Individuals whose lives are affected by Hidradenitis Suppurativa (HS). Members of this group either have it, love someone who has it, or are physicians dedicated to aggressively treating this rare condition. We are dedicated to getting over the shame, isolation and depression that this disease can bring by hanging out with people who understand. We laugh, joke, talk, and discuss all aspects of our experience. With the help of our medical experts who lead this group, we hope to grow in a positive way from our experience and hopefully help health experts make some progress in the treatment of our condition by bringing attention to it. HS is a non-contagious skin disease that can be extremely painful and may persist for years with occasional to frequent periods of inflammation. Pain and depression associated with HS can be difficult to manage. HS often goes undiagnosed for years because patients are too ashamed to speak with anyone. When they do see a doctor or medical practitioner, the disease is frequently misdiagnosed or prescribed ineffective treatments. There is no known cure. HS is often called an 'orphan illness', due to little research being conducted on the disease at this time.

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