Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
796
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
10 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
15 Members
Rare Disease and Autoimmune Support Group
72 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
129 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Take Control Of Your Life, Freedom From Negative Thoughts & Irrational Emotions
Feeling down? Sometimes depressed? Can't focus? Negativity & stress? Recent losses? Creativity in career and personal life hindered by mental blocks? Sometimes we never fully recover from traumatic experiences.
Whether it was yesterday, last week or a year ago, traumatic experiences - a loss of a loved one, losing a job, a breakup - can leave you scarred. You talk about it and feel a little better, but it never goes away. After you hang up the phone, it's still there; the sadness, the cloud, the over-thinking, the worry, the guilt. You try to focus, but you're blocked. You try to look forward into new experiences, new relationships but a cloud is hanging over you, casting a shadow on what you once considered a bright, cheerful future.
What happened to your courage? Your strength of character? You're 'why not' attitude? Whoever said 'time heals' must have had a special time machine, because after weeks, months, years, you're wondering - when exactly does that kick in? Sometimes it seems like drinking or drugs are the way to go. But they wear off, and now the problem is still there with added side effects from the drugs.
At this free local Meetup event we will talk about:
* What causes grief, anxiety and depression to become chronic.
* Is it possible to regain your joy and happiness even after traumatic experiences?
* How to break away from negativity and focus on the future
* What are the steps to take to get control of your mind and your emotions?
Learn about a safe, gentle, do-it-yourself counseling that can be done in the comfort of your own home.
Let's explore safe, effective solutions for healing from traumatic experiences.
Be sure to click on the red "Attend" button below to come to the event. We look forward to seeing you there.
This group is sponsored by the Dianetics & Scientology Life Improvement Center.
Wednesday Night Meditation Practice
Join us on Wednesday nights at 7pm for two 25 minute quiet meditations, with one short walking meditation in between. There will be a brief and informal conversation afterward.
Stay for as long as you like and feel free to bring or share whatever is on your mind.
All Zen Center events are also available via Zoom at bit.ly/IndyZen.
American Sign Language Beginners Meetup Group
We meet to learn and practice American Sign Language and to grow our familiarity with Deaf culture. Facilitated by hearing folks (with a connection to a professional interpreter) using Deaf-created content. People of all ASL skill levels are welcome! As we learn, we hope to connect more with the Deaf community in Central Ohio. Join us as you're able!
Come regularly or just once - whatever you're looking for! Each meetup will explore different topics related to ASL/Deaf culture, and will feature time to practice conversation with one another. Just bring yourself and a willingness to learn!
Father/Son Men's Group (Bi-weekly)
Join us every other Wednesday during the summer at 5:30pm at Blendon Woods Inclusive Playground. Starts Wednesday June 17th.
**Agenda**
5:30-6:15 Kids Play & Dad's Meet
6:15-6:45 Snacks & Father/Son Men's Group Circle
\- Simple intro Round
\- What are Dad & Son working on?
\- Various Topics for Fathers and Sons\(What does it mean to be a man? Etc\.\)
6:45-7 Close. Go get food or keep playing.
Mario will lead this group and hold the space. Generally, it is a laid-back, open group that can be modified to accommodate those who show up. If people want to go get dinner after, we can :) It's all about making friends and building a positive community.
Mario has led men's groups for several years, sponsored by Speak Your Mind, an Ohio Non-Profit organization with a focus on men's mental well-being. Click here to learn more about SYM: https://linktr.ee/taketimespeakyourmind).
All events are non-denominational and donation-based. No one will be turned away for their beliefs or financial position.
Suggested donation is $5 per family per meeting (Covers the cost of meetup).
**Donation link**: https://secure.givelively.org/donate/angels-for-angels/speak-your-mind
**Liability Waiver** to fill out before your first event (Required). This covers the non-profit in the event of any accidents. https://form.jotform.com/242207035182144
Contact Mario with any questions: 808-855-8831
Address: 4265 E. Dublin Granville Road Columbus, OH 43081
Follow signs to the back of the park (Inclusive Playground)
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Conversation and Coffee @ Belle's Bread Bakery
Hey Everyone!
Let's meet at Belle's Bread Bakery and Cafe. There is lots of free parking and easy access to the cafe and many shops and restaurants as well. This is a great way to meet new and old friends while chatting about life and practicing English language speaking skills. All are welcome and encouraged to join us anytime between 11am and 1pm. Looking forward to seeing you soon.
Hike Scioto Audubon Trail with optional lunch at Nocterra
**Hike the Scioto Audubon trail. All paved and flat!**
**Plan on 3-4 miles. Hike at your own pace, no one left behind.**
**Lunch after at Nocterra for those who wish.**
Westerville Queer Coffee Meetup
WQC has weekly Thursday night social nights at the Westerville Java Central. Come and grab a coffee and connect with the community: low stakes, chill environment, and tasty drinks. No registration is required; come as you are.
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Speak Easy (Storytelling)
The topic for July is "Shoes"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia






















