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We are great at goodie bags

  • Jul 22, 2013 · 7:00 PM
  • This location is shown only to members

Imagine the horror and the pain you would feel if you learned that the precious. newborn that you had dreamed of for nine months was not the healthy child that you had hoped for. Instead, you are told that not only is your child ill, but that this perfect human being has a rare, life limiting disease. Sadly, that is what Las Vegas' own Ostrea family faced when their gorgeous Little Miss Hannah was born in 2008.  For three years, Hannah's family researched the rare disease that their baby had while still working hard to make sure that her short life would not be short on life. After Hannah's death in 2011, the family vowed to continue to fight for other families who are facing the devastation of rare diseases.

 

Tonight, we will be helping the Ostrea Family prepare feathers and goodie bags for The Second Annual Rainbows to the Sky event to be held on July 24. This year's "party" will be held at Town Square and will commemorate Hannah's 5th Birthday. All money raised from the event will be used to help other families cope with genetic diseases. We will be meeting at my home and light refreshments will be served. Please be advised that I do share my living space with a 100 pound friendly dog and two kitties.

AS ALWAYS, PLEASE RSVP WITH INTEGRITY.

 

 

The Little Miss Hannah Foundations’s mission is to help enhance the quality of life for young children diagnosed with life-limiting rare diseases, undiagnosed complex medical needs, and children who have been placed in hospice or palliative care.

The foundation also gives parents the necessary tools to empower them to meet their child’s unique medical and lifestyle needs, as well as provide support resources and special attention for their other children.

LMFH will host workshops on medical record management, media awareness opportunities, using social media to reach out for support, and finding the right information about your child’s condition.  We work to provide support groups for all members of the family by providing fun, family-focused and sibling-focused events and activities.

By working hands-on with families that are faced with losing their child due to a medical condition, the Little Miss Hannah Foundation will strive to empower, educate and support families during the most emotionally-charged times of their lives.

 

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  • Melissa C.

    I had a blast! It was wonderful!

    July 23, 2013

  • Sigrid S.

    It was great, had some enjoyable conversations as we circled the table filling the bags. Learned how to hold a feather properly without burning my fingers with hot glue, thanks Tim for the glue gun 101

    July 23, 2013

  • Timothy

    We had 300 bags to fill and 300 feather things to make, all were completed (with only minor burns to the hot melt glue people :) and made ready. Met some nice people and had some fun, for a good cause.

    1 · July 22, 2013

  • Tina P.

    I had a blast

    July 22, 2013

  • Tina P.

    I'm excited to get to meet all of you and also help out on a great cause!
    Do I need to bring anything tomorrow?

    July 21, 2013

    • Mary-Beth

      We are excited to meet you too. No need to bring a thing.

      July 21, 2013

  • A former member
    A former member

    Sorry I have change of plans for Monday so I cannot make it anymore.

    July 20, 2013

  • TY

    I too lost my baby so I am so touched that you all do things to help this family continue to heal. If I can do anything to help please let me know!

    July 20, 2013

  • Yumi

    Hi Marybeth! I wanted to sign up last night but I can't make it until 7:30.

    July 12, 2013

  • Yumi

    Hi Marybeth! I wanted to sign up last night but I can't make it until 7:30.

    July 3, 2013

  • A former member
    A former member

    What do we need to bring for the goodie bags?

    July 3, 2013

    • Mary-Beth

      Nothing. We will simply be preparing the materials providing and then filling the bags

      July 3, 2013

    • A former member
      A former member

      OK! I will get some dish for us to munch then or a drink depending on how my day is going...

      July 3, 2013

  • Timothy

    Do the kittens and your dog play together? They are probably a YouTube video moment waiting to happen :)

    July 3, 2013

    • Mary-Beth

      Oh no, they are way too used to each by now.

      July 3, 2013

  • Tina P.

    This will be my first meetup with AOK and I can't wait!

    July 3, 2013

  • Stephanie

    I should be free. :)

    July 2, 2013

  • Harry S.

    I would love to attend but I produce and co-host my radio show on Monday evenings.

    July 2, 2013

  • Carrol K.

    I've been missing AOK....this should be fun!

    July 2, 2013

9 went

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