Nutcracker Syndrome/Pelvic Congestion Support Group

Welcome to this support group for people living with Nutcracker Syndrome (NCS/NC), MCAS, Pelvic Congestion Syndrome (PCS), and related vascular or chronic-pain conditions.

(I am hoping to do these group meetings via Zoom - will work on getting that set up)

This group was created to provide a safe, understanding space for people who are navigating these often complex, painful, and misunderstood diagnoses. Whether you are newly diagnosed, still searching for answers, considering treatment, recovering from a procedure, or supporting someone you love, you are welcome here.

I was recently diagnosed with all of these conditions myself, and I know how overwhelming, isolating, and confusing this journey can feel - my journey was 25 years long - finally at 59 finding answers. My hope is that we can come together to share experiences, ask questions, exchange practical tips, celebrate progress, and offer encouragement on the difficult days.

Small victories, setbacks, and support from people who truly “get it”

Everyone’s experience is different, and there is no single path through these conditions. Please be kind, respectful, and supportive of one another. This group is for shared support and personal experiences, not medical diagnosis or a replacement for care from qualified medical professionals.

You do not have to go through this alone. We are here to listen, learn from one another, and help each other take one day at a time.