Open Data: The Battle for the Future of Life Sciences with John Wilbanks

NOTE: Tickets are free but must be reserved using Eventbrite.

Health 2.0 New Orleans will host special guest speaker John Wilbanks for its June 26 meeting. John is a world-renowned open commons advocate and a graduate of Tulane University. His presentation will focus on an important healthcare data battle currently being waged, largely unnoticed by all but a small group of people.

Attendees will also have an opportunity for networking, and snacks and beverages will be provided. 

About John’s Presentation

Healthcare and the life sciences have shown remarkable resistance to the speed, ease of use, and accelerated benefits we know as consumers and internet users. If the health and life sciences are a network, they are Ma Bell.

Yet on the edges of the health network are clear signs of change: sensors that measure things from which health can be inferred, companies that broker access to tests that used to be gated by clinicians, policies that convert closed data to open, and give it to individuals, data analysis tools that enable conversion of all this crap into insights, competitions that connect expert data analysts directly to patients, and platforms that lower the transaction costs of the connections.

The question is, are those platforms going to be open or not? Walled gardens or nodes themselves? That's the battle being fought right now, and like most important ones, no one's really paying attention outside a small group. 

This talk will explore:

• The legal and technical systems that underlie emerging health science platforms

• Current efforts to disrupt the research enterprise

• Where we can make changes right now

About John Wilbanks

John Wilbanks is the Chief Commons Officer at Sage Bionetworks and a Senior Fellow at Faster Cures. He has worked at Harvard’s Berkman Center for Internet & Society, the World Wide Web Consortium, the US House of Representatives, and Creative Commons. John is a past affiliate of MIT’s Project on Mathematics and Computation and also started a bioinformatics company called Incellico, which is now part of Selventa.

He advises the National Coordination Office’s NITRD program, sits on the Board of Directors for Impact Story and the TransMART Foundation, and sits on advisory boards for Boundless Learning, Curious, GenoSpace, and Patients Like Me. John holds a degree in Philosophy from Tulane and studied modern letters at the Sorbonne.

In 2011 Scientific American featured John in The Machine That Would Predict The Future. Seed magazine named John among their Revolutionary Minds of 2008 as a "Game Changer." And in 2009 the Utne Reader named John one of "50 visionaries who are changing your world."

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  • David C.

    I'm at BIO International in San Diego. I registered but may not be able to make it since BIO doesn't end until Thursday.

    June 24

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