Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
767
members
6
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
8 Members
Rare Disease and Autoimmune Support Group
67 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
122 People w/ Narcolepsy or IH
New York Narcolepsy Support Group
368 Members
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Take Control Of Your Life, Freedom From Negative Thoughts & Irrational Emotions
Feeling down? Sometimes depressed? Can't focus? Negativity & stress? Recent losses? Creativity in career and personal life hindered by mental blocks? Sometimes we never fully recover from traumatic experiences.
Whether it was yesterday, last week or a year ago, traumatic experiences - a loss of a loved one, losing a job, a breakup - can leave you scarred. You talk about it and feel a little better, but it never goes away. After you hang up the phone, it's still there; the sadness, the cloud, the over-thinking, the worry, the guilt. You try to focus, but you're blocked. You try to look forward into new experiences, new relationships but a cloud is hanging over you, casting a shadow on what you once considered a bright, cheerful future.
What happened to your courage? Your strength of character? You're 'why not' attitude? Whoever said 'time heals' must have had a special time machine, because after weeks, months, years, you're wondering - when exactly does that kick in? Sometimes it seems like drinking or drugs are the way to go. But they wear off, and now the problem is still there with added side effects from the drugs.
At this free local Meetup event we will talk about:
* What causes grief, anxiety and depression to become chronic.
* Is it possible to regain your joy and happiness even after traumatic experiences?
* How to break away from negativity and focus on the future
* What are the steps to take to get control of your mind and your emotions?
Learn about a safe, gentle, do-it-yourself counseling that can be done in the comfort of your own home.
Let's explore safe, effective solutions for healing from traumatic experiences.
Be sure to click on the red "Attend" button below to come to the event. We look forward to seeing you there.
This group is sponsored by the Dianetics & Scientology Life Improvement Center.
American Sign Language Beginners Meetup Group
We meet to learn and practice American Sign Language and to grow our familiarity with Deaf culture. Facilitated by hearing folks (with a connection to a professional interpreter) using Deaf-created content. People of all ASL skill levels are welcome! As we learn, we hope to connect more with the Deaf community in Central Ohio. Join us as you're able!
Come regularly or just once - whatever you're looking for! Each meetup will explore different topics related to ASL/Deaf culture, and will feature time to practice conversation with one another. Just bring yourself and a willingness to learn!
Wednesday Night Meditation Practice
Join us on Wednesday nights at 7pm for two 25 minute quiet meditations, with one short walking meditation in between. There will be a brief and informal conversation afterward.
Stay for as long as you like and feel free to bring or share whatever is on your mind.
All Zen Center events are also available via Zoom at bit.ly/IndyZen.
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
Neurospicy Columbus - Join us for Stauff's Coffee and Book Loft
Join Neurospicy Columbus at the Stauff's for coffee and then a stroll through the Book Loft nearby!
This will be a friendly chat for like minded individuals with Autism and/or ADHD (or somewhere on the Neurodiverse Spectra).
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
French conversation club
Bienvenue! Columbus French Conversation group invites you to our Saturday morning French conversation club. Expect a casual and welcoming atmosphere in which to learn french! I will bring my laptop so we can look up new vocabulary as needed! The venue is a beautiful French restaurant so you can really get into the zone :)
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Humanist Program
The Humanist Monthly Program is our longest running event and still a community favorite. In the old days it used to be called "Going to HCCO" and we still like to think of it as our flagship event.
We will be hearing from Becca Powell, Director of Advocacy and Outreach at Unchained At Last, an organization whose mission is dedication to ending forced and child marriage in the United States through direct services and systems change. Unchained At Last's mission clearly meshes and addresses several of our Humanist Ten Commitments. Becca will educate us about an issue many of us may not be familiar with--but should be.
Food and drinks will be provided at the event. Feel free to show up a little bit early to hang out and talk.
Going forward our meetings will be hybrid. You can meet us in-person or attend online
Join Zoom Meeting
[https://us02web.zoom.us/j/87836564953?pwd=4Mi57ElZkDIFlb1fnlNwOJ0NiOK4tP.1](https://us02web.zoom.us/j/87836564953?pwd=4Mi57ElZkDIFlb1fnlNwOJ0NiOK4tP.1)
Meeting ID: 878 3656 4953
Passcode: 760812
One tap mobile
+19292056099,,87836564953#,,,,\*760812# US (New York)
+13017158592,,87836564953#,,,,\*760812# US (Washington DC)
The formal presentation will start at noon
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Speak Easy (Storytelling)
The topic for April is "Water"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!
Free in-person event: Take Control of Your Mental Health
It’s time to take control of your mental health. How do you get rid of stress, anxiety and uncertainty? These emotions are buried deep in your reactive mind. Find out what the reactive mind is, and in the process find yourself.
Have you ever suffered from a traumatic experience, a deep loss or been through a painful breakup? Has your ability to communicate suffered as a result? And after that, even though you "moved on" did you find that things were never quite the same? Have you ever looked at childhood photos, or reminisced your early life and wondered where that happiness and spark went?
Are your emotions out of your own control? Have you ever felt, even if you aren’t aware of it, that possibly you are getting in your own way of your happiness and success? How does this affect your self-confidence?
Find out what is at the root of all stress, anxiety, depression and self-doubt. Find out how and why you hold yourself back from achieving your goals and having the life you have dreamed of. As soon as you learn what is at the root of these unwanted conditions, you’ll see it is something you can DO something about. You will not be labeled or categorized at this MeetUp.
Bitty & Beau's Coffee
Here's a blurb from Bitty & Beau's website about their mission:
"Bitty & Beau’s Coffee is a human rights movement disguised as a coffee shop, where people with intellectual & developmental disabilities are valued in the workplace. It’s a place where diversity isn’t just appreciated, it’s celebrated. Bitty & Beau’s Coffee proudly employs 450+ individuals with disabilities nationwide."
They sell a lot of merch, as well as teas/coffees/pastries. For teas, they have regular tea, matcha lattes, and chai lattes.
https://www.bittyandbeauscoffee.com/menu/
Here's their Columbus location info:
https://www.bittyandbeauscoffee.com/location/columbus/
Hike Bexley - UPDATED DATE
Meet at Wolfe Park parking lot by tennis courts. We willl walk along Alum Creek trail, through Jeffrey Mansion Park then along Bexley neighborhood and back.
Optional lunch at Trolley District.



















