LondonUnited Kingdom EC1A 4DD
April 22, 2010
I was diagnosed with Achalasia in 2008 and had a myotomy in 2010. Now leading a normal life thanks to the surgery.
I think it is a good idea to get people together. Hopefully at some time in the future, we will be able to take part in research into WHY we have Achalasia and how we can cope with the long term problems we face.
All in all the botox was a success. I had very little pain and swallowing food was much better, not perfect but certainly a lot better. The problem is I had the mid/late September and its now mid November and I am noticing that swallowing food is getting a little more difficult, so I guess I a one of the people who although eh botox works it doesn't last very long. My doctor basically said surgery is my call as to when I have it. I'm glad to hear that the myotomy is generally very successful.
I agree with Ruth. the more you can find out about this condition and the options you have to make your life the best that it can be, the better.
I have made a choice at the moment not to have treatment. I do worry that by not having treatment, I am storing up problems for the future, so I would not advocate doing nothing.
I no longer suffer from pain and manage to eat pretty normally, by drinking hot water. It helps stop the spasms and helps the food go down.
It must be very challenging with this new condition - I have had achalasia for many years.
I would encourage you to seek a second opinion from a gastroenterologist with some experience of this condition in order to help you make the correct treatment decisions you need. I understand why you are nervous but hope you expolore all options.