Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
788
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
12 Members
Rare Disease and Autoimmune Support Group
70 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
128 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Quarterly Community Gathering
Join the Columbus AI community for our quarterly gathering — a casual, community-focused evening where everyone has a chance to share, learn, and connect. These open mic–style events give anyone in the community up to **5 minutes** to present a project, share a tool, pose a question, or offer a perspective on the evolving AI space.
No slides required — just a welcoming space to exchange ideas and keep the local AI conversation moving.
If you’d like to take the stage, message \*\*Chris (the organizer)\*\*with a **title and short description** of what you’d like to share.
Whether you’re deep in the field or just getting curious, come connect with others building and exploring AI in Columbus.
Sponsored by [Transform Labs](https://www.linkedin.com/company/transformlabs/)
Sign up also accessible via [Transform Labs Luma](https://luma.com/transformlabshq)
In Person Event: The Secrets to Mental Health
Mental Health, how do you understand it? How can you improve it?
How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
This group is hosted by the Dianetics and Scientology Life Improvement Center of Central Ohio.
Building Scalable Customer Identity Resolution Pipelines on AWS Using AI
Customer identity resolution becomes increasingly complex as organizations scale across multiple systems, regions, and data formats. Traditional rule-based approaches often fail to keep up with data variability, require constant manual tuning, and struggle with real-time processing needs.
This session presents a practical approach to building a scalable identity resolution pipeline using AWS services and modern AI techniques. The architecture combines data ingestion through Amazon S3 and AWS Glue, transformation pipelines using Spark on EMR, and machine learning models deployed via SageMaker for entity matching and standardization. Graph-based relationship modeling is implemented using Amazon Neptune to improve resolution accuracy by incorporating household and shared attribute context.
We will walk through how machine learning models can be used for name and address normalization, how intelligent blocking strategies improve matching efficiency, and how feedback loops can be introduced to continuously improve accuracy. The session also highlights how serverless components such as AWS Lambda can be used for orchestration and real-time processing.
**SPEAKER BIO**
Mosaic Syed is a Senior Data Engineering and Cloud Solutions Architect with over 20 years of experience designing and delivering scalable, secure, and high-performance data solutions across global enterprise environments.
https://www.linkedin.com/in/mosaic-basha-syed-92300856
**CALL FOR SPEAKERS**
Learn more: [https://www.awscolumbus.com/get-involved/](https://www.awscolumbus.com/get-involved/)
**THANK YOU** *VEEAM* for hosting our meetup! To learn more about *Veeam*, please visit their website: [https://www.veeam.com/](https://www.veeam.com/)
**DIRECTIONS**
8800 Lyra Dr #450 · Columbus, OH
go to 4th floor.
**Want to sponsor the pizza and/or bar tab?**
Please contact me if you would like to sponsor this meetup's pizza and/or bar tab: angelo@mandato.com
Fun & easy way to play more tennis (read event description)
We’re still working to get more people into these Meetups, but our goal is to give PlayYourCourt members a few social tennis outings each week in addition to your practice sessions and Challenge League matches.
These Meetups are co-ed, super laid back, and all skill levels are welcome. Post your skill level and a suggested court in the comments section so we can round up as many players as we can for some tennis fun!
Also, if you’re looking to meet new practice partners or play some matches and you aren’t already in the PlayYourCourt Community, you can go here to see what we’re all about and sign up:
https://www.playyourcourt.com/tennis-community/columbus-oh/meetup/
If you love tennis, we’d love to have you! Be sure and watch the quick video that explains how everything works.
Happy hitting!
- Scott
PETA playbook Watch party: Peeling back the Cage-free label
**You're invited to join local Columbus animal advocates as we watch PETA's workshop together on cage-free campaigns. Free vegan pizza will be provided! After the workshop Q&A, we'll have a group discussion and brainstorm on future activism plans. Hope to see you there!**
**Here are the details:**
**WHEN: Tuesday, May 19, 2026 at 6pm EST**
**WHERE: KTC Columbus**
**If you cannot attend in person, you can still view the workshop virtually at https://www.facebook.com/events/1567122777711333**
**Here's some background on the workshop:**
**Please join us for an eye-opening online PETA Playbook discussion with PETA’s Associate Director of Vegan Campaigns, Amber Canavan, where we’ll ask the hard-hitting questions about the cage-free campaigns and their impact on both hens and vegan efforts.**
**Whether you’re looking to strengthen your outreach or sharpen your messaging around the egg industry’s humane-washing tactics, this workshop will give you practical tools to help others understand what “cage-free” really means for hens and why the label is misleading.**
**We’ll explore how to keep conversations respectful, fact-based, and focused on the animals’ reality while encouraging others to take effective action.**
**Please join us for this important workshop to learn how you can cut through cage-free marketing and help animals.**
**Come ready to learn, ask questions, and ignite your activism for animals!**
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Speak Easy (Storytelling)
The topic for May is "Ink"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
American Sign Language Beginners Meetup Group
We meet to learn and practice American Sign Language and to grow our familiarity with Deaf culture. Facilitated by hearing folks (with a connection to a professional interpreter) using Deaf-created content. People of all ASL skill levels are welcome! As we learn, we hope to connect more with the Deaf community in Central Ohio. Join us as you're able!
Come regularly or just once - whatever you're looking for! Each meetup will explore different topics related to ASL/Deaf culture, and will feature time to practice conversation with one another. Just bring yourself and a willingness to learn!
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
ND Women Navigating Midlife Changes
Join us for the first gathering of The Pause Collective — a supportive meetup for neurodivergent women navigating perimenopause, menopause, burnout, overwhelm, and life transitions.
This will be a relaxed, low-pressure coffee shop meetup focused on connection and conversation.
No need to prepare anything.
No pressure to share.
Come as you are.
We’ll spend time getting to know each other, talking about what brought us here, and exploring what kind of community we’d like to create together.
This space is neurodivergent-affirming, self-diagnosis-friendly, and supportive of different communication styles and energy levels.
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Ticks in Licking County, Diseases and Prevention - Hebron Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
TBD
**Important time note:** Please plan on arriving between 5:30 and 6:00 as the elevators lock after 6 and you'll need to message us and we'll need to come get you.
The building address is 4450 Bridge Park
The entrance is 6620 Mooney St, Suite 400
You will need to scan your ID at the door to get a visitor badge.
**Abstract**
TBD
**YouTube Link**
TBD




















