on the IgeneX testing forms for anyone wanting a less expensive way to get the testing done.  However, they would need to become a patient in my office in Jennifer L. Aug 22, 2016 8:09 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Thanks all for so much caring and info! Myrna P. Aug 22, 2016 4:49 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Hi Zach Take the time to go to the Bee Venom meetup. It took me 10 months to embrace this therapy, but once I started, I knew this was my saving grace. I had run out of money, home.. Even car... and a family support structure to continue seeing my LLMD Susan B. Aug 22, 2016 12:02 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Hi Zakk, Jennifer Lanett and I host a monthly Meetup just for Bee Venom Therapy for Lyme. The next Intro is in mid-September, date and time still to be determined. That's when we will go over the whole protocol, costs, where to buy supplies, Anna Liisa Wijnen M. Aug 22, 2016 11:36 AM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Thanks for the replies everyone :) What a great community there is here, I'm really grateful for it. Do you have any more info on the bee venom therapy? Like where I would order it from or a page with some advice and / or how it works? I cannot affo Zakk Aug 22, 2016 11:27 AM
RE: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - cb Aug 21, 2016 6:35 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - yes, just tell him you don't want to be cracked. He can do all of his work with an activator and muscle activation techniques. A good portion of his clients are elderly, so he is extremely well-versed in working delicately. Laila S. Aug 21, 2016 6:22 PM
RE: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - cb Aug 21, 2016 5:59 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Hi Zakk. If you are open to it, one idea would be to see the chiropractor I work with. I work as a massage therapist a few times a week at his Clinic. He works with the whole body, including the relationship between the tibia and the femur. I Laila S. Aug 21, 2016 3:44 PM
RE: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - cb Aug 21, 2016 1:33 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Hello Zakk, I haven't tried it yet but I am intending on trying Bee Venom Therapy shortly. It is especially effective for joint pain. Many people cure arthritis with it. A comprehensive protocol for Lyme & Cos has Sarah R. Aug 21, 2016 12:38 PM
Re: [East-Bay-L-E-A-P-S] Horrendous Knee Pain - Sorry to hear you are in such pain. I know it s hard to choose necessary self care and have to limit ourselves so much. Anyway, yes! Definitely bite the bullet and go see your regular doc. You must get your knee stabalized. Good luck. Val Sent fro Valerie R. Aug 21, 2016 12:33 PM
Horrendous Knee Pain - Hey folks, I'm reaching out here cause I'm kind of at a loss what to do. I've had lyme sympoms and a (mostly) positive IGM test since 2009 and have been managing pretty well (can't afford treatment) with my symptoms. The knee pain stuff I'm used to, Zakk Aug 21, 2016 10:33 AM
Re: [East-Bay-L-E-A-P-S] nasal infared lights - Hi Laila, I'm sorry I wasn't able to come to the meeting last night! I'm having a difficult time getting Grace P. Aug 19, 2016 2:05 PM
Re: [East-Bay-L-E-A-P-S] nasal infared lights - Thank you Laila - good to meet you last night, and these links look super interesting- I will put them to use! best, Josephine On Fri, Aug 19, 2016 at 12:57 josephine c. Aug 19, 2016 1:57 PM
nasal infared lights - Hello, it was lovely to meet everyone last night!  I'm so sorry that I did not remember the names of the folks interested in this, but here are some links to intranasal lights for healing Marcons and other nose and ear issues Laila S. Aug 19, 2016 12:57 PM
Re: [East-Bay-L-E-A-P-S] absolutely gorgeous/ speaking of food - Preview not available Vicki Aug 18, 2016 2:05 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Wow - such great feedback!!! I'm glad to hear that ozone has helped with energy and restoring immune systems because that is what I'm looking for at this point. My daughter and I r being treated for Lyme and Babs and r making slow progress with dr H kim F. Aug 15, 2016 10:43 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - kathy, may i ask what type of tinctures are helping? And which type of ozone did you find helpful? thanks Jodie ------------------------------­-------------- On Mon, 8/15/16, Tracey wrote: Subject: Re: [East-Ba jodie a. Aug 15, 2016 7:47 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Tracey Aug 15, 2016 4:51 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - to Kathy and Kim, which type of IV ozone are you talking about? Am confused about all the different kinds, and interested to find out more. Is this involving blood, or the direct ozone variety? thanks, Jodie ------------------------------­----------- jodie a. Aug 15, 2016 2:29 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Hi, I just joined this group yesterday, so I will send another email to introduce myself. But I have some more information on ozone therapy, so I had to jump in on the bandwagon today. I have an ozone machine myself, with t Laila S. Aug 15, 2016 2:29 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - I'm a patient of Dr. Mielke's and I was impressed with her diagnostic capabilities based on her clinical suspicions of my health issues including L Steve Aug 15, 2016 1:42 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Kathy, DR. Mielke is an autism doctor. Susan Rancer Sent from Xfinity Connect Mobile App ------ Original Message ------ From: kim Forsberg To: East-Bay-L-E-A-P-S Susan R. Aug 15, 2016 12:18 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - That would be fantastic, Kim. My daughter sees Dr Grieder, but he do Kathy M. Aug 15, 2016 11:56 AM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Kathy, Dr Lynne Mielke in Pleasanton. My appt is in a few weeks so I have not s kim F. Aug 15, 2016 11:40 AM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Hi Christine, My original symptoms were very similar to yours, except in one arm instead of one leg. I also h emily h. Aug 15, 2016 10:34 AM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - This is really interesting information. I'm defiantly going to look up the live blood analysis. Does anyone have a protocol for the antibiotics or know someone who has done it before? Did it help?  