Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
788
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
12 Members
Rare Disease and Autoimmune Support Group
69 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
129 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
COUNT Discussion Meeting: Topic: Current Events
We may pick a specific topic and post in advance or may discuss current events and various ad hoc topics . We would love to spend time hanging out and getting to know one another.
Atheist, agnostics, other non-theists, and atheist-friendly people are welcome to join us.
Note: COUNT operates a Facebook page at www.facebook.com/groups/COUNT.discussions (http://www.facebook.com/groups/COUNT.discussions/) to promote discussions among members and visitors.
Take Control Of Your Life, Freedom From Negative Thoughts & Irrational Emotions
Feeling down? Sometimes depressed? Can't focus? Negativity & stress? Recent losses? Creativity in career and personal life hindered by mental blocks? Sometimes we never fully recover from traumatic experiences.
Whether it was yesterday, last week or a year ago, traumatic experiences - a loss of a loved one, losing a job, a breakup - can leave you scarred. You talk about it and feel a little better, but it never goes away. After you hang up the phone, it's still there; the sadness, the cloud, the over-thinking, the worry, the guilt. You try to focus, but you're blocked. You try to look forward into new experiences, new relationships but a cloud is hanging over you, casting a shadow on what you once considered a bright, cheerful future.
What happened to your courage? Your strength of character? You're 'why not' attitude? Whoever said 'time heals' must have had a special time machine, because after weeks, months, years, you're wondering - when exactly does that kick in? Sometimes it seems like drinking or drugs are the way to go. But they wear off, and now the problem is still there with added side effects from the drugs.
At this free local Meetup event we will talk about:
* What causes grief, anxiety and depression to become chronic.
* Is it possible to regain your joy and happiness even after traumatic experiences?
* How to break away from negativity and focus on the future
* What are the steps to take to get control of your mind and your emotions?
Learn about a safe, gentle, do-it-yourself counseling that can be done in the comfort of your own home.
Let's explore safe, effective solutions for healing from traumatic experiences.
Be sure to click on the red "Attend" button below to come to the event. We look forward to seeing you there.
This group is sponsored by the Dianetics & Scientology Life Improvement Center.
Wednesday Night Meditation Practice
Join us on Wednesday nights at 7pm for two 25 minute quiet meditations, with one short walking meditation in between. There will be a brief and informal conversation afterward.
Stay for as long as you like and feel free to bring or share whatever is on your mind.
All Zen Center events are also available via Zoom at bit.ly/IndyZen.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
You Exist Too Much by Zaina Arafat
[Columbus library link to book](https://cml.bibliocommons.com/v2/record/S105C3351321)
Location: The Goat River South
219 S High St, Columbus, OH 43215
Street parking is free on Sundays
[Menu](https://static1.squarespace.com/static/686d3ed16745133042482c5f/t/68ff654dbb03b96875430bde/1761568077220/all_brunch-20250311.pdf)
Book summary:
On a hot day in Bethlehem, a twelve-year-old Palestinian-American girl is yelled at by a group of men outside the Church of the Nativity. She has exposed her legs in a biblical city, an act they deem forbidden, and their judgement will echo on through her adolescence. When our narrator finally admits to her mother that she is queer, her mother's response only intensifies a sense of shame: 'You exist too much,' she tells her daughter. Told in vignettes that flash between the U.S. and the Middle East--from New York to Jordan, Lebanon, and Palestine--Zaina Arafat's debut novel traces her protagonist's progress from blushing teen to sought-after DJ and aspiring writer.
Conversation and Coffee @ Belle's Bread Bakery
Hey Everyone!
Let's meet at Belle's Bread Bakery and Cafe. There is lots of free parking and easy access to the cafe and many shops and restaurants as well. This is a great way to meet new and old friends while chatting about life and practicing English language speaking skills. All are welcome and encouraged to join us anytime between 11am and 1pm. Looking forward to seeing you soon.
Feel Good Friday: POWER BALLAD at the Gateway Film Center + SHAKE NO. 8!
Join us as we get together to see Paul Rudd in the latest comedy-drama-musical from John Carney, POWER BALLAD! The film follows a washed-up wedding singer, a fading boy band singer and a stolen hit song. Here’s a description, trailer and plan for this event:
DESCRIPTION: Rick, a washed-up wedding singer, and Danny, a fading boy band star, bond over music and a late-night jam session. When Danny turns Rick's song into a hit, Rick sets out to reclaim the recognition he believes he deserves. Power Ballad is written/directed by John Carney, the master of the modern musical and creative mind behind Once, Begin Again and Sing Street! It stars Paul Rudd, Nick Jonas, Peter McDonald, Marcella Plunkett, Havana Rose Liu and Jack Reynor.
BUZZ & ACCLAIM: The film premiered to rave reviews at this year’s Dublin International Film Festival where critics call it “a sure-fired crowd-pleaser” that “just might be the feel-good hit of the year!” Others say, “Paul Rudd delivers a career-best performance in this charmer” that’s both “hilarious and deeply moving." The film continues John Carney’s “long run of success with yet another charmer” and “a sharp, hopeful crowd-pleaser that strikes the right notes!”
SUMMER OF ICE CREAM, VOL 2: SHAKE NO. 8! Ranked the #1 Ice Cream Shop in Columbus, this is a perfect early stop on our Summer of Ice Cream! Their menu uses made-from-scratch recipes in an array of traditional, specialty and vegan shakes, hot cocoa, crepes, waffle sticks, specialty coffee & espresso, and more! Their specialty shakes are as delicious as they are over-the-top and they offer an extensive vegan menu! You can check out their full menu here: [https://www.shakeno8.com/menu.php](https://www.shakeno8.com/menu.php)
PLAN: Please purchase your ticket for the 6:45pm showing and we’ll meet in the upstairs lobby between 6:25 and 6:35pm! Advance ticket purchase is advised for this opening night showing! Once you have yours, please list your seat number in the Comments section of this event. We'll head to nearby Shake No. 8 immediately following the show!
Should be a fun one, Dan
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Speak Easy (Storytelling)
The topic for June is "Roadtrip"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia






















