Why Study Rare Diseases?

This presentation will be given by Dr. Susan Hayflick. Rare diseases are those that affect fewer than 200,000 Americans at any given time. Nearly 7,000 such diseases are known today, many of them targeting children.

Dr. Hayflick has dedicated her research to finding a cure for neurodegeneration with brain iron accumulation (NBIA), a group of rare, genetic neurological disorders. She will discuss the science that many of these diseases share and the social and economic challenges that patients face.

Dr. Hayflick is chair of OHSU’s Department of Molecular & Medical Genetics. The Hayflick Lab, in collaboration with national and international partners, is credited with discovering five genes that cause NBIA thus furthering our understanding of neurodegenerative pathogenesis.

 

We make it worth your while to get up early on Sunday morning.  =-)

Programs are presented in four broad areas relevant to Humanism:

Human Well Being

Science/Reason

Secularism

Humanities, Culture, and Morality

Sun @ HGP program details -- for this week's speaker follow this link and read the "Next Speaker" announcement on the HGP website home page, left side; for future speakers and activities, click on the "Calendar" button, upper left:

http://www.portlandhumanists.org/

Sunday Morning Schedule:

8:45  Early Bird discussion, choose topic by consensus (Garden Room)

9:45  Children join parents in East Room for simulcast

9:45  Coffee, juice and cookies (Arts and Crafts Room)

10:00 Main program, weekly speakers on topics of interest to Humanists (Keeston Room)

10:05 Humanist discussion, each week a different theme (Garden Room)

11:30 AfterThoughts: engage the speaker over light snacks (Arts and Crafts Room)

11:45 Classes, discussions, musicians, committees meet until 1:00 PM

12:15 Lunch at nearby eatery, all are welcome!

Be sure to peruse our humanist library while you're here -- books available to lend upon HGP membership.

Find more information about the Humanists of Greater Portland by clicking on the sponsor link at the left side of the webpage, then check out the full calendar of activities on HGP's main website.

All Meetup fees are paid by our sponsor through your memberships; donations toward the work of HGP are gratefully accepted.

Join us -- and bring a friend!

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