Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
793
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
11 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
14 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
AWS Columbus: Smart Search + AI: An Outcome-Driven Journey
Title: Smart Search + AI: An Outcome-Driven Journey from IDP to a Suite of AI
Register at the Columbus AWS meetup: [https://www.meetup.com/columbus-aws-amazon-web-services-meetup/events/313426379/](https://www.meetup.com/columbus-aws-amazon-web-services-meetup/events/313426379/)
Over a billion documents processed. Millions of Veterans impacted. Hundreds of thousands of employee hours saved. Faster decisions. Greater accuracy. More benefits in the hands of our disabled Veterans.
We created Smart Search, the world’s largest consumer of Amazon Textract, right when GenAI began reshaping what’s possible. Since then, we’ve built a suite of AI‑driven solutions that transform this data into real, measurable outcomes—accelerating benefits decisions for our Nation’s Veterans.
Join us for a focused conversation on how an outcome‑driven approach to AI is helping us boost accuracy, streamline workflows, and deliver faster results for those who have served.
This is a follow up to the AWS re:Invent 2023 "Intelligent Document Processing with Gen AI for Public Sector" presentation.
About Speaker: Cameron Williams is a Senior Technical Project Manager and cross-functional technical leader at Booz Allen Hamilton with 15+ years of experience architecting and evolving scalable, cloud-native systems, from greenfield development to complex enterprise modernization. https://www.linkedin.com/in/cameronw711/
**THANK YOU** *Franklin University* for hosting our meetup! To learn more about *Franklin University*, please visit their website: https://www.franklin.edu/
**DIRECTIONS**
Franklin University
Fisher Hall
300 E. Main St, Columbus, OH 43215
Map: https://maps.app.goo.gl/jxjBA2hUmS5qrvhq8
Parking is FREE! Please park in Lot C in front of Fisher Hall. See attached map.
NOTE: Map the address only. When mapping with Google Maps it may use the Fisher Hall at OSU, which is NOT correct.
**Want to sponsor the pizza and/or bar tab?**
Please contact me if you would like to sponsor this meetup's pizza and/or bar tab: angelo@mandato.com
Smart Search + AI: An Outcome-Driven Journey from IDP to a Suite of AI
Over a billion documents processed. Millions of Veterans impacted. Hundreds of thousands of employee hours saved. Faster decisions. Greater accuracy. More benefits in the hands of our disabled Veterans.
We created Smart Search, the world’s largest consumer of Amazon Textract, right when GenAI began reshaping what’s possible. Since then, we’ve built a suite of AI‑driven solutions that transform this data into real, measurable outcomes—accelerating benefits decisions for our Nation’s Veterans.
Join us for a focused conversation on how an outcome‑driven approach to AI is helping us boost accuracy, streamline workflows, and deliver faster results for those who have served.
This is a follow up to the AWS re:Invent 2023 "Intelligent Document Processing with Gen AI for Public Sector" presentation.
About Speaker: Cameron Williams is a Senior Technical Project Manager and cross-functional technical leader at Booz Allen Hamilton with 15+ years of experience architecting and evolving scalable, cloud-native systems, from greenfield development to complex enterprise modernization. https://www.linkedin.com/in/cameronw711/
**THANK YOU** *Franklin University* for hosting our meetup! To learn more about *Franklin University*, please visit their website: https://www.franklin.edu/
**DIRECTIONS**
Franklin University
Fisher Hall
300 E. Main St, Columbus, OH 43215
Map: https://maps.app.goo.gl/jxjBA2hUmS5qrvhq8
Parking is FREE! Please park in Lot C in front of Fisher Hall. See attached map.
NOTE: Map the address only. When mapping with Google Maps it may use the Fisher Hall at OSU, which is NOT correct.
**Want to sponsor the pizza and/or bar tab?**
Please contact me if you would like to sponsor this meetup's pizza and/or bar tab: angelo@mandato.com
In Person Event: The Secrets to Mental Health
Mental Health, how do you understand it? How can you improve it?
How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
This group is hosted by the Dianetics and Scientology Life Improvement Center of Central Ohio.
Dinner at Orale Guey
The restaurant’s website doesn’t have the dinner menu listed. I took a picture of the dinner menu.
2026 Summer Peer To Peer Session
Join us for our Summer Session of Peer To Peer
Class dates June 16 - Aug. 4, 2026
Register today at:
https://namifranklincounty.org/peer-to-peer/
Fun & easy way to play more tennis (read event description)
We’re still working to get more people into these Meetups, but our goal is to give PlayYourCourt members a few social tennis outings each week in addition to your practice sessions and Challenge League matches.
These Meetups are co-ed, super laid back, and all skill levels are welcome. Post your skill level and a suggested court in the comments section so we can round up as many players as we can for some tennis fun!
Also, if you’re looking to meet new practice partners or play some matches and you aren’t already in the PlayYourCourt Community, you can go here to see what we’re all about and sign up:
https://www.playyourcourt.com/tennis-community/columbus-oh/meetup/
If you love tennis, we’d love to have you! Be sure and watch the quick video that explains how everything works.
Happy hitting!
- Scott
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Speak Easy (Storytelling)
The topic for June is "Roadtrip"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Microsoft Build - Columbus Edition!
