What we're about
This group is for people with Charcot-Marie-Tooth (CMT) disease and their friends and family. I have created this group so people with CMT can meet others with this disease, focus on the positive and do fun activities together. We will do easy yet fun things that are free or relatively cheap. Let's enjoy the world around us , while being with others who are living with CMT.
I will plan at least one activity a month and will post all the details on here. It is not mandatory to attend each event, come to only those that interest you (but keep an open mind, you just might enjoy something new!). Always check back and see what's been added on the schedule!
Activities will be planned in Mukilteo, Everett, Lynnwood, Bothell, Edmonds, Shoreline, Kirkland, Seattle, Marysville, Whidbey Island, Arlington, Woodinville, Bellevue, Snohomish, Lake Stevens and other surrounding areas.
Please let me know if you have any questions (or any activity ideas!) You can message me on here or send me an email. I'm looking forward to meeting you!
CMT stands for Charcot-Marie-Tooth (named after the three physicians who first described this neurological disorder in 1886), which is a disease of the peripheral nerves that causes loss of normal function and/or sensation in the lower legs, feet, arms and hands. CMT is one of the most commonly inherited neurological disorders. It affects all people, races and ethnic groups around the world... about 2.8 million people have CMT.
I am 1 of the 2.8 million.
I was diagnosed with CMT over 30 years ago. When they told me I had CMT in 1987, they said there was no treatment and that there was no cure. My family and I were left without answers and fearful what my future would hold. I went my whole life thinking what I had was rare as neurologists didn't provide any hope or even information about this disease. It wasn't until September of 2017 that I stumbled upon CMTA's website and realized… for the first time in my life... I was not alone.
If you would like more information about Charcot-Marie-Tooth disease, please visit: http://www.cmtausa.org