Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
788
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
12 Members
Rare Disease and Autoimmune Support Group
70 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
128 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Must See Thursday: I LOVE BOOSTERS at the Drexel + GRAETER'S!
Join us as we get together to see the top-reviewed comedy-drama, I LOVE BOOSTERS! The film comes from writer/director Boots Riley and follows a group of shoplifters who take aim at a cutthroat fashion maven. Here are details, trailers and our plan for this event:
DESCRIPTION: The film follows a group of shoplifters who take aim at a cutthroat fashion maven. It is written/directed by Boots Riley (Sorry to Bother You) and stars Keke Palmer, Naomi Ackie, Taylour Paige, Poppy Liu, Eiza González, LaKeith Stanfield, Will Poulter, Don Cheadle, and Demi Moore.
BUZZ AND ACCLAIM: I Love Boosters was the opening film at this year’s SXSW Festival and premiered to rave reviews! It is currently earning a tremendous 97% positive rating on Rotten Tomatoes where critics call it, “an unexpected celebration of friendship, community, and solidarity.” Others call the film “an exercise in radical empathy,” a “masterful” and “optimistic” film designed to “provoke discussion” while making the audience laugh.
TRAILER: [https://www.youtube.com/watch?v=r4lPRISgr9c](https://www.youtube.com/watch?v=r4lPRISgr9c)
SUMMER OF ICE CREAM: GRAETER’S! Established way back in 1870 in Cincinnati, this historic, family-owned brand is famous for their delicious small batch ice cream and any chocolate chunk flavors! They are currently the only commercial ice cream maker using the French Pot method that they’ve been using since they first opened! Plus, those chocolate chunks, oh my goodness! Vegan options are available.
PLAN: Details for this event have just been confirmed! We got a later than usual showtime, so we’ll go with ice cream BEFORE the show! Here’s the plan: Meet at Graeter’s at 6:30pm for a pre-show sweet treat! Then, get ready for a fun and wild one! Purchase your ticket for the 7:30pm showing and meet in the lobby area between 7:10 and 7:20pm. Advance ticket purchase not required but be sure to mention you’re with the Movie Group for admission and concession discounts!
Look forward to seeing you there, Dan
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Westerville Memorial Hike
Join us this Thursday 6:30 pm at the Westerville Veterans Memorial for two loops around the Westerville Sports Complex fields. This 1 mile loop is a flat fully paved trail that straddles Alum Creek. Join us for a beautiful evening hike together!
Networking Night
Free monthly networking for Columbus business owners. Real conversations, real connections, no forced formats. Space is limited. RSVP now.
Most owners leave networking events with a stack of business cards and no plan. The best leads quietly slip through the cracks.
Networking Night is a monthly meetup for Columbus business owners who want to build real local relationships, not just trade contact info. Every kind of local business welcome. No pitch round, no pressure, no awkward speed-networking.
**This month**
We are focused on referral relationships. Walk in with a clear idea of who refers people like you. Walk out having met a few owners whose work fits next to yours.
**What to expect**
Doors open at 6 PM. You get real conversation with other local owners, time to actually connect, and a short marketing lesson woven in. The room is reserved through 7:30 PM.
**Who this is for**
Any local business owner who wants to grow through relationships, not just paid ads. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Last Thursday of every month
* 6:00 to 7:30 PM
* COhatch Easton
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local owners build the system that keeps their phone ringing, including tracking the referral relationships built in rooms like this one. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275](https://www.eventbrite.com/e/local-marketing-networking-night-tickets-1988510112275)
Westerville Queer Coffee Meetup
WQC has weekly Thursday night social nights at the Westerville Java Central. Come and grab a coffee and connect with the community: low stakes, chill environment, and tasty drinks. No registration is required; come as you are.
Conversation and Coffee @ Belle's Bread Bakery
Hey Everyone!
Let's meet at Belle's Bread Bakery and Cafe. There is lots of free parking and easy access to the cafe and many shops and restaurants as well. This is a great way to meet new and old friends while chatting about life and practicing English language speaking skills. All are welcome and encouraged to join us anytime between 11am and 1pm. Looking forward to seeing you soon.
Gold Star Business Networking
Bring your business cards and network in person with other business professionals! Gold Star Referral Clubs is one of the most established professional networking organizations in the country, with multiple groups in central Ohio. Join us!
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Pranic Healing Level I - PH I--- DAY 2 of 2
MCKS PRANIC HEALING® Level I
In PRANIC HEALING® Level 1, you learn the basics of working with your energy aura, including learning to "scan," or feel the energy, to "sweep," or clean away congested energy, and to "energize," or supplement areas in your aura that have a pranic deficiency.
PRANIC HEALING® has been taught to doctors, nurses, massage
therapists, acupuncturists, chiropractors, shiatsu practitioners, and many others in the healing field. It has allowed them to heal confidently and consistently in the shortest learning time possible. These professionals find PRANIC HEALING® very effective and easy to apply.
Other topics covered in PRANIC HEALING® Level 1:
Energetic anatomy: You will learn to work with the network of chakras, meridians and auras to accelerate the healing processes of your body.
Preventive healing: You will learn to remove the negative energetic patterns of a disease to prevent it from fully manifesting as a physical ailment.
Self-Pranic healing: You will learn to apply these healing techniques to accelerate your own healing.
Step-by-step techniques for ailments related to your:
respiratory system, e.g., asthma,; circulatory system, e.g., heart ailments; gastrointestinal system, e.g., irritable bowel syndrome; musculoskeletal system, e.g., arthritis and back pain; reproductive system, e.g., menstrual problems. You'll also learn how to address common problems as migraines and sinusitis.
