Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
786
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
10 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
15 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
129 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
BOOM! At Land Grant featuring the 3 ton toad.
BOOM! At land grant featuring the 3 ton toad.
Catch the best view of Ohio’s biggest fireworks show – without the downtown madness. Land grant is 1/2 a mile from red white and boom! BOOM! At Land grant is back! The 3 ton toad will go live on the beer garden stage beginning at 7 PM. They’ll keep the music going right up until the fireworks light up the sky.
Come early, grab a craft beer, hit up the food trucks, and settle in for a summer night of music, drinks, and an unbeatable fireworks finale.
In Person Event: The Secrets to Mental Health
Mental Health, how do you understand it? How can you improve it?
How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
This group is hosted by the Dianetics and Scientology Life Improvement Center of Central Ohio.
How to Take Control of YOUR Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind.
Find out what the reactive mind is, and in the process find yourself.
Here is the secret of being positive and free:
Thinking positively is not enough.
You also have to get rid of the negative thinking.
Your mind is like a garden.
You can plant many beautiful flowers in it, but if you don't get rid of the weeds when you plant your flowers, the weeds will soon take over the whole garden.
A positive thought is like a flower in your mental garden, and a negative thought is like a weed.
You cannot expect to have a positive mindset if you continue to have negative thoughts dwelling and growing there.
So, how do you get rid of the negative thoughts? That's what this Meetup is all about. Attend this local meeting and find out!
The Meetup event will be led by a consultant who had helped many people live happier in life.
Be sure to click on the red "Attend" button below to come to this local event. We look forward to seeing you there.
This group is created by the Dianetics & Scientology life improvement center.
Red, White & BOOM: A Black Love Summer Social
🇺🇸 Red, White & BOOM: A Black Love Summer Social ❤️
Skip the downtown chaos and celebrate with great people instead!
Join Black Love & Friends as we spend the evening together in the beautiful, historic King-Lincoln District, just steps from Mayme Moore Park, with an incredible view of the Red, White & BOOM fireworks.
This isn't a formal event—it's a relaxed summer gathering.
Come early or stop by later. Stay for an hour or stay all evening. We'll have our own private meetup space where you can kick back, meet new people, play a few games, enjoy light refreshments, and simply enjoy the holiday together.
Throughout the evening we'll explore the King-Lincoln District, soak up the atmosphere, laugh, connect, and then settle in as the Columbus skyline lights up with one of the biggest fireworks shows of the year.
✨ What to expect:
🎆 Great views of the Red, White & BOOM fireworks
🏙️ Historic King-Lincoln District
⛺ Private Black Love & Friends meetup tent
🎲 Lawn games & conversation
🥤 Light refreshments
🤝 New friends & great vibes
📸 Perfect summer photo opportunities
Event begins: 6:30 PM
Fireworks begin later in the evening, so arrive whenever works for you. Feel free to come and go throughout the night.
⚠️ RSVP is required. Space at our tent is limited, so we'll only be able to accommodate those who register in advance.
Bring a chair if you'd like, wear your favorite red, white, and blue, and come celebrate community, connection, and summer with Black Love & Friends.
Good people. Great conversations. Amazing fireworks.
Volunteer Opportunity
Open Shelter has teamed up again with Red White and Boom! Friday, July 3rd & we are looking for volunteers to run the event’s alcohol booths. Proceeds from sales go to the Open Shelter’s organization.
There are two available shifts: 12-6p & 5-11p.
There will be an ipad-like device to process transactions in addition to cash. Everything will be in bottles or cans, so transactions should be very easy. Must be 21+.
There are multiple beverage stations along the Civic Center Bridge. The stations are covered and also have beverage trucks next to them, so volunteers can cool off in the trucks.
As far as parking, it is suggested those who are coming from the east use the Columbus Commons Garage, and those from the west use the Belle Street Garage.
Harry from the Open Shelter will be your contact.
(614)562-2169
mailto:harry@theopenshelter.org
More information about the event:
https://redwhiteandboom.org/
More information about the organization:
https://theopenshelter.org/
In-Person Event: The Answers to Depression & Anxiety
This is an in-person meeting. At this meeting you will get answers to depression and anxiety. Find out the source of them and how to get rid of them.
Did you know that unwanted emotions like anxiety, depression, unhappiness, loneliness, hopelessness, anger, fear, or feelings of irritation don’t just fall on you for no reason. They are not random occurrences that simply happen to people's minds. They are definitely not due to a chemical imbalance in your brain from some nebulous chemical reaction "by chance".
Your negative emotions are the symptoms of the painful experiences that you have which are not healed, and which are still affecting you.
The effects of these painful experiences are exacerbated by the pressures or difficulties of the other problems in your life.
Come to our Meetup, where we can introduce you to some of the knowledge, tools and techniques of the breakthroughs in the field of the mind that we can apply to this ever important area of life.
Be sure to click on the red "Attend" button below to come to this local event. We look forward to seeing you there.
This group is created by the Hubbard Dianetics Foundation of Central Ohio and Church of Scientology of Central Ohio.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
How to Control Emotions & Future worries !
Come enjoy our free meditation classes!
Room number # 5 in Liberty branch Delaware county library, Powell
**Sahaja Yoga Meditation** is a simple, energy-based practice that helps you achieve **thoughtless awareness**, a state of deep inner peace and mental clarity. It’s easy to learn, can be practiced anywhere, and is open to all.
Our **free** meditation classes offer:
* **Guided meditation** led by experienced practitioners.
* An introduction to the **subtle energy system**, including **Chakras** and **energy channels**.
* The awakening of **Kundalini energy** for balance and self-realization.
* **Chakra cleansing techniques** to promote inner harmony.
* A supportive space to listen, share, and grow.
* Practical methods to integrate meditation into daily life.
No special preparation is needed—just an open heart and a willingness to explore.
Learn more at:[ https://wemeditate.com/](https://wemeditate.com/)
Golden Lotus Meditation & Lecture - is cancelled!
Join us for our Sunday Meditation Service - Is cancelled!
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
COUNT RMH Housewarmer Volunteering (Ronald McDonald House)
Some trained COUNT volunteers work together once a month at RMH (http://www.rmhc-centralohio.org/volunteer.php) as Housewarmers (usually on the 1st Sunday from 1 – 5 PM). Some schedule other shifts at their convenience. You may try this out with less fuss by following a "Fast track" or go through the normal process.
Fast track
• Arrange a time to shadow a COUNT volunteer. Call Dave Nohle at 614-268-9558 (cell).
• Show up and try it out.
• Complete application, etc. later.
Normal process
• Complete an online application (http://rmhc-centralohio.org/volunteer/).
• Attend orientation in advance.
• At orientation you will complete forms agreeing to keep family/patient info private and allowing a background check and tour the facility.
• Complete one training shift. Daily shifts are: morning 9 AM - 1 PM, afternoon 1 - 5 PM and evening 5 - 9 PM.
• Schedule shifts online using the on the RMH scheduling system (http://www.volgistics.com/ex/portal.dll/?FROM=32895).
The Ronald McDonald House (RMH) provides housing and meals for families with sick children. The Columbus RMH is the largest in the world with 137 rooms. COUNT has been volunteering there since May 2014.
Housewarmers work with RMH guests to provide a home-like environment - greet, assist with family needs, answer phones, give tours, assist with checkin/checkout, prepare guest rooms after checkout, clean facility, laundry, restock supplies and staff the front desk. RMH Housewarmers volunteer at least one four-hour shift a month. All Housewarmers must complete an application and agree to a background check before they can be full fledged volunteers.
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Speak Easy (Storytelling)
The topic for July is "Shoes"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.























