Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
793
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
11 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
14 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Prototype, Play, and Build Workshops (In-Person @GameArena)
We're going to GameArena! We'll be in-person at the GameArena Gateway for our monthly COGG Prototype and Play event. Come to play and showcase your games!
We're back in the upper levels of the catwalk area. It'll be packed with lots of camaraderie playing your game(s) and other's games on the 2nd floor. Light snacks and water provided but you can buy food and drinks at the bar (alcoholic drink ID required).
[www.game-arena.co](http://www.game-arena.co/)
**Attendees:**
Don't have a game to show? Not a problem! All are welcomed and invited from all ages and backgrounds. The more we can have to play test our games is all the better!
**Developers:**
Do you have a game that you would like to get critical feedback on? Would you like an excuse to work on a game with other talented artists, programmers, musicians, designers, and writers? Digital, table-top, non-experienced developers, and the like are welcomed! We'll provide signage for your game to help others learn more about your work. Wifi, outlets, tables, and seats (though standing tables also) are available.
Come to the Prototype and Play workshop to collaborate and meet local game developers for an evening of epic and raw game play fun! Play works-in-progress, show off your own game, work with others to add polish to a game, or even lend your talents to other fellow developers. For this event, light snacks from the bar and water will be provided!
Though you can purchase you own if you like at the bar:
[https://www.game-arena.co/menu](https://www.game-arena.co/menu)
Can use South Garage at the Gateway with a $5 voucher on your way out.
75 E 11th Ave, Columbus, OH 43201
[https://maps.app.goo.gl/UwgveUYG37Jy7RtS9](https://maps.app.goo.gl/UwgveUYG37Jy7RtS9)
If you have any questions or comments, as always, feel free to reach out to us at [info@thecogg.com!](http://info@thecogg.com!/)
Karaoke at Beeline Easton
You’re Invited to a Karaoke Night at Beeline Easton! If the weather is nice we will be out on the back patio. If not it will be inside :)
🎤 Sing Your Heart Out! 🎶
Join us for an unforgettable night of music, fun, and good vibes at Beeline Easton! Whether you’re a rockstar in the making or just love a good singalong, this is your chance to shine.
Join us and Central Ohio friends
(Formerly cbus 20s and 30s)
🕗 Time: [8pm-2am (close)]
📍 Location: Beeline Easton
Parking: paid parking garage south of beeline or a free lot to the north of beeline!
Bring your friends, grab a drink, and get ready to take the stage! Let’s make it a night to remember.
RSVP we can’t wait to see you there
Pizza and Duckpin Bowling!
😋🎳
**Let’s meet for pizza 1st at Mikey’s Late Night Slice which is connected to Pins! Then we will bowl (no heavy balls involved)**
In Person Event: The Secrets to Mental Health
Mental Health, how do you understand it? How can you improve it?
How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
This group is hosted by the Dianetics and Scientology Life Improvement Center of Central Ohio.
Your Summer Social Life Starts Here 🍻🎳 🍻 20% Off for NEW Bowlers!
🎳 **Summer Fun Starts on the Lanes! 20% off for NEW bowlers!**
The 6-week summer social bowling league is here - cold drinks, fun times, and new friends await on the lanes! Whether you're looking to meet new people, unwind after work, or just have a fun weekly outing, this league is for everyone.
Social vibes, happy hour energy, and plenty of chances to connect with others. No matter your skill level, this league is all about having fun and meeting awesome people. ;)
**🗓 Thursday nights \|📍 AMF Sawmill Lanes \| 💵 $74 *(while Early Bird is active)***
**🚨New to the league?** Use discount code (**MUSU26**) for 20% off - $59.20 *during **Early Bird***
**💻 League Info & Registration**: https://bit.ly/ColumbusBowling
**Why Join?**
🎉 It’s only 6 weeks - perfect for a low-commitment social plan
🍻 Great mix of people in their 20s, 30s, & 40s, plus post-game hangs at the bar
🎳 Zero pressure - gutter balls totally welcome!
👕 Free league shirt if you sign up early
🧠 Weekly trivia w/ prizes
💬 Super social - join solo or w/ friends!
**Want in?**
Join our Meetup team Gutter Dusters 👉 **Click here to join** https://tinyurl.com/2d5y52vq
Or start a team of your own with a few friends - we’ll all be hanging out either way!
