What we're about

This group is for people who suffer from CFS/ME and/or Fibromyalgia.

Hosted in North Hills, CA (91343), it is for support, companionship and socializing with other CFS and FM sufferers and their family members/friends.

Please join this group if you suffer from CFS and/or FM, especially if you are local as it is very hard for CFS/FM sufferers to go far.

We will meet at El Pollo Campero 9000 Sepulveda Blvd, North Hills, CA 91343

No need to bring or donate anything. But please be prepared to buy at least a cup of coffee or a drink at El Pollo Campero so that they let us stay there. Please also RSVP so that I know who and how many people will be coming.

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GROUP MATERIALS (PLEASE READ)

https://drive.google.com/open?id=1oixSCaazfsAZhHhzO0XRItJHb_885H8i

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Unfortunately, CFS and FM are diagnosed and treated by Primary Care Physicians because there are not yet specialists for these illnesses. Do not waste your time going to psychiatrists, pain doctors or rheumatologists. I know that some medications can only be prescribed by them, but if your symptoms are not too severe they are usually not very eager to prescribe the medications. So find a sympathetic PCP and go to him.

Like this one in Torrance:

https://www.holtorfmed.com/chronic-fatigue-syndrome-fibromyalgia/

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Please also check out these very helpful resources:

Our CFS/ME/FM sister's sites: https://howtogeton.wordpress.com and https://www.meaction.net (https://www.meaction.net/2017/04/17/the-sleepy-girl-guide-to-social-security-disability-u-s/)

Other CFS/ME Sites:

http://www.shoutoutaboutme.com/about-me/severity/body-count-the-tragic-stories-of-severe-me/

https://solvecfs.org/severemeday-the-tragic-stories-of-severe-me/

https://me-pedia.org/wiki/Myalgic_Encephalomyelitis

https://www.me-pedia.org/wiki/Fibromyalgia

https://en.wikipedia.org/wiki/Sick_building_syndrome

https://www.cdc.gov/me-cfs/

https://www.cdc.gov/acute-flaccid-myelitis/

Diagnostic tests:

FM:

http://fmtest.com/

CDC and Social Security Disability Information:

CFS/ME:

https://www.ssa.gov/disability/professionals/documents/64-063.pdf

https://www.ssa.gov/OP_Home/rulings/PDF/2014-07465.pdf

https://www.ssa.gov/OP_Home/rulings/di/01/SSR2014-01-di-01.html

https://www.meaction.net/2017/04/17/the-sleepy-girl-guide-to-social-security-disability-u-s/

https://www.cdc.gov/me-cfs/resources/disability.html

FM:

https://www.ssa.gov/OP_Home/rulings/di/01/SSR2012-02-di-01.html

https://www.cdc.gov/arthritis/basics/fibromyalgia.htm

Both:

https://howtogeton.wordpress.com/2017/03/20/how-pattys-lawyer-never-told-her-the-most-important-thing-she-needed-to-know/

https://howtogeton.wordpress.com/2017/05/01/sample-doctor-letters-for-disability/

Support Groups and Treatment Statistics Site:

https://www.patientslikeme.com/

Medical Sites:

https://www.healthtap.org/

https://www.healthtap.com/

http://www.dermweb.com/

https://www.drugs.com/drug_interactions.html

Latest Research articles (as of 03/2019):

BREAKING NEWS

https://www.prohealth.com/me-cfs/cfs-breaki... (https://www.prohealth.com/me-cfs/cfs-breaking-news)

OTHER

https://www.ncbi.nlm.nih.gov/pubmed/30617782

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6357921/

https://www.mdpi.com/2075-4418/9/1/1

https://www.ncbi.nlm.nih.gov/pubmed/30828572

https://www.frontiersin.org/articles/10.3389/fped.2019.00012/full#T7

https://www.ncbi.nlm.nih.gov/pubmed/30805319

https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-64

https://www.uptodate.com/contents/clinical-features-and-diagnosis-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome?topicRef=2783&source=see_link

https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/pdf

https://www.clinicaltherapeutics.com/action/showFullTextImages?pii=S0149-2918%2819%2930003-7

https://www.ncbi.nlm.nih.gov/pubmed/30795933

Past events (2)

Second Meeting: Please come

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First Meeting: Welcome Everyone

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