What we’re about
Hello and welcome! We are an online peer-led support group for those living with kyphosis and its long term health implications. My name is Carrie, and I had my spine fused due to moderate/severe Scheuermann’s disease when I was 15 years old. I created this group with the goal of fostering a community that is supportive and kind, as kyphosis can be such an isolating and disabling disease. Whether you have only recently been diagnosed or had spinal fusion surgery 20 years ago, this group is for you.
We meet weekly on Sundays at 10am PST / 1pm EST over zoom. We will share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
You can find more information and resources here!
Upcoming events (4+)
See all- Weekly Kyphosis Peer Support Group: Parents of Kids with SKLink visible for attendees
SKAPS meets weekly on Sundays at 10am PST / 1pm EST over zoom. We share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
This Week's Topic: Parents of Kids with SK
- Raising a child with Scheuermann’s Kyphosis comes with unique challenges. This meeting provides a space for parents and caregivers to discuss treatment decisions, emotional support, and shared experiences in a compassionate community.
Get more info and resources here!
Group topics are on the following schedule:
First Sunday: Pain Management & Comorbidities
- A space to discuss pain management, medical treatments, alternative therapies, and personal experiences. Whether you're exploring new options or sharing what has helped you, this space is to connect with others in a supportive environment.
Second Sunday: General Discussion
- An open forum for members to share experiences, ask questions, and support one another. Whether you're an SK parent, newly diagnosed or have been managing Scheuermann’s for years, this is a safe space for connection, advice, and encouragement.
Third Sunday: Parents of Kids with SK
- Raising a child with Scheuermann’s Kyphosis comes with unique challenges. This meeting provides a space for parents and caregivers to discuss treatment decisions, emotional support, and shared experiences in a compassionate community.
Fourth Sunday: Living with SK
- Designed for individuals with Scheuermann’s Kyphosis, this meeting covers long-term management, workplace accommodations, and the emotional impact of SK. Connect with others who understand your journey. (Ages 14+ or accompanied by a parent)
Fifth Sunday: General Discussion
- On months with a fifth Sunday, we host an extra open discussion for new and returning members to check in, share updates, and explore any topics related to Scheuermann’s Kyphosis in a welcoming, supportive space.
Group Rules:
1. Respect everyone’s voice- Allow each person to speak without interruption
2. Cameras are optional.
3. Mute your microphone until you want to speak.
4. Raise your hand when you have something to say- This helps us make sure everybody who has something to say gets a chance to do so. We will go in order of when you raise your hand.
5. No unsolicited advice
- Ask if somebody wants advice before giving any.
6. Be kind and non-judgemental
- Avoid dismissive, invalidating, or judgemental comments.
7. Confidentiality is key
- What happens in group, stays in group. Respect everyone’s privacy.
8. No harmful language or behavior
- Disrespectful, aggressive, or harmful language will not be tolerated.
- Weekly Peer Support Group: Living with SKLink visible for attendees
SKAPS meets weekly on Sundays at 10am PST / 1pm EST over zoom. We share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
This Week's Topic: Living with SK
- Designed for individuals with Scheuermann’s Kyphosis, this meeting covers long-term management, workplace accommodations, and the emotional impact of SK. Connect with others who understand your journey. (Ages 14+ or accompanied by a parent)
Get more info and resources here!
Group topics are on the following schedule:
First Sunday: Pain Management & Comorbidities
- A space to discuss pain management, medical treatments, alternative therapies, and personal experiences. Whether you're exploring new options or sharing what has helped you, this space is to connect with others in a supportive environment.
Second Sunday: General Discussion
- An open forum for members to share experiences, ask questions, and support one another. Whether you're an SK parent, newly diagnosed or have been managing Scheuermann’s for years, this is a safe space for connection, advice, and encouragement.
Third Sunday: Parents of Kids with SK
- Raising a child with Scheuermann’s Kyphosis comes with unique challenges. This meeting provides a space for parents and caregivers to discuss treatment decisions, emotional support, and shared experiences in a compassionate community.
Fourth Sunday: Living with SK
- Designed for individuals with Scheuermann’s Kyphosis, this meeting covers long-term management, workplace accommodations, and the emotional impact of SK. Connect with others who understand your journey. (Ages 14+ or accompanied by a parent)
Fifth Sunday: General Discussion
- On months with a fifth Sunday, we host an extra open discussion for new and returning members to check in, share updates, and explore any topics related to Scheuermann’s Kyphosis in a welcoming, supportive space.
Group Rules:
1. Respect everyone’s voice- Allow each person to speak without interruption
2. Cameras are optional.
3. Mute your microphone until you want to speak.
4. Raise your hand when you have something to say- This helps us make sure everybody who has something to say gets a chance to do so. We will go in order of when you raise your hand.
5. No unsolicited advice
- Ask if somebody wants advice before giving any.