📅 League Dates (Thursday nights): June 25, July 2, July 9, July 16, July 23, July 30
***(The MeetUp event date is deadline to register for the league.)***
**Cost & What’s Included:**
✔ $74 **Early Bird** registration - **New bowler? Get 20% off w/ code: MUSU26**
✔ 6 weeks of bowling (1–3 games/week)
✔ Shoe rentals & full league setup
✔ Trivia, prizes, and great people
👉 **Sign up now:**
💻League Info & Registration: https://bit.ly/ColumbusBowling
🤑New bowlers use code MUSU26 to save 20%
📸 Follow the fun on Instagram: https://bit.ly/BowlingLeague-IG
📩 Questions? Contact the league: http://bit.ly/2nKHno7
Spots are filling fast – don’t miss out on the fun times!
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Microsoft Build - Columbus Edition!
We are bringing Microsoft Build sessions to Columbus Ohio!
The Central Ohio Azure Meetup and Central Ohio .NET Developer's Group (CONDG) are coming together to bring some of the labs and breakouts from Microsoft Build to your backyard. In this free, 1 day event, you are going to Build stuff with us!
And yes, there will be free food.
Please RSVP via [Microsoft Build //localhost:columbus | Microsoft Reactor](https://developer.microsoft.com/en-us/reactor/events/27247/).
The Power of the Subconscious Mind - Free Lecture
**How to take control of your subconscious and harness its power!**
Join us for an eye-opening lecture where the speaker will break down complex ideas in a clear and practical way.
You’ll gain insights into:
✅ The true definition of the subconscious
✅ How it generates unwanted emotions
✅ Its real purpose and function
✅ What determines the pressure it exerts on you
And the most important topic:
**How do you take control of your subconscious!**
But this isn’t just another lecture where you sit and listen passively. It’s interactive and engaging—you can ask questions at any time.
📅 Reserve your spot now!
Seats are limited, so don’t wait too long to sign up.
Location: 1266 Dublin Rd, Columbus, OH 43215
Hosted by the Hubbard Dianetics Foundation
Queer Quills
**We are expanding our creative programming opportunities with Queer Quills, a quiet writing and sharing space. Queer Quills features some prompts, supplies and friendly faces to help get some inspiration or feedback for your writing. Hope to see you there!**
Contra dance June 20 (First Unitarian Universalist Church) note new time!
# **Saturday, June 20, 2026**
**Beginners’ Session 1:30 to 2:00 PM**
**Dancing 2:00 to 4:30 PM**
**Band: Gem City Revelers**
**Caller: David Mould**
**You are invited to join us for dinner at Olive and Lime (in the church’s back parking lot) after the dance.**
**Location: First Unitarian Universalist Church, 93 W. Weisheimer Road, Columbus, OH 43214.**
**Cost is $10 for adults, $5 ages 12-25.**
**New to dancing? A beginners’ session, from 1:30 to 2:00 PM, will get you started. You will learn some basic figures that will be repeated in the afternoon’s dances. All dances will be taught and no partner is needed. Dancing is from 2:00 to 4:30 PM.**
**Please bring your own refillable water bottle.**
**All Soles Dance upcoming dance dates are, as follows:**
**July 25, 2026–Summer Potluck and Dance**
**No August Dance**
**September 26, 2026**
**October 17, 2026**
**November 21, 2026**
**December 19, 2026**
**Visit our website at: https://firstuucolumbus.org/connection/all-soles/**
Drunken Philosophy: Where Is Everybody? The Fermi Paradox and the Great Filter
Welcome to Drunken Philosophy, a casual, curious, social discussion club. Come grab a drink and a seat at The Oracle.
**Optional topic for this meetup: Where is everybody?**
In 1950 the physicist Enrico Fermi was talking about aliens over lunch and asked a question that still has not gone away: if the universe is so vast and so old, and even a fraction of those billions of stars have planets, where is everyone? By the numbers the galaxy should be crowded with civilizations. Instead we look up and hear silence. That gap between "they should be everywhere" and "we see no one" is the Fermi Paradox.
One of the most unsettling answers is the idea of a **Great Filter**: somewhere on the road from dead chemistry to a galaxy-spanning civilization, there is at least one step that is almost impossible to get past. Maybe the filter is behind us. Maybe life starting at all, or simple cells becoming complex, or intelligence ever evolving, is the freak accident, and we already cleared the hard part. Or maybe the filter is ahead of us, and advanced civilizations reliably wipe themselves out before they spread.
Here is the part that messes with people. If we ever found life somewhere else, even pond scum on Mars, most people would call it the greatest discovery in history. But it might be the worst possible news. It would mean life is common, the early steps are easy, and the hard step is still in front of us. So the eerie silence overhead might actually be the best sign we could ask for.
