Skip to content

What we’re about

Open to anyone anywhere who has seizures, cares for or loves someone with seizures. Based in Portland, Oregon, our network now includes nationwide members and international guests have occasionally participated.

A Zoom-based meeting format exclusively for patients and caregivers. A safe place to meet others like yourself and see that you are not alone. Gain insight and understanding, share in the special life we lead.

Organized by a non-physician medical professional who has seizures themselves, our meetings offer more guided and informed discussions. We also bring in presentations on special topics by outside physicians and researchers; and we encourage presentations by our own very knowledgeable members.

Recent topics have included:
Physician Q&As
Epilepsy and Sleep
Epilepsy and Religion
Home drug monitoring
Stigma in Epilepsy
Seizure Detection Devices and Novel Interventions