This group is for those who want to remain active with others that understand the challenges of dealing with a chronic condition.
My name is Lupe, I've been living with Sjogren's Syndrome for 10+ years, most recently I was also diagnosed with Hashimotos. Sjogren's Syndrome is an autoimmune, that among other things, attacks your moisture producing cells.
My main complaint is extreme fatigue and joint pain, mornings are the worse. Waking up feeling like you have the flu, everyday, is NOT fun! But my symptoms get better as the day goes on. Exercising, stretching and walking helps so much!
My husband, Brian and took a photography class at Orange Coast College and we were at a school function, taking photos at the Huntington Library in Pasadena and it was HOT!
We were at the Japanese Garden taking photos and all of a sudden, I got so overheated, I felt like I couldn't breath. I panicked, started crying and like a wounded animal I segregated myself, seeking shade and water. I didn't want my classmates to see what I was going through. But most importantly, I was embarrassed of being judged and I didn't want them to be mad at me for slowing them down.
Long story short, with the help of my husband, Brian, I got through the day and no one was the wiser.
However, we know the importance of exercising and being active. But we also understand the challenges one faces when living with a chronic condition.
So, we started this meetup to build community, encourage others to be active and engage with other living with a chronic condition in a supportive manner.
No need to feel embarrassed or fear being judged by others in this group!
Our goal is to;
• Create Community; Hiking, Cycling, Walking, Beach, Photography, Museums, a little bit of everything, etc
• Promote and engage in an active lifestyle despite your diagnosis
• Group physical activities with others diagnosed with a chronic condition
• To get out and move the body and get the blood pumping