**Questions to wrestle with:**
* Is it better to be alone? Would you rather we find alien life and learn we are not special, or find nothing and quietly improve our odds of surviving?
* Where do you bet the filter sits, behind us or ahead of us, and why?
* If it is ahead of us, what is it? Nuclear war, climate collapse, AI, something we cannot even picture yet? And can we do anything about a filter we cannot see coming?
* Two principles pull opposite ways here. The principle of mediocrity (the Copernican principle, Sagan's "no privileged place in the universe") says we are ordinary, so what happened on Earth probably happened everywhere, which makes the silence scream louder. The anthropic principle says of course we find ourselves somewhere life was possible, since we could not observe anything else, so our being here may say almost nothing about how common life is. Which lens do you trust, and does the silence still demand an answer once you account for observer selection?
* And if we did confirm life out there and had to accept we are not special, what would that do to belief in a higher power, and would shedding (or keeping) that belief help or hurt our odds of pulling together as one species?
* Does any of this change how you live, or how humanity should be spending its time and money right now?
As always the prompt is optional. Come for the conversation, stay for the drinks, and bring your own questions.
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Neurodivergent Women Navigating Midlife Changes - Sleep, Rest, and Connection
Sleep, Rest & Connection:
Building Our Community Together
Join us for the next gathering of The Pause Collective — a supportive meetup for neurodivergent women navigating perimenopause, menopause, burnout, overwhelm, and life transitions.
Since many of us haven't yet had the opportunity to meet, we'll begin by getting to know one another and sharing what brought us to this community.
We'll also explore one of the most common challenges many women experience during this season of life: sleep.
Whether you're navigating insomnia, waking up in the middle of the night, racing thoughts, night sweats, exhaustion, burnout, or simply not feeling rested, you're not alone.
This will be a relaxed, low-pressure coffee shop meetup focused on connection and conversation.
No need to prepare anything.
No pressure to share.
Come as you are.
Together we'll:
• Introduce ourselves and get to know one another
• Share what brought us to The Pause Collective
• Discuss sleep, rest, and energy during perimenopause and menopause
• Exchange ideas, experiences, and support
• Explore what topics we'd like to discuss in future gatherings
• Continue building the kind of community we'd like to create together
This space is neurodivergent-affirming, self-diagnosis-friendly, and supportive of different communication styles and energy levels.
Quiet participation is welcome. Listening is participating.
Whether you're looking for support, learning, friendship, or simply a place where you don't have to explain yourself, you are welcome here.
I look forward to meeting you.
— Dawn
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
June Book Club Meetup
Welcome, readers!
Our June read is ***Endurance: Shackleton's Incredible*** ***Voyage***
**by Alfred Lansing.**
A work of nonfiction, and one of the most astonishing survival stories in history, we follow Sir Ernest Shackleton and his crew after their ship is crushed by Antarctic ice. Stranded in one of the harshest environments on Earth, the men endure months of isolation, freezing temperatures, and near starvation—yet refuse to give up hope. Lansing brings their ordeal to life through vivid detail and firsthand accounts, capturing both the brutality of nature and the resilience of the human spirit. At its core, the story is a powerful testament to leadership, perseverance, and the unbreakable will to survive against impossible odds.
Looking forward to discussing with everyone!
We will meet at Zaftig Brewing Co in their event room in the back. We are welcome to bring in our own food, but **all** **drinks must be purchased at the bar.**
Happy reading! 📖
Networking Night
Free monthly networking for Columbus business owners. Real conversations, real connections, no forced formats. Space is limited. RSVP now.
Most owners leave networking events with a stack of business cards and no plan. The best leads quietly slip through the cracks.
Networking Night is a monthly meetup for Columbus business owners who want to build real local relationships, not just trade contact info. Every kind of local business welcome. No pitch round, no pressure, no awkward speed-networking.
**This month**
We are focused on referral relationships. Walk in with a clear idea of who refers people like you. Walk out having met a few owners whose work fits next to yours.
**What to expect**
Doors open at 6 PM. You get real conversation with other local owners, time to actually connect, and a short marketing lesson woven in. The room is reserved through 7:30 PM.
**Who this is for**
Any local business owner who wants to grow through relationships, not just paid ads. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Last Thursday of every month
* 6:00 to 7:30 PM
* COhatch Easton
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local owners build the system that keeps their phone ringing, including tracking the referral relationships built in rooms like this one. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275](https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275)


























