The Bioethics of Gene Therapy

Dr. Escandon will go through the origins, history and current state of affairs in gene therapy - emphasizing both the hope and the areas where great care and ethical concerns lie.

Biography of Rafael Escandon
Rafael (Rafa) Escandon is currently a consultant for research ethics and clinical research and development to the biotechnology industry. Most recently was the senior vice president of medical affairs, policy, and patient engagement at BridgeBio Gene Therapy and has worked in global clinical research and development and patient advocacy for nearly 30 years. Rafa’s approach is to be highly considerate of the ethical implications of conducting and participating in clinical research, especially in rare diseases and in vulnerable and developing-world populations. He serves as adjunct faculty in the Department of Medical Ethics at the New York University Grossman School of Medicine, as well as at the Children’s Mercy Kansas City/UMKC School of Medicine Pediatric Bioethics Center. He was also previously adjunct faculty at the University of California Berkeley's Clinical Research Management Program and as an educator in human rights and justice.