Rare Disease Seminar

Are you struggling with an under represented affliction or do you know someone who suffers from one? Let’s talk about the potential future of rare diseases. And feel free to share your experience, if you‘d like.

This will be a discussion about connecting the physical effects of rare diseases with the mental health of those afflicted and their care-givers. It will be hosted by Rob Cottignies, who has a rare nervous system condition along with some mental issues, both related to the illness and not. The goal is to bridge the gap between the physical and mental worlds and give hope to those affected. All are invited to add their input as to the future of this endeavor.

Did you know? Around one in twelve Pennsylvanians and over 30 million Americans suffer from one of more than 7,000 rare diseases.

And you probably know, we really enjoy an engaging discussion.