What we're about
AIMS OF THE COOGEE OWLS ME/CFS/FM SUPPORT GROUP:
To provide a meeting place for people with ME/CFS and Fibromyalgia to network, swap tips and generally let things hang out (only if you so choose).
Confidentiality and open-mindedness are pre-requisites.
It would be appreciated if you don't wear perfume or after shave - it is upsetting for many of us.
Also the acceptance that CFS and fibromyalgia are very individual conditions. You may have one, both o rseveral symptoms which bear little resemblance to those of others. Nor will treatments that helped you necessarily benefit others. So active listening is encouraged without judging. NO EVANGELISTS PLEASE.
The reason for the Q's on joining is so that you can look up the symptoms of others who may not make it to the same meeting and contact them privately if you wish to chat.
Otherwise ALL AGES are welcome plus CARERS - we get people from early 20s to late 70s, so really look forward to seeing you.
Note: A $4 fee (or larger donation) at meetings is appreciated to help with my expenses in running the Meetup group.
Food prices are average and very diverse from coffees & cookies to full blown beautiful meals and salads,
RSVP: PLEASE rsvp"YES" if you are PLANNING to come (late apologies appreciated if not up to it on the day). It is important to RSVP so that we know how many to book for.
We would also appreciate your trying to come on time as a courtesy - please notify us if delayed.
1) The ME/CFS & FM Association NSW (http://www.mecfsnsw.org.au/) http://www.mecfsnsw.org.au/ for research, stories & tips.
2) You might like to join their Facebook online support group:
3) Emerge Australia is a national group funded by donations, memberships and part-government with more of the latest research . They advocate at a federal level for greater understanding of ME/CFS
Monika - Organiser