What we're about

EDS Austin is a group for people with Ehlers-Danlos Syndrome, and those who are pursuing a diagnosis. I hope this group will become a resource for information and support. I have EDS hypermobility type diagnosed last year.

I've recently taken over this group and hope to schedule some meetings very soon. Some ideas include a meet and greet, group fitness meet ups (an easy walk, class with an instructor sensitive to EDS/joint hypermobility/chronic pain, etc.), support group/information exchange, and doctor Q&A.

Stay tuned for upcoming meetings!

What is EDS?

Ehlers-Danlos Syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. (https://www.mayoclinic.org/diseases-conditi... (https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125))


Past events (1)

Virtual Meeting!

Online event

Photos (2)