Additionally, you'll learn to apply distant healing to loved ones who are not present in the room with you.
All PRANIC HEALING® courses are "experiential," which means that you learn by actually performing the techniques and exercises in class - on yourself and those around you. During class, all the principles will be explained thoroughly and you will practice the techniques exhaustively so you will be confident in your ability to produce positive results when you finish the course.
This is Day 2 of 2 Attendance at day one is required to attend day 2.
The Course text book is Choa Kok Sui, "Miracles through Pranic Healing" Please bring this with you to class.
PRANIC HEALING® Level 1 is a prerequisite to all other GMCKS courses.
For those interested to review the class...Review fee is only $75!!
LOOK AT THIS!! Review for FREE when you bring a new student to class with you.
Columbus Museum of Art, Free Admission Sundays
Let’s meet and wander the galleries! General admission on Sundays is free.
Game Dev Meetup (@Improving In-Person)
PLEASE NOTE!!!
This event will be In-Person for our very 1st Improving collab! If you know the [Columbus Unity group](https://www.meetup.com/columbus-unity-user-group/) location, we'll be at the same place. This is our 1st event and are doing a soft launch with limited attendance. 1st come 1st serve. If you want to be there and we fill up, please email me at [info@thecogg.com](mailto:info@thecogg.com) and I'll be in touch.
All street parking is free on Sundays but you can also pay to park in any of the local garages. See image of [parking map here](https://drive.google.com/file/d/1Mr9_LFIggbs-0_Zd3AJTGNqEhgMf2TzQ/view?usp=sharing).
\-\-\-
On the last Sunday of the month, we're having our usual end-of-the-month social gathering with our GameDev Meetup meeting. There will be announcements and presentations followed by some social networking Let's continue the conversations with good vibes and friends.
All are welcomed from all ages and backgrounds to this public event. If we can, we'll be streaming or uploading the video later via our COGG YouTube channel here:
[https://www.youtube.com/@TheCOGG/streams](https://www.youtube.com/@TheCOGG/streams)
(Also please do subscribe if you have not done so!)
No game development experience required!
If you are interested in doing a 20 minute game development related presentation, please fill out our form online here:
[https://goo.gl/forms/lVdTJZiNJewlPJuj1](https://goo.gl/forms/lVdTJZiNJewlPJuj1)
Or e-mail us at info@thecogg.com
with the following:
Your Name, Company/Affiliation, Name of Your Game/Topic, Description, Tech Needs, and Your Contact.
Be sure to check out our Discord for real time news updates:
[https://discord.gg/NrBhuNQ](https://discord.gg/NrBhuNQ)
Soulbits Circle: A Monthly Gathering
**Soulbits Circle: A Monthly Gathering**
**Every fragment of your story is medicine; come weave it into being**
**Hosted by: Caitlynn Fortson**
**[www.kalikwellnesswithin.org](www.kalikwellnesswithin.org) \| [www.centerfornewlife.org](www.centerfornewlife.org)**
**The Center for New Life or Virtual, upon request**
**Monthly Circles \| Fridays 6:30\-7:30PM**
**Upcoming Dates: 5/1, 5/29, 6/26, 7/24, 8/28, 9/25, 10/23, 11/27, 12/18**
A monthly healing space where we gather to tend the pieces of ourselves and weave them back into wholeness that we are. Each session opens with a Soulbits oracle image setting the tone for the gathering we will move through. We will come together to honor the natural rhythms of rooting, rising, releasing, and receiving; the cycles that shape the soul’s journey.
Through the four pillars of being: mindset, movement, connection & nourishment, we will create a space where imagery, sensation, and community weave together. Where the body becomes the guide, images act as mirrors, and the soul speaks. This circle is about noticing what rises, honoring what’s true, and reconnecting with the parts of yourself ready to be seen.
This is a space to gather your scattered pieces, soften your body, and return to your truth with community by your side. Soulbits Circle is a reminder that every fragment of your story, every soulbit, belongs. Together we weave them into the blooming wholeness that you are.
*Energy Exchange: 1-group $20-40 or 6-group $115*
*Payment Options: Venmo or Cash*
**Please RSVP to [Caitlynn](https://kalikwellnesswithin.org/) via**
**email @ [kalik.wellnesswithin@gmail.com](mailto:kalik.wellnesswithin@gmail.com)**
**text @ (614) 407-4021**
💫
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
You Exist Too Much by Zaina Arafat
[Columbus library link to book](https://cml.bibliocommons.com/v2/record/S105C3351321)
Location: The Goat River South
219 S High St, Columbus, OH 43215
Street parking is free on Sundays
[Menu](https://static1.squarespace.com/static/686d3ed16745133042482c5f/t/68ff654dbb03b96875430bde/1761568077220/all_brunch-20250311.pdf)
Book summary:
On a hot day in Bethlehem, a twelve-year-old Palestinian-American girl is yelled at by a group of men outside the Church of the Nativity. She has exposed her legs in a biblical city, an act they deem forbidden, and their judgement will echo on through her adolescence. When our narrator finally admits to her mother that she is queer, her mother's response only intensifies a sense of shame: 'You exist too much,' she tells her daughter. Told in vignettes that flash between the U.S. and the Middle East--from New York to Jordan, Lebanon, and Palestine--Zaina Arafat's debut novel traces her protagonist's progress from blushing teen to sought-after DJ and aspiring writer.























