This is a MeetUp group is a support group for those suffering with M.E/CFS, or their carers.

Hi there, this is year 5, and I have gone from a state of “still punching (most of the time)”, into almost complete recovery. Although I have a lot of great friends I started this group to bring together people who are suffering from and/or living with M.E CFS, just for support. To meet, have an occasional coffee and social, and mix with other people who are in a similar situation. It was a large step in my journey to recovery and I hope others can benefit from it in the same way.

We organise quarterly meetings, and are working towards virtual Meets on Skype for those who can not get out and about. I have also thrown this group open from the start. We are now collaborative and have various organisers doing various MeetUp's.

Mainly we want people to be able to meet other people who relate to how they live with it. So if there is not a MeetUp close enough to you, step up! You can host just once if you like, or a number of times. We are also still seeking more people to organise Skype Meets for those who are unable to join in person.

We could also possibly split MeetUps in the future by severity, local area and age group. There are a lot of us, and there's a whole spectrum to the disease. To become an assistant organiser, contact Catherine.

Overall, this group will be about networking with others with M.E/CFS, friends, socialising, support and hopefully a bit of fun, Together, we're stronger :)

Group Rules:

1. This group is only for those suffering with M.E/CFS, or their carers.

2. This is a support group, and we only meet four times a year! Please respect that, if you are going to come please do but arrive at the stated start time. We are not willing to hang around waiting for people to turn up when they feel like it. If you can't make it, just wait for the next meeting :)

3. Refrain from dropping out at the last minute. Do not treat this like just any other MeetUp group, it is a support group. Please only put your name down if you can commit to attending. If you change your RSVP with less than 24 hours notice you will be marked as a no show. Three no shows and unfortunately you will be removed from the group.

3. Anyone who joins this group to promote a service from which they financially gain is kicked of and banned. Capiche?

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Recent Meetups

  • June 19 · 5:00 PM

    Coffee with Kate

    10 People with a biomedical disease | 5.00 5.001

    A chance to meet others with M.E. for a friendly chat about the illness or any other topic you may choose. The meeting will be hosted by Cath and is organised in... Learn more
  • March 1 · 3:00 PM

    Coffee with Kate - March

    7 People with a biomedical disease

    Coffee with Kate :). Yes they do decaff! This will be in the Blue Bar in the Royal Festival Hall, it's normally fairly quiet, no music, and you can normally get seats. I... Learn more
  • November 30, 2013 · 3:30 PM

    Coffee with Gareth, Sophie and Kate - November

    9 People with a biomedical disease | 4.50 4.502

    Coffee with the organising team. :). Yes they do decaff! This will be in the Blue Bar in the Royal Festival Hall, it's normally fairly quiet, no music, and you can... Learn more
  • November 16, 2013 · 1:00 PM

    Virtual MeetUp - Online Videoconference Meetup

    9 People with a biomedical disease | 3.00 3.001

    Hi All, This is an idea we've been hoping to roll out since this group was started, an online virtual meet up using video conferencing. This will make it much easier for... Learn more
  • September 14, 2013 · 3:30 PM

    Coffee with Kate - September

    4 People with a biomedical disease | 5.00 5.001 | 4 Photos

    Coffee with Kate :). Yes they do decaff! This will be in the Blue Bar in the Royal Festival Hall, it's normally fairly quiet, no music, and you can normally get seats. I... Learn more
See all past Meetups

What's new

  • New Member
    Lizzy Wright Chung Lizzy Wright Chung joined
    June 29
    Lizzy Wright Chung
    "My name is Lizzy, I'm 18 and currently doing some distance learning due to being unable to attend full time college. I'm very friendly and talkative (I think)..I'­ll be looking forward to meeting everyone~ :)"
  • New Member
    Saràh-Nicola Jackman Saràh-Nicola Jackman joined
    June 23
    Saràh-Nicola Jackman
    "My name is Sarah-Nicola and I have had ME/CFS for two years. I'm so glad to have finally found a group like this..."
  • New Member
    kitty kitty­ joined
    June 19
    kitty
    "."
  • New Member
    Catherine Baker Catherine Baker joined
    June 19
    Catherine Baker
    "."
  • New comment
    Janet Janet­ commented on Coffee with Kate
    June 19
    Janet

    "I am saying no, but there is a possibility­ that I may manage to come. I am having my decking rejuvinated­ and I don't know how long that will take! Can't leave home until the bloke has gone! Have fun if I don't make it!"

    Read more…

  • New Member
    Matt Matt­ joined
    June 17
    Matt
    "Hi im Matt ,23 i live just outside of London (south east). I was diagnosed with some autoimmune diseases about 4 year ago which have not been able to be controlled. I would really like to talk to and meet people who can understand what its like."
  • New RSVP
    mark & kim mark & kim RSVPed Yes­ for Coffee with Kate
    June 14
    mark & kim
    Jun 19
    Coffee with Kate
    Thursday 5:00 PM
  • New Member
    mark & kim mark & kim joined
    June 14
    mark & kim
    "I'm Mark and my wife Kim has been diagnosed with FMS for years. Kim has found it especially hard to identify with other chronic pain sufferers and would be keen to do so either by phone/internet or meetings where possible. We are in West London."
  • New Member
    Cath Cath­ joined
    June 13
    Cath
    "Hi, I'm one of the contacts for the Central London ME group"
  • New RSVP
    Simon DeCroos Simon DeCroos RSVPed Yes­ for Coffee with Kate
    May 31
    Simon DeCroos
    Jun 19
    Coffee with Kate
    Thursday 5:00 PM
 
Living with M.E/CFS London (and surrounding areas) http://photos4.meetupstatic.com/photos/event/2/1/4/global_283260532.jpeg
Founded Dec 29, 2012
20121229

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