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Sacramento Support for Chronic Pain and Illness!

  • Jan 9, 2013 · 3:00 PM
  • This location is shown only to members

Let's get back together to share stories, feelings, resources, strategies!

*Significant Others are Welcome!

Privacy for Face-To-Face Meetings
RULE: Assume that attendees want to be as anonymous as they can be, unless they tell you otherwise.
I do not mention any names of attendees in the meeting notes, in order to have a certain level of privacy in our face-to-face meetings. If someone specifically tells me that they're going to put something on the message board or lets me know that I can name them, then I will. Otherwise, we try to keep a certain level of privacy that is almost like that in AA meetings, although not quite as anonymous, since members often use their real names and even pictures that show on each meeting link when they RSVP.

Meeting Etiquette
In order to attend the meeting, a member must be able to commit to the following:
1. Positive attitudes
2. Nonjudgmental towards others
3. Suggestions are great; but careful with unsolicited advice.
4. Realize that some people just need someone to listen.
5. Work on Goals, even the smallest.
6. Open-minds/Tolerance
7. It's okay to cry
8. It's okay to laugh
9. We cannot force anyone to talk, but try to allow as much equity as possible for members to share---we are a group.
10. Sharing values, beliefs systems and perspectives, especially on how to treat chronic illness, is welcomed, encouraged really, as long as one is sharing vs. trying a pushy indoctrination of others.
*Whenever you RSVP, you agree to follow the rules of etiquette.

(In effect as of Jan 1, 2013)

 If you have more than two "no-shows" on your attendance record, regardless of how long you have been a member you may not submit a yes RSVP for any meetings in the current quarter, which is the time period beginning with the upcoming meeting on January 9, 2013 through the end of March. You may, however, wait until all the spots are taken and then submit a yes RSVP for the waiting list. This means that a few people need to remove themselves from the current attendance roster for Wed.’s meeting as soon as possible.

 You will be allowed to submit a yes RSVP as usual (without being restricted to the waiting list) in the subsequent quarter, which would be the time period of April through June. However, this is only if you did not move from the waiting list in the previous quarter and end up incurring as many as two no-shows again.

We will follow these RSVP rules all year from one quarter to the next. I expect us to be the honor system, although I will probably check that people are paying attention to these new rules.

For the last meeting that I hosted, 17 people signed up, including 5 on the waiting list. Only 3 people showed up. As a few of the members pointed out, there were some people on the waiting list expressing a very urgent need to come to a meeting and feel some support. They could have had the opportunity to attend had the meeting page not reflected that there were No Spots available.

I know it is frustrating when you do not know how your body is going to be from day to day – makes it hard to plan things. I know because I am one of you; I suffer from chronic illness and disability. But if it is 1 or 2 days before the cancelation deadline and you are not sure if you can make it, please have respect for the group and change your RSVP to “no.” And I know that it is frustrating if on the day of the meeting you happen the be feeling better and feel like you could have gone but out of respect for others we need to err on the side of caution. Remember that there will be another meeting, and you can also communicate with people through the web page.


Sarah Shelton

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  • Susan in D.

    Hey: Still asking: for anyone who has used Syboxone,how was it? Any problems? Effectiveness? PLEASE let me know. I know that I read on this site that there was at least one person using it. If you, or others, have first hand experience or even just heard something from others, please share. My doc ultimately wants me to make the decision, but I would like some feedback first.

    January 8, 2013

    • michelle c.

      Susan-I think higher doses may have some effect. Suboxone is kind of scary because I'm not sure how much research has been done. I was on a very low dose so I can't comment on higher doses. But I was able to talk to people on 50mg as opposed to 5mg. It definitely has side affects. Also, if you have a serious incident where you would need a pain med. or narcotic suboxone blocks the effect. You would need to taper off the suboxone. Suboxone is used primarily for addiction/they are just experimenting with the pain thing. Sorry to ramble. If you need more info on this I can recommend a dr. For you to talk to. Good luck. Please let me know if you need any help at all.

      February 1, 2013

    • michelle c.

      Susan-also, there are only certain federally certified physicians that can prescribe. You also will have to see the doc monthly and they will drug test you for other drugs. You will be grouped together like with addicts. It bothered me but maybe it will be worth it to you. Do you have fibro? Maybe I can tell you what works for me.

      February 1, 2013

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