Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
786
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
11 Members
Rare Disease and Autoimmune Support Group
70 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Neurospicy Columbus - Join us for Stauff's Coffee and Book Loft
Join Neurospicy Columbus at the Stauff's for coffee and then a stroll through the Book Loft nearby!
This will be a friendly chat for like minded individuals with Autism and/or ADHD (or somewhere on the Neurodiverse Spectra).
Contra dance May 16 (First Unitarian Universalist Church) note new time!
# **Saturday, May 16, 2026**
**Beginners’ Session 1:30 to 2:00 PM**
**Dancing 2:00 to 4:30 PM**
**Please note that this is an afternoon dance!**
**You are invited to join us for dinner at Olive and Lime (in the church’s back parking lot) after the dance.**
**Kim Thompson, from Athens, will take the mic and we’ll dance to the music of Roscommon Sessions. Kim will lead us through a variety of old and new dances that welcome newbies and delight experienced dancers.**
**Roscommon Sessions, a traditional Irish music quartet from Columbus, Ohio, began their musical journey centered around the energy and spontaneity of Irish sessions. They are excited to bring their lively jigs and reels, a couple of flowing waltzes, and the occasional musical surprise to the All Soles contra dancers!**
**Roscommon Sessions is Steve Steele (guitar), Jim Lindroth (percussion), Carol Metheny (fiddle) and Sarah Sigmon (fiddle).**
**We hope to see you dancing!**
**Location: First Unitarian Universalist Church, 93 W. Weisheimer Road, Columbus, OH 43214.**
**Cost is $10 for adults, $5 ages 12-25.**
**New to dancing? A beginners’ session, from 1:30 to 2:00 PM, will get you started. You will learn some basic figures that will be repeated in the afternoon’s dances. All dances will be taught and no partner is needed. Dancing is from 2:00 to 4:30 PM.**
**Please bring your own refillable water bottle.**
**All Soles Dance upcoming dance dates are, as follows:**
**June 20, 2026**
**Tentative:**
**July 25, 2026–Summer Potluck and Dance**
**No August Dance**
**September 26, 2026**
**October 17, 2026**
**November 21, 2026**
**December 19, 2026**
**Visit our website at: https://firstuucolumbus.org/connection/all-soles/**
How to Control Emotions & Future worries !
Come enjoy our free meditation classes!
Room number # 5 in Liberty branch Delaware county library, Powell
**Sahaja Yoga Meditation** is a simple, energy-based practice that helps you achieve **thoughtless awareness**, a state of deep inner peace and mental clarity. It’s easy to learn, can be practiced anywhere, and is open to all.
Our **free** meditation classes offer:
* **Guided meditation** led by experienced practitioners.
* An introduction to the **subtle energy system**, including **Chakras** and **energy channels**.
* The awakening of **Kundalini energy** for balance and self-realization.
* **Chakra cleansing techniques** to promote inner harmony.
* A supportive space to listen, share, and grow.
* Practical methods to integrate meditation into daily life.
No special preparation is needed—just an open heart and a willingness to explore.
Learn more at:[ https://wemeditate.com/](https://wemeditate.com/)
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* There's a restroom along the route at [Tuttle Park Community Center](https://maps.app.goo.gl/KTZJgLE1CrrbRNmJ7), which is about two‑thirds of the way from [Clinton-Como Park](https://maps.app.goo.gl/z8Cx8evwLiWundMe8) to our [turnback point](https://maps.app.goo.gl/ZXk7qUVszLQ8EJxHA).
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
Saturday Mornings @ East Market
Let's grab some coffee/food and share a morning chat! The East Market has an ample parking lot and outdoor and indoor seating.
Grab a cup of coffee from Winston's Coffee & Waffles or on your way to East Market and meet us on the second floor - table behind or east of the elevator.
Per what this group is about:
"Everyone is welcome! International transplants to Columbus who want to improve language skills, Columbus residents who enjoy talking to people from other countries, and those who would like to discuss international travel and culture, and who enjoy getting together for good conversations."
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Afternoon Musical!
**Tickets are on Sale now $22.00 curtainplayers.org** **please list your seat number in comments . Purchase in E .We also will meet for lunch if interested which is posted separately 😊**
Monthly Meet Up (Agnes Aubert’s Mystical Cat Shelter)
This month we’ll be reading Agnes Aubert’s Mystical Cat Shelter by Heather Fawcett. Feel free to come and chat even if you don’t finish the book!
Sunday Brunch
Sleep in on Sundays. When you've had your fill of pajama-time, roll out and have some tasty brunch with your fellow Humanists!
CABS Flea Market ! Saturday , May 16th
CABS Flea market - Come early to get the best bargains!!! Stay late to play your new games ...
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Free monthly Lunch + Learn for Columbus business owners. Practical local marketing strategies and real connections. Space is limited so RSVP
Marketing Monday Lunch + Learn is a free monthly event for local business owners in Columbus who want practical marketing strategies and real connections with other business owners in their market.
Each month covers one actionable local marketing topic. You will leave with one thing you can put to work the same week.
This is not a pitch fest. It is a focused conversation with people who are serious about building their local visibility and growing their business.
Register here: [https://www.eventbrite.com/e/marketing-monday-lunch-learn-tickets-1988509765237](https://www.eventbrite.com/e/marketing-monday-lunch-learn-tickets-1988509765237)
Ticks in Licking County, Diseases and Prevention - Hebron Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia





