Christine Aug 14, 2016 9:29 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Christine, there are other options, depending on how bad off you are, and what you're willing to do.   If you're bad off enough that you could qualify for a MS diagnosis, I'd suggest for right now, dont worry Angela A. Aug 14, 2016 7:13 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Lucky for me all my dental work is porcelain so no metals. I've seen at least 2 MDs who believed in Lyme, but one wouldn't do the tests beyond the traditional Lyme. The other one has someone in her family with Lyme but she is and EN Christine Aug 14, 2016 5:55 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Thanks Joe, I haven't had the CD-57 test before so thats good information. Thanks for the info. I'll give it a try. This whole thing just starts to wear one out after awhile. :-( Christine Aug 14, 2016 5:47 PM
the Andrew nutrition link - I didn't know any of that about the nuts, thanks. I have another question. I understand about the grain issues we have, but i have heard something about putting quinoa somehow in oil first, i guess even after soaking? I have never done this, but jodie a. Aug 14, 2016 3:39 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - You have choices - eat them right now, or put them in fridge in a jar and they'll stay good a few days; or you can put them in oven on 200 degress for a few hours to dry them out - then they will stay good indefinitely. the low temp set Andrew Aug 14, 2016 3:02 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Thanks Andrew. So the nuts would be wet and soft, in other words, totally different than how we think of nuts? Wouldn't they go bad that same day like that? Or do you let them dry ? ------------------------------­-------------- On Sun, 8/14/16, An jodie a. Aug 14, 2016 2:50 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Sure. Putting seeds or grains or nuts in water overnight releases their inherent nutrients that are otherwise "bound up" and not absorbable by the body. Ancient cultures understood this and practiced soaking and spr Andrew Aug 14, 2016 2:43 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Andrew, can you explain the procedure for sprouting grains? And nuts? Do you mean you put walnuts in water? wouldn't they be awful, soft and sort of rotten? Would be so helpful if you could actually explain the procedures. People talk about sprout jodie a. Aug 14, 2016 2:33 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Most likely your gut/immune system is compromised. This is why the problems are here in the first place -and one of the reasons the gut is compromised is because we've eaten grains without soaking or sprouting them our whole lives, so t Andrew Aug 14, 2016 2:22 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Kim, Are you willing to share that doctor's name? Kathy M. Aug 14, 2016 12:29 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Hi Angela , Wow - th kim F. Aug 14, 2016 11:11 AM
Re: [East-Bay-L-E-A-P-S] Best, least $$$ way to test my husband? - Wow! It is so good to know that. I know a few people who might have Lyme but are not in a financial situation that allows them to go to an LLMD. It might make sense for the Susan W. Aug 14, 2016 1:18 AM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Lol, sure.  TL; DR = too long, didnt read :-)  Something Im often guilty of. MAH = Major Auto Hemotherapy.  Its where they take about 200 cc of blood, infuse it with ozone, then give it back to you.   See pic wit Angela A. Aug 13, 2016 11:12 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Christine, My recommendation is to cut out the potato and rice also. Starches and carbs usually increase swelling in the body and gut problems. Not sure why but this is what I did to improve vegetables, meat and fruits. Pre Andrae B. Aug 13, 2016 9:59 PM
Re: [East-Bay-L-E-A-P-S] Ozone therapy - Hi Angela, Would you help with the acronyms? Joe Aug 13, 2016 8:57 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Dear Christine,  You need to find the right doctor. Find a doctor who treats "empirically". That's the code word for a doctor who will treat based in symptoms and doesn't need to see a positive Lyme test. The othe Angela A. Aug 13, 2016 8:27 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Christine, I'm sorry you're struggling so. Is your doctor a Lyme literate MD or ND? I NEVER found a convent Theresa Aug 13, 2016 8:21 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Hi Christine, We all on this list sympathize Joe Aug 13, 2016 7:02 PM
Re: [East-Bay-L-E-A-P-S] absolutely gorgeous/ speaking of food - hi thanks Angela for trying to help. I think the main takeaway for me is again how different we all are. I find this in each and every post I read in this group. Doesn't make one way right or wrong. Myself, am very very allergic to eggs, even with on jodie a. Aug 13, 2016 2:36 PM
Re: [East-Bay-L-E-A-P-S] Getting frustrated, anyone have ideas? - Hi Christine, You didn't say if you've been tested for LYME or co- infections? Stephanie Aug 13, 2016 2:16 PM

People in this
Meetup are also in:

Sign up

Meetup members, Log in

By clicking "Sign up" or "Sign up using Facebook", you confirm that you accept our Terms of Service & Privacy Policy