Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
791
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
10 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
13 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
CABS Friday Boardgaming 6/12
Thanks for being a part of the CABS Meetup Group! We meet @ the COFFEE UNDERGROUND on Indianola Avenue. We play many different games @ CABS - bring your own or play one of the OVER 2222 in our library. What are your favorite games? What was the last game you played? Hope to see and game with you soon! Check us out on Facebook! Doors open early on Saturday Mornings at 10am and around 4pm on Fridays if you are interested in learning new / simpler games ... or new to the hobby or just want to check us out come in early just after noon and we will show you around before the crowd grows. Stay for a game or two, an hour or two or for the day! Your first visit is free and after that it's $5 a meeting or you can join for the year! It's Your Move
Revival of Reason 2026: 15 Years of BN!!!
Black Nonbelievers is proud to bring you our 2nd annual Revival of Reason!!!
Join us in Atlanta as this year, we will celebrate 15 years as an organization, along with our own version of the Juneteenth holiday!
Featured speakers include:
– Chris Cameron
– Candace Gorham
– Kellie King, aka Detroit Atheist Queen
– Hemant Mehta, The Friendly Atheist
– Godless Engineer
– Mandisa Thomas
– And MORE!!!
This is a family friendly event, so please bring your loved ones, and anyone who is interested in learning and needs secular support. [Sponsorship](https://blacknonbelievers.wufoo.com/forms/revival-of-reason-2026-sponsors-and-exhibitors/) and [volunteer](https://blacknonbelievers.wufoo.com/forms/revival-of-reason-2026-be-a-volunteer/) opportunities are also available.
You can also register to view sessions online. Official BN members get a special discount, so [sign up or renew ](https://bit.ly/3DMndSK)today!
**We look forward to seeing you at the 2026 Revival of Reason. [Register TODAY!!!](https://bit.ly/RoR2026sitepage)**
In Person Event: The Secrets to Mental Health
Mental Health, how do you understand it? How can you improve it?
How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
This group is hosted by the Dianetics and Scientology Life Improvement Center of Central Ohio.
QA or The Highway 2026
QA or the Highway is a one-day, affordable, regional, professional conference featuring real-world experience and thought leadership in the QA and testing industry.
This is a ticketed event please register here:
https://www.qaorthehwy.com/
Featured Keynote Speakers:
**Matthew-Hope Eland** **(Wizard at Leading EDJE)** \- An AI Specialist and Wizard at Leading EDJE who is known to teach software engineering\, AI\, and data science concepts in the most ridiculous ways possible\. Matt has used machine learning to settle debates over whether Die Hard is a Christmas movie\, reinforcement learning to drive the behavior of digital squirrels\, data analytics to suggest improvements to his favorite TV show\, and AI agents to play board games and create an AI agent with the personality of a dog\. Matt is the author of "Data Science in \.NET with Polyglot Notebooks" and "Refactoring with C\#" as well as several LinkedIn Learning courses\. Matt helps organize the Central Ohio \.NET Developer Group\, runs several blogs and a YouTube channel\, has a Master’s of Science in Data Analytics\, and is a current Microsoft MVP in AI and \.NET\.
**Tatyana Arbouzova** **(CEO at Innovate QA)** \- Tatyana Arbouzova is an engineering and business leader with a strong background in Quality Engineering across multiple industries\, including Big Tech\, Healthcare\, and Entertainment\. She has held leadership roles at world\-class companies such as Microsoft\, VMware\, Disney\, and The Pokémon Company International\, where she focused on building quality\-driven cultures and scaling teams to deliver high\-impact products\. With decades of experience\, Tatyana has helped organizations transform their quality practices so teams can deliver software efficiently\, confidently\, and with measurable business outcomes\. Today\, Tatyana advises software companies on adopting AI to optimize quality practices and improve how software is delivered at scale\. She is also a passionate community builder and the founder of Innovate QA\, a thriving Seattle\-based community and conference for quality professionals\.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
THE BEAST/ La Bête (2023)
In the year 2044, in the age of AI, a woman named Gabrielle (Seydoux) tries to purify her DNA by purging the inherited memories of her past lives. She (re)lives her life in 1910 Paris and 2014 Los Angeles, and as the procedure goes on, the lines between her worlds become blurred. These three timelines have a lot of connective tissue holding them together; certain symbols and motifs appear repeatedly, not to mention Mackay’s Louis, a figure whom Gabrielle seems drawn to in each lifetime.
