About us
MOST of our MeetUps will be virtual until further notice, some in person events are resuming. We are a local support and awareness group for people with the Connective Tissue Disorders of Ehlers-Danlos-Syndrome, the Hypermobility Spectrum Disorders and all their co-morbidities, living, attending school or working in either Chicago or the surrounding areas. The group is also open to friends and families of people living with these connective tissue disorders. Members exchange resources and plan outreaches to raise awareness in the Chicagoland area, and provide general support for each other!
We meet the first Saturday of the month unless otherwise noted, with a different topic or general discussion. Please visit our website www.EDSChicago.com
*not currently meeting at St.James regularly.
we are mostly meeting over Zoom*
At our "home" location, (St. James Commons of St James Cathedral, Chicago) we provide Coffee, decaf, cold water and hot water available for tea, or what have you. Our location is centrally located downtown, accessible via public transportation, has metered street parking, private parking lots nearby and is wheel chair accessible. Please join us!
Upcoming events
9
EDS Chicago Support and Awareness Meeting
·OnlineOnlineGeneral topic meeting and a book review!
It’s All in Your Head
A Novel
Open the full-size image## Contributors
## Formats and Prices
On SaleFeb 10, 2026
Page Count384 pages
PublisherGrand Central Publishing
ISBN-139781538771570Join us the First Saturday of every month ( usually) for a virtual MeetUp! Some months we have topic, sometimes guest speakers, sometimes just open discussion on all things EDS. Watch this space for specifics closer to each date.
Our meetings are always centered on EDS. Please bring your questions and answers and your experiences. As always please link on a moment or two early to work out any connection issues.Our First Saturdays are open to all of our MeetUp members, regardless of location, whereas our FB group is only open to locals.
4 attendees
Past events
130
