Sacramento, CAUSA 95818
July 17, 2011
Hi, I have Ehlers Danlos Syndrome (type III, hypermobility) a genetic condition that makes my collagen not function properly. My joints (all of them) move out of place at random. Happy to find you, hope to have strength to attend some functions.
Oh, I have so many! We don’t want to eat hot fudge sundaes as much as we want our lives to be hot fudge sundaes. ~ Geneen Roth, from _Women Food And God_ and I like this one really well too: Pain heals. Chicks dig scars. Glory... lasts forever. ~ Shane Falco, The Replacements
It's not just a body, it's an adventure!
Everyone who keeps on going, in spite of anything. Even 'normies' have troubles, we never truly know another's troubles. Everyone who has overcome something, and if you look deeply enough, everyone has overcome something.
Learn as much as you can. Learn to ask for help. Learn to accept help. Cry when you need to, laugh every minute you're not crying. I know it sounds a little trite; but it comes from hard-earned experience. It took me five years to accept 'chronic.' I've now been 22 years since my body fell apart.
Thanks for joining us, Grace!