60 Minute Agenda (Virtual)
Welcome & Grounding (5 minutes)
Brief welcome
Review of group guidelines
Optional grounding moment to help everyone settle in
2. Introductions (10 minutes)
First name or nickname only
Optional share: where you are in your hEDS journey
Sharing is always voluntary
3. Group Topic (20 minutes)
Emotional impacts of invisible illness
Fatigue & energy limits
Emotional impacts of invisible illness
4. Peer Discussion (20 minutes)
Participants may share experiences, insights or questions
Listening is a valid form of participation
Avoid cross talk of advising unless invited
5. Closing & Resources (5 minutes)
Brief wrap up
Optional reflection
Resource sharing
Reminder of next meeting
What to Bring (Optional)
You may find it helpful to have:
A comfortable chair or supportive set up
Water, tea or a snack
Any braces, pillows, or comfort items you normally use
A notebook if you like jotting things dow.
Please feel free to:
Change positions
Turn your camera off
Step away briefly if needed
Your body's needs come first.
How to Find the Group Online
The group meets virtually via Zoom
You will receive a direct meeting link
Date and time (with time zone)
Any access details (password, if applicable)
To join:
1. Click the meetiung link a few minutes before start time
2. Choose a name you're comfortable displaying (first name or nickname is fine)
3. Camera & microphone use are optional
If you have trouble joining, instructions & support contact info will be included in the confirmation message)
Group Guidelines
Confidentiality is expected
No medical advice of pressure to "fix"
Respect different experiences & capacities
Take care of your body during the meeting
Adira is a semi-retired psychiatric mental health nurse practitioner & educator with decades of experience supporting adults navigating complex medical, emotional & life transitions. She brings a calm, compassionate, & practical approach to group facilitation, shaped by both professional training & lived experience. This group is informed by trauma aware & nervous system supportive principles, but it is not therapy or medical care. Adira's role is to gently guide discussion, protect the tone & boundaries of the space, & support meaningful peer connection.