6. Be kind and non-judgemental
- Avoid dismissive, invalidating, or judgemental comments.
7. Confidentiality is key
- What happens in group, stays in group. Respect everyone’s privacy.
8. No harmful language or behavior
- Disrespectful, aggressive, or harmful language will not be tolerated.
- Weekly Peer Support Group: Pain Management & ComorbiditiesLink visible for attendees
SKAPS meets weekly on Sundays at 10am PST / 1pm EST over zoom. We share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
This Week's Topic: Pain Management & Comorbidities
- A space to discuss pain management, medical treatments, alternative therapies, and personal experiences. Whether you're exploring new options or sharing what has helped you, this space is to connect with others in a supportive environment.
Get more info and resources here!
Group topics are on the following schedule:
First Sunday: Pain Management & Comorbidities
- A space to discuss pain management, medical treatments, alternative therapies, and personal experiences. Whether you're exploring new options or sharing what has helped you, this space is to connect with others in a supportive environment.
Second Sunday: General Discussion
- An open forum for members to share experiences, ask questions, and support one another. Whether you're an SK parent, newly diagnosed or have been managing Scheuermann’s for years, this is a safe space for connection, advice, and encouragement.
Third Sunday: Parents of Kids with SK
- Raising a child with Scheuermann’s Kyphosis comes with unique challenges. This meeting provides a space for parents and caregivers to discuss treatment decisions, emotional support, and shared experiences in a compassionate community.
Fourth Sunday: Living with SK
- Designed for individuals with Scheuermann’s Kyphosis, this meeting covers long-term management, workplace accommodations, and the emotional impact of SK. Connect with others who understand your journey. (Ages 14+ or accompanied by a parent)
Fifth Sunday: General Discussion
- On months with a fifth Sunday, we host an extra open discussion for new and returning members to check in, share updates, and explore any topics related to Scheuermann’s Kyphosis in a welcoming, supportive space.
Group Rules:
1. Respect everyone’s voice- Allow each person to speak without interruption
2. Cameras are optional.
3. Mute your microphone until you want to speak.
4. Raise your hand when you have something to say- This helps us make sure everybody who has something to say gets a chance to do so. We will go in order of when you raise your hand.
5. No unsolicited advice
- Ask if somebody wants advice before giving any.
6. Be kind and non-judgemental
- Avoid dismissive, invalidating, or judgemental comments.
7. Confidentiality is key
- What happens in group, stays in group. Respect everyone’s privacy.
8. No harmful language or behavior
- Disrespectful, aggressive, or harmful language will not be tolerated.
- Weekly Peer Support Group: General DiscussionLink visible for attendees
SKAPS meets weekly on Sundays at 10am PST / 1pm EST over zoom. We share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
This Week's Topic: General Discussion
- An open forum for members to share experiences, ask questions, and support one another. Whether you're an SK parent, newly diagnosed or have been managing Scheuermann’s for years, this is a safe space for connection, advice, and encouragement.
Get more info and resources here!
Group topics are on the following schedule:
First Sunday: Pain Management & Comorbidities
- A space to discuss pain management, medical treatments, alternative therapies, and personal experiences. Whether you're exploring new options or sharing what has helped you, this space is to connect with others in a supportive environment.
Second Sunday: General Discussion
- An open forum for members to share experiences, ask questions, and support one another. Whether you're an SK parent, newly diagnosed or have been managing Scheuermann’s for years, this is a safe space for connection, advice, and encouragement.
Third Sunday: Parents of Kids with SK
- Raising a child with Scheuermann’s Kyphosis comes with unique challenges. This meeting provides a space for parents and caregivers to discuss treatment decisions, emotional support, and shared experiences in a compassionate community.
Fourth Sunday: Living with SK
- Designed for individuals with Scheuermann’s Kyphosis, this meeting covers long-term management, workplace accommodations, and the emotional impact of SK. Connect with others who understand your journey. (Ages 14+ or accompanied by a parent)
Fifth Sunday: General Discussion
- On months with a fifth Sunday, we host an extra open discussion for new and returning members to check in, share updates, and explore any topics related to Scheuermann’s Kyphosis in a welcoming, supportive space.
Group Rules:
1. Respect everyone’s voice- Allow each person to speak without interruption
2. Cameras are optional.
3. Mute your microphone until you want to speak.
4. Raise your hand when you have something to say- This helps us make sure everybody who has something to say gets a chance to do so. We will go in order of when you raise your hand.
5. No unsolicited advice
- Ask if somebody wants advice before giving any.
6. Be kind and non-judgemental
- Avoid dismissive, invalidating, or judgemental comments.
7. Confidentiality is key
- What happens in group, stays in group. Respect everyone’s privacy.
8. No harmful language or behavior
- Disrespectful, aggressive, or harmful language will not be tolerated.
