Individuals whose lives are affected by Hidradenitis Suppurativa (HS). Members of this group either have it, love someone who has it, or are physicians dedicated to aggressively treating this rare condition. We are dedicated to getting over the shame, isolation and depression that this disease can bring by hanging out with people who understand. We laugh, joke, talk, and discuss all aspects of our experience. With the help of our medical experts who lead this group, we hope to grow in a positive way from our experience and hopefully help health experts make some progress in the treatment of our condition by bringing attention to it. HS is a non-contagious skin disease that can be extremely painful and may persist for years with occasional to frequent periods of inflammation. Pain and depression associated with HS can be difficult to manage. HS often goes undiagnosed for years because patients are too ashamed to speak with anyone. When they do see a doctor or medical practitioner, the disease is frequently misdiagnosed or prescribed ineffective treatments. There is no known cure. HS is often called an 'orphan illness', due to little research being conducted on the disease at this time.

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Welcome to Hidradenitis Support Meetup!

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  • New Member
    jenny jenny joined
    January 3 at 9:00 PM
    jenny
    "I am from Austin, TX and have had HS for about 3 years. Couldn't find a group in Austin so this was the closest I could find. Would love any advice or tips!"
  • New Member
    Chissy Chissy joined
    December 12, 2011 at 7:38 PM
    Chissy
    "Hi I've been dealing with HS since I was about 11 and was finally diagnosed with it at 20, it's somewhat mild right now but I'm seeking to speak to a specialist about what to do"
  • New Member
    sicily sicily joined
    September 24, 2011 at 9:28 PM
    sicily
    "Hi my name is Sicily , I have suffered with HS since I was eighteen and only in the past 2 years have learned what it is , after hundreds of surgeries ."
  • New Member
    cathy muckian cathy muckian joined
    June 4, 2011 at 7:57 PM
    cathy muckian
    "Hello,I have had HS for 40 yrs. now and have been hanging in there, and I am glad there are groups of people you can talk to about the very bothersome disease HS."
  • New Member
    S bailey S bailey joined
    May 27, 2011 at 4:26 PM
    S bailey
    "Im a 28 year old female I been dealing with this since 2009 and its painful.I had to go to the er then a dermatologist to get properly diagnosed.I just got a steroid shot on the lesion and its the only thing that worked so far it is healing ."
 

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