What we're about

All our MeetUps will be VIRTUAL until further notice! Support and awareness group for people with Connective Tissue Disorders of Ehlers-Danlos-Syndrome, the Hypermobility Spectrum Disorders and all their co-morbidities, the group is also open to friends and families of people living with these connective tissue disorders. Members exchange resources and plan outreaches to raise awareness in the Chicagoland area, and provide general support for each other!
We meet the first Saturday of the month unless otherwise noted, with a different topic or general discussion.
At our "home" location, (St. James Commons of St James Cathedral, Chicago)
we provide Coffee, decaf, cold water and hot water available for tea (byot) or what have you. Our location is centrally located downtown, accessible via public transportation, has metered street parking, private parking lots nearby and is wheel chair accessible. Please join us!

Upcoming events (5)

EDS Chicago Annual Family and Friends Picnic

Herrick Lake Forest Preserve

Come join us for our Annual EDS Family and Friends Summer Picnic, this year at Herrick Lake. We have reserved a wheelchair accessible shelter for the entire day and intend for this to be a drop in in and out event. The East Shelter has a large built in grill, electricity and plenty of picnic tables. It is wheelchair accessible, close to parking lot, flush toilets, right on the lake, for fishing, boat rentals. Bring food and beverages to share needed utensils, games, lawn games, use the big big grill or bring your own, blankets, lawn chairs etc. We intend to have someone hang back in the shelter at all times to do our best to keep an eye on bigger items, think coolers, food, chairs etc. Explore the wheelchair accessible trails, rent kayak, canoe, or paddle boats, enjoy fishing (will need a licence in advance to fish if over 16 and non disabled) or just hang out! Come out with your family and closest supporters, of course service animals always permitted, this day even your leashed dog invited! As always we appreciate ANY donation possible, to defray our costs, that can be done in person or right here on our MeetUp page anytime! Please see Herrick Lake or DuPage county web page for details, history and maps of this beautiful location! Please there is no alcohol allowed at Herrick Lake Please see complete rules and regulations attached, also our normal meeting rules are in place! https://www.dupageforest.org/about/rules-regulations https://www.dupageforest.org/places-to-go/forest-preserves/herrick-lake

EDS Chicago Support Group Monthly Meeting

Online event

You will need to RSVP to get access to the meeting link. Join us for our monthly EDS Chicago Support and Awareness group meeting. Bring your questions, and an open mind. Share what you have learned.

EDS Chicago Support Group Monthly Meeting

Online event

You will need to RSVP to get access to the meeting link. Join us for our monthly EDS Chicago Support and Awareness group meeting. Bring your questions, and an open mind. Share what you have learned.

EDS Chicago Support Group Monthly Meeting

Online event

You will need to RSVP to get access to the meeting link. Join us for our monthly EDS Chicago Support and Awareness group meeting. Bring your questions, and an open mind. Share what you have learned.

Past events (62)

Photos (37)