Keith H.

Organizer

Location:

New York, NY
Hometown: New York

Organizer since:

January 13, 2013

Networks

What would you like to talk about at our meetups?

Narcolepsy is a neurological disorder, that impacts people to varying degrees. There are real socioeconomic consequences to this disorder. I don't even have a clue what other narcoleptics experience on a daily basis. That's the whole point of this group. Let's get to know each other and share our knowledge, experience, and stories.

How did you find out you were narcoleptic?

My wife made me go to the doctor after repeatedly falling asleep during late night heart-to-heart conversations. I was either uninterested in her or something was wrong. Understanding what was wrong with me changed my life.

How are you treating your narcolepsy?

I take 20mg of short-release methylphenidate (the generic version of Ritalin) once per day. My prescription is for two pills, but I generally find that I only need it in the afternoon. Ritalin is obviously not targeted at narcolepsy, and I do not want to take it for the rest of my life, but it works well for me now.

Introduction

Designer, entrepreneur, and narcolepsy advocate. I was diagnosed with narcolepsy in my early 20s, and everything finally made sense. I don't suffer from cataplexy, & coffee is my best friend.


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