Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
793
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
11 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
14 Members
Rare Disease and Autoimmune Support Group
72 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
How to Control Emotions & Future worries !
Come enjoy our free meditation classes!
Room number # 5 in Liberty branch Delaware county library, Powell
**Sahaja Yoga Meditation** is a simple, energy-based practice that helps you achieve **thoughtless awareness**, a state of deep inner peace and mental clarity. It’s easy to learn, can be practiced anywhere, and is open to all.
Our **free** meditation classes offer:
* **Guided meditation** led by experienced practitioners.
* An introduction to the **subtle energy system**, including **Chakras** and **energy channels**.
* The awakening of **Kundalini energy** for balance and self-realization.
* **Chakra cleansing techniques** to promote inner harmony.
* A supportive space to listen, share, and grow.
* Practical methods to integrate meditation into daily life.
No special preparation is needed—just an open heart and a willingness to explore.
Learn more at:[ https://wemeditate.com/](https://wemeditate.com/)
Columbus OpenClaw AI Agent Workshop
🛠️ **OpenClaw AI Agent Workshop — One session. One working AI agent.**
*The session starts with a goal and ends with a deployed agent*
For anyone who wants AI working for them instead of the other way around, this workshop strips out everything unnecessary and gets straight to building. By working through the build with a guide, you leave having built something real and immediately useful.
**⚠️ Final step:** Just clicking rsvp will not save your spot in this session, so click the register link below and complete the full sign-up to hold your seat — registration closes once spots fill so act fast, and registration is what actually holds your place.
### [🔗 SECURE YOUR PLACE](https://aiventurelab.org/product/OpenClawMasterclass?city=Columbus&groupurlname=club-of-bold-book-discussions-and-socials&startgmtdatetime=2026-06-27T22:00:00Z)
---
**What this session produces:**
- Templates and tools from the session to jumpstart your next build
- A deployed agent ready to run immediately after the session
- A real, working AI agent you built from scratch in the session
Start building AI tools today — secure your place and come with one task you want to automate, and the skills from this session apply immediately after.
🚀 *Stop reading about AI. Start building it.*
Columbus Go Fully Remote — 14 Days
🚀 **Go Fully Remote in 14 Days — Remote Ready — The fastest route to working from anywhere.**
*A bootcamp built by people who have made the transition themselves*
For professionals ready to build an income that is not tied to a single postcode, this bootcamp was designed to get you there faster than going it alone. With daily structured sessions over two weeks, you build a replicable system for earning remotely from wherever you want to be.
**⚠️ Important:** Clicking rsvp does not complete your registration, so use the link below to register and secure your spot in the session — spaces are purposely limited so move fast, and only a completed sign-up confirms your attendance.
### [🔗 SIGN UP NOW](https://aiventurelab.org/product/RemoteReadyBootcamp?city=Columbus&groupurlname=club-of-bold-book-discussions-and-socials&startgmtdatetime=2026-06-27T22:00:00Z)
---
**14-day outcomes:**
- Practical frameworks for building income that follows you wherever you go
- A step-by-step blueprint for replacing office income with remote income
- The mindset and methods to sustain remote income long after the bootcamp ends
- The tools and workflows that keep remote professionals productive globally
Your office is optional — claim your seat and follow the plan that thousands have used before you, since small groups mean real results not just big presentations.
🗺️ *Choose your city. Keep your earnings.*
Spike the Stigma, MENd the Mind Volleyball Tournament & Fundraiser
Join us for an inspiring day of volleyball, community, and mental health advocacy at the **Spike the Stigma, MENd the Mind Volleyball Tournament & Fundraiser**.
Whether you're playing in the tournament or simply coming out to support the cause, everyone is welcome. This annual event brings people together to raise awareness about mental health, encourage open conversations, and support suicide prevention efforts through local nonprofit organizations.
🏐 **What to Expect:**
* Co-ed recreational sand volleyball tournament
* Mental health advocacy and resource booths
* Live DJ
* Food trucks
* Local vendors
* 50/50 raffle
* Adoptable dogs and cats
* A fun, family-friendly atmosphere filled with community spirit
This event was established in memory of Alex Wilhelm and is dedicated to breaking the stigma surrounding mental health, especially encouraging men to seek support when they need it. Together, we can create a culture where asking for help is seen as a sign of strength.
**Not a volleyball player?** No problem! Come enjoy the festivities, meet great people, support local organizations, and help make a difference.
Together, let's **Spike the Stigma and MENd the Mind.**
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Golden Lotus Meditation & Lecture - 'Topic to be announced!'