*The Beast / La Bête* can be streamed for free on Kanopy or the Criterion Channel. It's also available for rent on Amazon Prime, AppleTV and YouTube.
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Discover Inner Engineering in Columbus
Discover Inner Engineering in Columbus!
Saturday June 13th
Choose a location & Time:
Holiday Inn Express : 4:00 PM - 5:00 PM
Rangoli -The Indian Mall: 7:00 PM -8:00 PM
[RSVP](https://innerengineering.sadhguru.org/columbus?fbclid=IwdGRzaASVdldjbGNrBJV2TmV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHmTH5dVmwyksT8x39dKxCZZPJm96hYF7q4m6CmzfjsgJ14o3X4jux71er_mq_aem_W51vRnuLMzlDtxYJWPuqKg&sfnsn=wa)
Morning people unite!! 🐤 ☕ + 💬 @ Crimson Cup Coffee Shop - Clintonville
Early-bird coffee and conversation at [Crimson Cup Coffee Shop - Clintonville](https://www.crimsoncup.com/about/location/clintonville)!
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Neurodivergent Women Navigating Midlife Changes - Sleep, Rest, and Connection
Sleep, Rest & Connection:
Building Our Community Together
Join us for the next gathering of The Pause Collective — a supportive meetup for neurodivergent women navigating perimenopause, menopause, burnout, overwhelm, and life transitions.
Since many of us haven't yet had the opportunity to meet, we'll begin by getting to know one another and sharing what brought us to this community.
We'll also explore one of the most common challenges many women experience during this season of life: sleep.
Whether you're navigating insomnia, waking up in the middle of the night, racing thoughts, night sweats, exhaustion, burnout, or simply not feeling rested, you're not alone.
This will be a relaxed, low-pressure coffee shop meetup focused on connection and conversation.
No need to prepare anything.
No pressure to share.
Come as you are.
Together we'll:
• Introduce ourselves and get to know one another
• Share what brought us to The Pause Collective
• Discuss sleep, rest, and energy during perimenopause and menopause
• Exchange ideas, experiences, and support
• Explore what topics we'd like to discuss in future gatherings
• Continue building the kind of community we'd like to create together
This space is neurodivergent-affirming, self-diagnosis-friendly, and supportive of different communication styles and energy levels.
Quiet participation is welcome. Listening is participating.
Whether you're looking for support, learning, friendship, or simply a place where you don't have to explain yourself, you are welcome here.
I look forward to meeting you.
— Dawn
Speak Easy (Storytelling)
The topic for June is "Roadtrip"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Karaoke at Beeline Easton
You’re Invited to a Karaoke Night at Beeline Easton! If the weather is nice we will be out on the back patio. If not it will be inside :)
🎤 Sing Your Heart Out! 🎶
Join us for an unforgettable night of music, fun, and good vibes at Beeline Easton! Whether you’re a rockstar in the making or just love a good singalong, this is your chance to shine.
Join us and Central Ohio friends
(Formerly cbus 20s and 30s)
🕗 Time: [8pm-2am (close)]
📍 Location: Beeline Easton
Parking: paid parking garage south of beeline or a free lot to the north of beeline!
Bring your friends, grab a drink, and get ready to take the stage! Let’s make it a night to remember.
RSVP we can’t wait to see you there
June Book Club Meetup
Welcome, readers!
Our June read is ***Endurance: Shackleton's Incredible*** ***Voyage***
**by Alfred Lansing.**
A work of nonfiction, and one of the most astonishing survival stories in history, we follow Sir Ernest Shackleton and his crew after their ship is crushed by Antarctic ice. Stranded in one of the harshest environments on Earth, the men endure months of isolation, freezing temperatures, and near starvation—yet refuse to give up hope. Lansing brings their ordeal to life through vivid detail and firsthand accounts, capturing both the brutality of nature and the resilience of the human spirit. At its core, the story is a powerful testament to leadership, perseverance, and the unbreakable will to survive against impossible odds.
Looking forward to discussing with everyone!
We will meet at Zaftig Brewing Co in their event room in the back. We are welcome to bring in our own food, but **all** **drinks must be purchased at the bar.**
Happy reading! 📖





















