addressalign-toparrow-leftarrow-rightbackbellblockcalendarcameraccwchatcheckchevron-downchevron-leftchevron-rightchevron-small-downchevron-small-leftchevron-small-rightchevron-small-upchevron-upcircle-with-checkcircle-with-crosscircle-with-pluscrosseditemptyheartexportfacebookfolderfullheartglobegmailgoogleimageimagesinstagramlinklocation-pinmagnifying-glassmailminusmoremuplabelShape 3 + Rectangle 1outlookpersonplusprice-ribbonImported LayersImported LayersImported Layersshieldstartickettrashtriangle-downtriangle-uptwitteruseryahoo

Have you been diagnosed with a chronic and/or life threatening illness? Have you been told there is no cure and you are trying to figure out how to accept this "new normal"? Are you determined not to let your diagnosis define you or drag you down? Then this group is for you. Please join us to talk about ways to live our lives positively in spite of a scary diagnosis.

I have been living with chronic and life threatening illness since age 15 and I have dealt with it in numerous ways - some ways worked, some ways didn't. There were the self-destructive years, denial years and I believe I am currently living in the acceptance years. There is always a little overlap between them, but I think I have found a way to learn to live with my disease in a way that brings me joy, peace and happiness. (Most of the time) It's a bumpy road, but I find that the road seems smoother when I'm not riding alone.

It was 1978 when I was initially diagnosed with a rare blood disorder (Pulmonary Langerhans Cell Histiocytosis) that caused scarring in both my lungs. Then in 2010 I was diagnosed with another rare disease called Pulmonary Arterial Hypertension. Both of these diseases can be managed but not cured and both are most definitely life threatening.. It wasn't until this latest diagnosis that I really took my lung disease seriously and also realized I had a choice to make. How am I going to life my life? Was I going to spend it wallowing in self pity and wondering why me? Well, yeah sometimes - I'd be lying if I said I didn't get frustrated with my physical health. But those are not the thoughts and feelings that I want front and center all the time. I want gratitude front and center. And peace and serenity and acceptance.

Now that I've had the chance to practice living positively for a while, I decided it was time to share what I've learned and also find out how others cope as well.

Many thanks go to Danea Horn for starting this group and allowing me to take the reins. I can't wait to meet you!

****The group does not dispense medical advice. If you have questions about treatment options or the medical management of your disease, please seek the assistance of a medical professional. We are strictly mindset, stress management and accountability focused.****

A chronic disease is defined as any persistent health condition that has lasted for more than three months. Including, but not limited to: high blood pressure, heart disease, lung disease, cancer, Crohn's disease, ulcerative colitis, kidney disease, migraines, fibromyalgia, epilepsy, asthma, anemia, chronic fatigue, arthritis, IBS, diabetes, multiple sclerosis.

Join us and be the first to know when new Meetups are scheduled
Log in with Facebook to find out
By creating a Meetup account, you agree to the Terms of Service

Welcome!

  • There are no upcoming Meetups

    But there are 3 suggested Meetups!

    Check them out

Recent Meetups

What's new

  • New Member
    Tony & Tami J. Tony & Tami J. joined
    Yesterday
    Tony & Tami J.
    "We are helping everyday people reduce and/or reverse their chronic medical concerns. Now Asthma free for 15 years, and diabetes free for 1 year."
  • New Member
    Mr. R. Mr. R. joined
    July 15
  • New Member
    Grace K. Grace K. joined
    July 14
  • New Member
    Kathleen G Kathleen G joined
    July 13
  • New Member
    Malinda Malinda joined
    July 11
  • New Member
    Monique Monique joined
    July 10
  • New Member
    Pat Pat joined
    July 6
  • New Member
    Jacob Jacob joined
    June 29
  • New Discussion
    Jeannie K.

    "I am stepping down as organizer of this group and was wondering if one of the members would be interested in taking over.  ..."

    Read more…

 
Founded Sep 17, 2010

Help support your Meetup

Chip in

Sign up

Meetup members, Log in

By clicking "Sign up" or "Sign up using Facebook", you confirm that you accept our Terms of Service & Privacy Policy