Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
793
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
11 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
14 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
June Book Club Meetup
Welcome, readers!
Our June read is ***Endurance: Shackleton's Incredible*** ***Voyage***
**by Alfred Lansing.**
A work of nonfiction, and one of the most astonishing survival stories in history, we follow Sir Ernest Shackleton and his crew after their ship is crushed by Antarctic ice. Stranded in one of the harshest environments on Earth, the men endure months of isolation, freezing temperatures, and near starvation—yet refuse to give up hope. Lansing brings their ordeal to life through vivid detail and firsthand accounts, capturing both the brutality of nature and the resilience of the human spirit. At its core, the story is a powerful testament to leadership, perseverance, and the unbreakable will to survive against impossible odds.
Looking forward to discussing with everyone!
We will meet at Zaftig Brewing Co in their event room in the back. We are welcome to bring in our own food, but **all** **drinks must be purchased at the bar.**
Happy reading! đź“–
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Customize the IDE: Building Extensions for Visual Studio Code - Alan Barber
**Important time note:** Please plan on arriving between 5:30 and 6:00 as the elevators lock after 6 and you'll need to message us and we'll need to come get you.
The building address is 4450 Bridge Park
The entrance is 6620 Mooney St, Suite 400
You will need to scan your ID at the door to get a visitor badge.
**Abstract**
*Customize the IDE: Building Extensions for Visual Studio Code*
Visual Studio Code is one of the most widely used development environments today, and much of its flexibility comes from its extension ecosystem. Extensions allow developers to customize the editor with new features, integrations, and workflow improvements tailored to their needs.
In this session, we’ll cover what extensions are and the different types available, including full extensions written in TypeScript or JavaScript, along with lighter-weight extensions such as color themes, language packs, language support, code snippets, and keymaps. We’ll also look at practical reasons a developer might create an extension, from automating repetitive tasks to adding custom tooling.
The session includes a hands-on walkthrough of creating a new extension, testing it locally, and understanding the basic project structure. We’ll close with a brief overview of how extensions are packaged and published to the Visual Studio Marketplace and other distribution options.
**YouTube Link**
TBD
Networking Night
Free monthly networking for Columbus business owners. Real conversations, real connections, no forced formats. Space is limited. RSVP now.
Most owners leave networking events with a stack of business cards and no plan. The best leads quietly slip through the cracks.
Networking Night is a monthly meetup for Columbus business owners who want to build real local relationships, not just trade contact info. Every kind of local business welcome. No pitch round, no pressure, no awkward speed-networking.
**This month**
We are focused on referral relationships. Walk in with a clear idea of who refers people like you. Walk out having met a few owners whose work fits next to yours.
**What to expect**
Doors open at 6 PM. You get real conversation with other local owners, time to actually connect, and a short marketing lesson woven in. The room is reserved through 7:30 PM.
**Who this is for**
Any local business owner who wants to grow through relationships, not just paid ads. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Last Thursday of every month
* 6:00 to 7:30 PM
* COhatch Easton
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local owners build the system that keeps their phone ringing, including tracking the referral relationships built in rooms like this one. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275](https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275)
Conversation and Coffee @ Belle's Bread Bakery
Hey Everyone!
Let's meet at Belle's Bread Bakery and Cafe. There is lots of free parking and easy access to the cafe and many shops and restaurants as well. This is a great way to meet new and old friends while chatting about life and practicing English language speaking skills. All are welcome and encouraged to join us anytime between 11am and 1pm. Looking forward to seeing you soon.
Westerville Queer Coffee Meetup
WQC has weekly Thursday night social nights at the Westerville Java Central. Come and grab a coffee and connect with the community: low stakes, chill environment, and tasty drinks. No registration is required; come as you are.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Super Friday: SUPERGIRL at Cinemark Stoneridge!
Join us for an Opening Night showing of the super-hero action-adventure, SUPERGIRL! Get in early because this series is just getting started! Hot on the heels of last year’s excellent SUPERMAN comes what should be another fun adventure! Here’s a description, trailer and plan for this event:
DESCRIPTION: Kara Zor-El, aka Supergirl, joins forces with an unlikely companion on an interstellar journey of vengeance and justice when an unexpected adversary strikes too close to home. The film is directed by Craig Gillespie, written by Ana Nogueira, and stars Milly Alcock, Matthias Schoenaerts, Eve Ridley, David Krumholtz, Emily Beecham, David Corenswet and Jason Momoa.
TRAILER: https://www.youtube.com/watch?v=s1-pfiVMKAs
MOVIE PLAN: Please purchase your ticket for the 7:00pm showing and meet in the lobby area between 6:40 and 6:50pm! It’s in their largest theater on their biggest screen but advance ticket purchase is advised for this Opening Night showing! Once you have yours, please list your seat number in the Comments below.
DINNER PLAN: For this event, we’ll go meet for a pre-show bite at nearby EL VAQUERO! If you’d like to join for dinner, please arrive at 5:15pm and ask for the Movie Group!
Look forward to seeing you there, Dan
Allora Kitchen and Bar
Let’s check out this Mediterranean restaurant in Clintonville. Parking is the back or on the side streets.
Check out the menu;
https://allorakitchenbar.com/dinner/
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Columbus Medical Marijuana Meetup 6/30/26 - Network/Learn/Celebrate/Mix/Chill
Our next much-awaited **COLUMBUS** meetup is **Tuesday June 30th from 7-10 pm EST at ACE OF CUPS**. Meet patients, cultivators, processors, dispensary managers/staff, physicians, home growers, educators, activists, nonprofits, artists, attorneys, business owners, writers, students, and supporters to network, share our knowledge, collaborate, support each other and make new ones!
Hope you will be there too! Save the date and pass the word. **Please RSVP** so we know who is coming and how many to expect.
Find us to say hi and we will introduce you to others. We should be easy to spot. (The happy-looking group wearing cool nametags! See photos from our past events.) Sign in, grab a name tag, start your own bar/food tab, meet old friends and make new ones! Everyone is welcome. SEE YOU THERE!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Vision Loss Support Group: Discussion of Ohio Theatre Tour
You can also join the meeting by Conference Call at (518) 263-8851.





















