Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
789
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
13 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Backrooms_(Showing 2)_Group Watch and Socialize Event
[MOVIE DESCRIPTION BELOW]
*A strange doorway appears in the basement of a furniture showroom.*
\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~
**PLEASE SEE GROUP BIO FOR FULL FAQ. Meetup only allows a certain amount of characters when posting events from a mobile device and out FAQ is longer than that limit. A condensed version is posted below here**
\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~
First-time attendees: below are some Frequently Asked Questions about events for your consideration:
* **What is involved in this type of event? (_Group Watch & Socialize Event)**
* We typically arrive before the movie, maybe chat and catch up with folks a bit, watch the movie in the theater, then afterwards have a more extended chat with everyone who saw the movie.
* **Do I have to chat before the movie?**
* Nope! Totally understandable if you'd rather just watch first so you can have something in common to discuss afterwards.
* **Will people approach me/talk to me?**
* Not a guarantee as it depends on who is hosting, but a good host or other group members will try to at least say hi to members after the movie and may make an effort to include newer faces in the conversation in some way. Please feel free to jump into the conversation as you feel comfortable and understand this is done with good intent :) We are happy to have you!
* **How will I know who is the host or where people are gathering to talk about the movie?**
* This depends on each host, but good practice is for the host to indicate a notable item of clothing they are wearing for other members to look out for. But generally we gather in a loose circle in the theater lobby or outside the theater to talk, so if you recognize the host or other group members - that's the spot we've decided on! Just kind of depends on the feel of the group where we gather.
* **What is with posting the seat numbers?**
* A good practice we've found is to post our seat numbers when we have ordered tickets for a movie. This is just another way for members of our group to find each other as it might not be immediately obvious who is here as part of the group event: some events are at public movie theaters, after all. You are not by any means obligated to post your seat number if you do not feel comfortable doing so, just something we've found that works nicely for encouraging some socialization.
* **Will there be food?**
* General guideline: if the movie starts at 7ish pm or later, you might wanna have dinner first or plan on buying movie snacks. Restaurant kitchens tend to close around 9-10pm. We sometimes do go to restaurants after movies as a group, but moreso bars whose kitchens may or may not be open. Plus, kind of bad manners for a group to descend upon a bar when the kitchen is closing is 10 minutes lol. Bars are just convenient social places, there is zero pressure to drink but there just aren't many places open late when we may leave movies. There is potential to order or provide food for group events, but it should not be expected unless stated in the event description.
* **How do I stay in contact with the group after the movie?**
* We have another app we use for discussion because Meetup is somewhat cumbersome to use for casual conversation. The app we use is called Discord. The link is posted below:
* Link: https://discord.gg/4r7QxzmSvH
* [Place link here]
\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~\~
* **Can I create events as a member?**
* Initially, no but this group is open to members suggesting events or becoming part of the Event Organizers over time. We don't want to open the opportunity for everybody initially to create events because that kind of role has some responsibility towards it. There are certain permissions granted to that role that not every member should have. However, if a member has a proven track record of treating every group member with due respect, and a willingness to plan events: they can become and Event Organizer and create their own events. Please reach out to leadership if this sounds like something that would interest you.
* **Can I donate to the group?**
* Absolutely! See group bio
Beginner and Intermediate Bachata Dance Classes with Todd Smith!
**✅ Bachata Mondays with Todd Smith!**
**👉 Beginner Bachata Class**
**$15 In Advance / $20 At the Door**
.
7:00 pm – 7:15 pm … Registration
7:15 pm – 8:15 pm … Beginner Class
.
**👉 Intermediate Bachata Class**
**= $15 In Advance / $20 At the Door**
.
8:15 pm – 8:30 pm Registration
8:30 pm – 9:30 pm Intermediate Class
.
**👉 If You Take Both Bachata Classes**
**= $25 In Advance / $35 At the Door**
.
**👉 Buy Advance Tickets Now at:**
.
https://columbussalsadancing.com/bachata-mondays-dance-class-tickets/
In-Person Event: The Answers to Depression & Anxiety
This is an in-person meeting. At this meeting you will get answers to depression and anxiety. Find out the source of them and how to get rid of them.
