Triangle Sarcoidosis Support Group Monthly Meetup

  • September 14, 2013 · 10:00 AM
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Triangle Sarcoidosis Support Group is creating an environment of support, education and awareness in the triangle area on sarcoidosis, what it is and how to live with it. If you, or someone you know, has sarcoidosis, please join us to share, learn and activate.

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  • A former member
    A former member

    Does anyone wake up in the morning with their calf muscles so tight you can hardly walk?

    September 14, 2013

    • Christina C.

      No Zanaflex is the brand name. The generic name is tizanidine and it usually comes in 4mg but my husband is on 6mg and I believe I heard the doc say the come in 8mg also. But u want to start off with 4mg first because they are powerful.

      September 15, 2013

    • Christina C.

      I was on Seroquel 300mg at bedtime for 16 years just to go to sleep and I HAD HAD to take it just to sleep but after getting on this med I finally got off that med and I am so happy because Seroquel makes u gain weight no matter what.

      September 15, 2013

  • Christina C.

    So how did the meeting go, girls and guys????

    September 15, 2013

  • Susan C

    I am a new member and plan to be at the September meeting. I have a first appointment with a pulmonologist at Duke next week, but can't find much background on him. I would like to stay in the Duke system. Can anyone recommend someone with a focus on sarcoidosis at Duke? I've read about Mark Powers, Peter Kussin, and Claude Piantadosi? Any recommendations would be appreciated. Thanks!

    September 11, 2013

    • Christina C.

      Dr.Joshi @ Duke Asthma, Allergy and Airway Clinic. I have her. She is great.

      September 12, 2013

    • A former member
      A former member

      Dr. Mala Kaul is a Rheumatologist at Duke. She decided to think out of the box and test for sarcoidosis.she is great, however ready to give birth any time so you may need to see someone else on her team. Hope this helps.

      September 14, 2013

  • Christina C.

    Chemo day turned into Saturday's and plus I forgot about today. I will try and attend next months meeting. Sorry

    September 14, 2013

  • Susan C

    Thanks Christina and Virginia. I have a question about the website postings too! Looking forward to talking more on Saturday.

    September 12, 2013

  • Virginia J.

    Hi Susan,

    I look forward to meeting you Saturday. Sharon Cooke worked at Duke. I'm sure she will have some suggestions for you. She has vast knowledge of the Duke system. See you Saturday,
    Virginia

    September 11, 2013

  • Stacey S.

    With I could but I live n the Outer Banks and will not be n the area this weekend. I'm new to this disease and I need all the info I can get

    September 9, 2013

  • Paula Isaacson-katz S.

    Moved to NC from Ft Lauderdale last Dec. Dx with pulmonary sarcoidosis in 2008. Am looking forward the support group meeting . Paula

    August 28, 2013

    • Pam

      Hi Paula welcome! I too moved from south Florida and we still have all our families there. Sorry I will be out of town for the September meeting but hope to meet you in October. There will be plenty of people to meet at the September meeting though. Let us know if there is anything you need such as a ride or directions . Take care, Pam

      August 28, 2013

    • Sharon C.

      Welcome to NC, Paula. Sorry for the reason but glad you found us. We'll look forward to meeting you in October. All the best, Sharon

      August 28, 2013

  • Paula Isaacson-katz S.

    New to area, am looking forward to attending your Support Group in Sept. Have pulmonary sarcoidosis and pulmonary hypertension.

    August 27, 2013

  • Christina C.

    My plus 1 is my husband, Mike, but it's it ok to bring my best friend also. So that she can maybe understand more about what all we go through???

    August 24, 2013

    • Sharon C.

      Yes, please bring anyone with you that you would like to bring. We look forward to meeting you at our next meeting.

      August 26, 2013

    • Christina C.

      Thanks!!! I can't wait to actually meet people in person that really I understand what I'm going through.

      August 26, 2013

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Rafaël

We just grab a coffee and speak French. Some people have been coming every week for months... it creates a kind of warmth to the group.

Rafaël, started French Conversation Group

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