ALS Rally for Faster Drug Approval hosted by "Hope NOW for ALS.org"
Details
We are PALS (people with ALS), their friends and family members, united by our belief that we must do everything in our power to accelerate the realization of a cure. Our mission is to expedite access to promising investigational drugs for the current generation of PALS through the FDA's Accelerated Approval Program (AAP) and other pathways, and to speed up ALS drug development by promoting improved alternative and humane designs for clinical trials.
This next rally will be even bigger and better with your help! Our immediate goal is to continue pressuring the FDA to IMPLEMENT their own "Accelerated Approval Program" (AAP) for ALS patients - starting with the existing FDA application for GM604 - possibly the first ALS drug in twenty years to meet the criteria for AAP.
After the rally we will walk as a group to the U.S. Capitol (1.5 miles). Please schedule your own meetings with your congressional representatives, and/or Senators on the H.E.L.P. Committee and Members of Congress involved with the 21st Century Cures legislation before and/or after the rally.
http://energycommerce.house.gov/press-release/21st-century-cures-legislative-phase-now-underway-continued-feedback-sought-cures2015-begins-in-earnest
If you would like to donate to this campaign to help pay for the rally and promote this grassroots movement on social media, you may contribute here:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=DGK3QWZ9TM67Q
All donations are tax deductible under The 90 Foundation - EIN 46-5766950
Thank you and I look forward to another incredible rally in May!
http://www.HopeNOWforALS.org
http://www.change.org/ALSMedication
https://www.facebook.com/gm604forals
http://www.twitter.com/GM604ALS
#FDAHope4ALS
Linda Clark / "Lina"
