Rare disease talk. Ladies only. CIDP, MNN, MS, ALS. We are rare, please care.

Hello ladies,

Welcome to the first of many zoom chats over tea 🍵 or coffee ☕️ or hot cocoa where we share our stories and learn from others' insights into rare neuromuscular disorders.

I've been living with CIDP for a few years now. ups and downs.

The zoom link will be shared on the day.

Key Benefits of our Support Group:

Safe Spaces: Virtual and in-person sessions allow for open, honest conversation with people who truly understand the experience of living with a rare condition.

Caregiver Support: You can also join if you are the primary caregiver. We'll share mental health tips and challenges of caregivers.

First-hand Knowledge: What to expect during treatments.

Advocacy Training: Tell us how, as a patient, you advocate for yourself.