We are bringing Microsoft Build sessions to Columbus Ohio!
The Central Ohio Azure Meetup and Central Ohio .NET Developer's Group (CONDG) are coming together to bring some of the labs and breakouts from Microsoft Build to your backyard. In this free, 1 day event, you are going to Build stuff with us!
And yes, there will be free food.
Please RSVP via [Microsoft Build //localhost:columbus | Microsoft Reactor](https://developer.microsoft.com/en-us/reactor/events/27247/).
Karaoke at Beeline Easton
You’re Invited to a Karaoke Night at Beeline Easton! If the weather is nice we will be out on the back patio. If not it will be inside :)
🎤 Sing Your Heart Out! 🎶
Join us for an unforgettable night of music, fun, and good vibes at Beeline Easton! Whether you’re a rockstar in the making or just love a good singalong, this is your chance to shine.
Join us and Central Ohio friends
(Formerly cbus 20s and 30s)
🕗 Time: [8pm-2am (close)]
📍 Location: Beeline Easton
Parking: paid parking garage south of beeline or a free lot to the north of beeline!
Bring your friends, grab a drink, and get ready to take the stage! Let’s make it a night to remember.
RSVP we can’t wait to see you there
Prototype, Play, and Build Workshops (In-Person @GameArena)
We're going to GameArena! We'll be in-person at the GameArena Gateway for our monthly COGG Prototype and Play event. Come to play and showcase your games!
We're back in the upper levels of the catwalk area. It'll be packed with lots of camaraderie playing your game(s) and other's games on the 2nd floor. Light snacks and water provided but you can buy food and drinks at the bar (alcoholic drink ID required).
[www.game-arena.co](http://www.game-arena.co/)
**Attendees:**
Don't have a game to show? Not a problem! All are welcomed and invited from all ages and backgrounds. The more we can have to play test our games is all the better!
**Developers:**
Do you have a game that you would like to get critical feedback on? Would you like an excuse to work on a game with other talented artists, programmers, musicians, designers, and writers? Digital, table-top, non-experienced developers, and the like are welcomed! We'll provide signage for your game to help others learn more about your work. Wifi, outlets, tables, and seats (though standing tables also) are available.
Come to the Prototype and Play workshop to collaborate and meet local game developers for an evening of epic and raw game play fun! Play works-in-progress, show off your own game, work with others to add polish to a game, or even lend your talents to other fellow developers. For this event, light snacks from the bar and water will be provided!
Though you can purchase you own if you like at the bar:
[https://www.game-arena.co/menu](https://www.game-arena.co/menu)
Can use South Garage at the Gateway with a $5 voucher on your way out.
75 E 11th Ave, Columbus, OH 43201
[https://maps.app.goo.gl/UwgveUYG37Jy7RtS9](https://maps.app.goo.gl/UwgveUYG37Jy7RtS9)
If you have any questions or comments, as always, feel free to reach out to us at [info@thecogg.com!](http://info@thecogg.com!/)
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Neurodivergent Women Navigating Midlife Changes - Sleep, Rest, and Connection
Sleep, Rest & Connection:
Building Our Community Together
Join us for the next gathering of The Pause Collective — a supportive meetup for neurodivergent women navigating perimenopause, menopause, burnout, overwhelm, and life transitions.
Since many of us haven't yet had the opportunity to meet, we'll begin by getting to know one another and sharing what brought us to this community.
We'll also explore one of the most common challenges many women experience during this season of life: sleep.
Whether you're navigating insomnia, waking up in the middle of the night, racing thoughts, night sweats, exhaustion, burnout, or simply not feeling rested, you're not alone.
This will be a relaxed, low-pressure coffee shop meetup focused on connection and conversation.
No need to prepare anything.
No pressure to share.
Come as you are.
Together we'll:
• Introduce ourselves and get to know one another
• Share what brought us to The Pause Collective
• Discuss sleep, rest, and energy during perimenopause and menopause
• Exchange ideas, experiences, and support
• Explore what topics we'd like to discuss in future gatherings
• Continue building the kind of community we'd like to create together
This space is neurodivergent-affirming, self-diagnosis-friendly, and supportive of different communication styles and energy levels.
Quiet participation is welcome. Listening is participating.
Whether you're looking for support, learning, friendship, or simply a place where you don't have to explain yourself, you are welcome here.
I look forward to meeting you.
— Dawn
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
June Book Club Meetup
Welcome, readers!
Our June read is ***Endurance: Shackleton's Incredible*** ***Voyage***
**by Alfred Lansing.**
A work of nonfiction, and one of the most astonishing survival stories in history, we follow Sir Ernest Shackleton and his crew after their ship is crushed by Antarctic ice. Stranded in one of the harshest environments on Earth, the men endure months of isolation, freezing temperatures, and near starvation—yet refuse to give up hope. Lansing brings their ordeal to life through vivid detail and firsthand accounts, capturing both the brutality of nature and the resilience of the human spirit. At its core, the story is a powerful testament to leadership, perseverance, and the unbreakable will to survive against impossible odds.
Looking forward to discussing with everyone!
We will meet at Zaftig Brewing Co in their event room in the back. We are welcome to bring in our own food, but **all** **drinks must be purchased at the bar.**
Happy reading! 📖




