Did you know that unwanted emotions like anxiety, depression, unhappiness, loneliness, hopelessness, anger, fear, or feelings of irritation don’t just fall on you for no reason. They are not random occurrences that simply happen to people's minds. They are definitely not due to a chemical imbalance in your brain from some nebulous chemical reaction "by chance".
Your negative emotions are the symptoms of the painful experiences that you have which are not healed, and which are still affecting you.
The effects of these painful experiences are exacerbated by the pressures or difficulties of the other problems in your life.
Come to our Meetup, where we can introduce you to some of the knowledge, tools and techniques of the breakthroughs in the field of the mind that we can apply to this ever important area of life.
Be sure to click on the red "Attend" button below to come to this local event. We look forward to seeing you there.
This group is created by the Hubbard Dianetics Foundation of Central Ohio and Church of Scientology of Central Ohio.
Italian Conversation Hour
Ciao a tutt\*!
Let's meet Monday at 6.30pm at the Upper Arlington Library (Tremont Branch) in **Meeting Room A** to speak in Italian for 1 hour.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Pop-up Book Club 4: Going to Meet The Man, stories by James Baldwin
Let’s meet and share discussion of the James Baldwin short story collection, Going to Meet The Man.
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Neurodivergent Women Navigating Midlife Changes - Sleep, Rest, and Connection
Sleep, Rest & Connection:
Building Our Community Together
Join us for the next gathering of The Pause Collective — a supportive meetup for neurodivergent women navigating perimenopause, menopause, burnout, overwhelm, and life transitions.
Since many of us haven't yet had the opportunity to meet, we'll begin by getting to know one another and sharing what brought us to this community.
We'll also explore one of the most common challenges many women experience during this season of life: sleep.
Whether you're navigating insomnia, waking up in the middle of the night, racing thoughts, night sweats, exhaustion, burnout, or simply not feeling rested, you're not alone.
This will be a relaxed, low-pressure coffee shop meetup focused on connection and conversation.
No need to prepare anything.
No pressure to share.
Come as you are.
Together we'll:
• Introduce ourselves and get to know one another
• Share what brought us to The Pause Collective
• Discuss sleep, rest, and energy during perimenopause and menopause
• Exchange ideas, experiences, and support
• Explore what topics we'd like to discuss in future gatherings
• Continue building the kind of community we'd like to create together
This space is neurodivergent-affirming, self-diagnosis-friendly, and supportive of different communication styles and energy levels.
Quiet participation is welcome. Listening is participating.
Whether you're looking for support, learning, friendship, or simply a place where you don't have to explain yourself, you are welcome here.
I look forward to meeting you.
— Dawn
Speak Easy (Storytelling)
The topic for June is "Roadtrip"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Microsoft Build - Columbus Edition!
We are bringing Microsoft Build sessions to Columbus Ohio!
The Central Ohio Azure Meetup and Central Ohio .NET Developer's Group (CONDG) are coming together to bring some of the labs and breakouts from Microsoft Build to your backyard. In this free, 1 day event, you are going to Build stuff with us!
And yes, there will be free food. So please RSVP for a head count!
June 2026 AWS Columbus - Topic to be announced
Topic to be announced.
**THANK YOU** *Franklin University* for hosting our meetup! To learn more about *Franklin University*, please visit their website: https://www.franklin.edu/
**DIRECTIONS**
Franklin University
Fisher Hall
300 E. Main St, Columbus, OH 43215
Map: https://maps.app.goo.gl/jxjBA2hUmS5qrvhq8
Parking is FREE! Please park in Lot C in front of Fisher Hall. See attached map.
NOTE: Map the address only. When mapping with Google Maps it may use the Fisher Hall at OSU, which is NOT correct.
**Want to sponsor the pizza and/or bar tab?**
Please contact me if you would like to sponsor this meetup's pizza and/or bar tab: angelo@mandato.com





