Join us for our Sunday Meditation Service - 'Seeing God as the Sole Doer!' Or join us on Facebook Live! Our Facebook Page is ***Golden Lotus Yoga for Spiritual Awareness***
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
Pranic Healing Level I - PH I--- DAY 2 of 2
MCKS PRANIC HEALING® Level I
In PRANIC HEALING® Level 1, you learn the basics of working with your energy aura, including learning to "scan," or feel the energy, to "sweep," or clean away congested energy, and to "energize," or supplement areas in your aura that have a pranic deficiency.
PRANIC HEALING® has been taught to doctors, nurses, massage
therapists, acupuncturists, chiropractors, shiatsu practitioners, and many others in the healing field. It has allowed them to heal confidently and consistently in the shortest learning time possible. These professionals find PRANIC HEALING® very effective and easy to apply.
Other topics covered in PRANIC HEALING® Level 1:
Energetic anatomy: You will learn to work with the network of chakras, meridians and auras to accelerate the healing processes of your body.
Preventive healing: You will learn to remove the negative energetic patterns of a disease to prevent it from fully manifesting as a physical ailment.
Self-Pranic healing: You will learn to apply these healing techniques to accelerate your own healing.
Step-by-step techniques for ailments related to your:
respiratory system, e.g., asthma,; circulatory system, e.g., heart ailments; gastrointestinal system, e.g., irritable bowel syndrome; musculoskeletal system, e.g., arthritis and back pain; reproductive system, e.g., menstrual problems. You'll also learn how to address common problems as migraines and sinusitis.
Additionally, you'll learn to apply distant healing to loved ones who are not present in the room with you.
All PRANIC HEALING® courses are "experiential," which means that you learn by actually performing the techniques and exercises in class - on yourself and those around you. During class, all the principles will be explained thoroughly and you will practice the techniques exhaustively so you will be confident in your ability to produce positive results when you finish the course.
This is Day 2 of 2 Attendance at day one is required to attend day 2.
The Course text book is Choa Kok Sui, "Miracles through Pranic Healing" Please bring this with you to class.
PRANIC HEALING® Level 1 is a prerequisite to all other GMCKS courses.
For those interested to review the class...Review fee is only $75!!
LOOK AT THIS!! Review for FREE when you bring a new student to class with you.
Game Dev Meetup (@Improving In-Person)
PLEASE NOTE!!!
This event will be In-Person for our 2nd Improving collab! If you know the [Columbus Unity group](https://www.meetup.com/columbus-unity-user-group/) location, we'll be at the same place. This is our 2nd event at this location so bare with us as we grow into this space.
There's paid street parking on Saturdays but you can also pay to park in any of the local garages. See image of [parking map here](https://drive.google.com/file/d/1Mr9_LFIggbs-0_Zd3AJTGNqEhgMf2TzQ/view?usp=sharing).
\-\-\-
On the last Sunday of the month, we're having our usual end-of-the-month social gathering with our GameDev Meetup meeting. There will be announcements and presentations followed by some social networking Let's continue the conversations with good vibes and friends.
All are welcomed from all ages and backgrounds to this public event. If we can, we'll be streaming or uploading the video later via our COGG YouTube channel here:
[https://www.youtube.com/@TheCOGG/streams](https://www.youtube.com/@TheCOGG/streams)
(Also please do subscribe if you have not done so!)
No game development experience required!
If you are interested in doing a 20 minute game development related presentation, please fill out our form online here:
[https://goo.gl/forms/lVdTJZiNJewlPJuj1](https://goo.gl/forms/lVdTJZiNJewlPJuj1)
Or e-mail us at [info@thecogg.com](mailto:info@thecogg.com)
with the following:
Your Name, Company/Affiliation, Name of Your Game/Topic, Description, Tech Needs, and Your Contact.
Be sure to check out our Discord for real time news updates:
[https://discord.gg/NrBhuNQ](https://discord.gg/NrBhuNQ)
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Columbus Medical Marijuana Meetup 6/30/26 - Network/Learn/Celebrate/Mix/Chill
Our next much-awaited **COLUMBUS** meetup is **Tuesday June 30th from 7-10 pm EST at ACE OF CUPS**. Meet patients, cultivators, processors, dispensary managers/staff, physicians, home growers, educators, activists, nonprofits, artists, attorneys, business owners, writers, students, and supporters to network, share our knowledge, collaborate, support each other and make new ones!
Hope you will be there too! Save the date and pass the word. **Please RSVP** so we know who is coming and how many to expect.
Find us to say hi and we will introduce you to others. We should be easy to spot. (The happy-looking group wearing cool nametags! See photos from our past events.) Sign in, grab a name tag, start your own bar/food tab, meet old friends and make new ones! Everyone is welcome. SEE YOU THERE!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Speak Easy (Storytelling)
The topic for July is "Shoes"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!






















