Amber S.

Location:

Sacramento, CA

Member since:

December 29, 2013

What is your favorite quote?

One day at a time

What is your philosophy on life and living with chronic disease?

One day at a time

Who inspires you and why?

My mother. She, herself is living with a disease. I watched my mother raise three girls on her own living with MS and chronic migraines yet, to this day she still is there for me for every appointment even when she's in pain.

What would your advice be to someone just beginning on a chronic disease journey?

Reach out to support groups right away. I didn't and I wish I had. Look up reviews on your doctor before going any further Take your medicine on time. Set an alarm. Write down a daily log of all you experience in regards to the illness Baths in Epsom salt See a therapist if you have no one to talk to Don't expect anyone to understand and just take it easy. Don't feel like a burden, you didn't ask for this

Introduction

My name is Amber. I have been living with lupus for ten years and been on and am still on many medications. I am losing hope and am in search of support from others with SLE and Fibro. I am a mommy. Physically a struggle but a miracle and gift.


Interests

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