September 6, 2009
Only found in my lungs so far. I hope thats where it stays.
May 2007, after suffering for about 5 years or so.
I have sarcoidosis. I found there was so much confusing, inaccurate and contradictory info out there that I couldn't find what I wanted. After meeting others with the condition, I felt I had to do something to help. This group is part of my answer.
With an agenda of Support, Education and Awareness the goals of the group are worthy and achievable. With the 10 magnificent people in the first meeting who laughed and cared all the way through, it is definitely a group to be involved with. If you have Sarcoidosis or know someone who has it either as a friend or family member, this meetup is for you.