Rare Disease/Conditions
Meet other local people interested in Rare Disease/Conditions: share experiences, inspire and encourage each other! Join a Rare Disease/Conditions group.
788
members
7
groups
Largest Rare Disease/Conditions groups
Newest Rare Disease/Conditions groups
The Hibiscus Health Autoimmune Empowerment Circle
9 Members
HD Hangout STL
0 Members
Clinical Genetics and Genomic Medicine in Mexico
13 Members
Rare Disease and Autoimmune Support Group
71 Members
(Group Closed) Northwest Narcolepsy Support Group
0 Members
Narcolepsy Support Group of San Diego County
127 People w/ Narcolepsy or IH
Frequently Asked Questions
Yes! Check out rare disease/conditions events happening today here. These are in-person gatherings where you can meet fellow enthusiasts and participate in activities right now.
Discover all the rare disease/conditions events taking place this week here. Plan ahead and join exciting meetups throughout the week.
Absolutely! Find rare disease/conditions events near your location here. Connect with your local community and discover events within your area.
Rare Disease/Conditions Events Today
Join in-person Rare Disease/Conditions events happening right now
Saturday Mornings @ East Market
Let's grab some coffee/food and share a morning chat! The East Market has an ample parking lot and outdoor and indoor seating.
Grab a cup of coffee from Winston's Coffee & Waffles or on your way to East Market and meet us on the second floor - table behind or east of the elevator.
Per what this group is about:
"Everyone is welcome! International transplants to Columbus who want to improve language skills, Columbus residents who enjoy talking to people from other countries, and those who would like to discuss international travel and culture, and who enjoy getting together for good conversations."
French Conversation Meetup
Hi everyone!
I'm looking for people who would like to meet regularly and practice speaking French in a relaxed and friendly environment.
All levels are welcome, from complete beginners to native speakers.
The goal is simply to practice, and enjoy good conversations together.
CORGSCON
Come join CORGSCON the Columbus, Ohio retro gaming expo at the Bricker Building – Ohio Expo Center June 6th-7th
Saturday: 11am-6pm
Saturday After Party: 6PM – 10PM
Sunday: 11am-4pm
PLEASE NOTE:
RSVP for this event does NOT give you access to the event. Please buy tickets for the event on the website here or onsite at the event:
[https://www.corgscon.com/tickets/](https://www.corgscon.com/tickets/)
We'll have COGG game developers there showcasing their games alongside the [GDEX game expo](https://www.thegdex.com/) also happening later this year.
Find out more here:
[https://www.corgscon.com/](https://www.corgscon.com/)
How to Control Emotions & Future worries !
Come enjoy our free meditation classes!
Room number # 5 in Liberty branch Delaware county library, Powell
**Sahaja Yoga Meditation** is a simple, energy-based practice that helps you achieve **thoughtless awareness**, a state of deep inner peace and mental clarity. It’s easy to learn, can be practiced anywhere, and is open to all.
Our **free** meditation classes offer:
* **Guided meditation** led by experienced practitioners.
* An introduction to the **subtle energy system**, including **Chakras** and **energy channels**.
* The awakening of **Kundalini energy** for balance and self-realization.
* **Chakra cleansing techniques** to promote inner harmony.
* A supportive space to listen, share, and grow.
* Practical methods to integrate meditation into daily life.
No special preparation is needed—just an open heart and a willingness to explore.
Learn more at:[ https://wemeditate.com/](https://wemeditate.com/)
Walk & Talk About Life's Big Questions
[The Board Walks](http://www.theboardwalks.com/) are for curious people who love deep conversations.
If that sounds like you, **bring a thoughtful topic** and join us for a 5-mile walk (10,000+ steps!).
**HOW IT WORKS**
**Step 1: Bring a topic**
Before you arrive, think of **one** topic you want to explore. A question. A thought that's been on your mind. An obsession you want to geek out on. This is your ticket to the event.
**Step 2: Circle up & share**
We gather in a circle. Your friendly walk host gives a speech to set the tone. Everyone shares: your name, what you're grateful for, and your topic. That's it. 60 seconds.
**Step 3: Walk, talk & float**
We walk 5 miles. You naturally drift into conversation with 2-3 people at a time, pulled by topics that spark your curiosity. When you're ready to move on, just say: "I'm going to float!"
**Step 4: Feel more alive**
Two hours flies by. You're back where you started — but you feel different. More alive. More energized. More connected to yourself and others. That's why regulars join 20+ times.
*For more details, read our [Orientation Guide.](https://www.theboardwalks.com/orientation)*
**HOW TO BRING A GREAT TOPIC**
A great topic = something you're genuinely curious about.
Recent topics include:
* "What are you passionate about right now?"
* "What makes a good friend?"
* "What's a belief you used to hold that you've completely changed?"
* "How do you want to be remembered?"
* "What would you do if money wasn't a factor?"
Think of your topic like the dish you're bringing to our conversational potluck. If everyone brings an A+ dish (i.e. energizing, uplifting, expansive), we'll all walk away feeling lighter and brighter.
**WHAT TO EXPECT**
This isn't a fitness event with casual chitchat. It's a walking think tank where we explore life's big questions together, beyond small talk. *If you're looking for light banter or a standard networking event, this probably isn't the right fit.*
But if you crave depth, genuine connection, and conversations that make you feel alive? You'll love it here.
**FAQ**
* Wear casual athletic attire and sneakers. It's a long walk!
* We have multiple first-timers at each event. We work hard to create a welcoming, inclusive, clique-free space.
* We welcome people of **all** ages, backgrounds, and industries who align with the [intention](https://www.theboardwalks.com/ground-rules) of this space.
* Rain or shine, we've been out here nearly every week since July 2022. If the event is cancelled, we'll let you know.
* Dogs, babies in strollers, parents, and friends are welcome — please text/email them the event link so they can RSVP and prepare a topic!
**LOGISTICS**
* If you'll arrive over 10 minutes late, we suggest skipping the event. It's hard to find us once we start walking, and your host can't answer messages during the event.
* This walk is designed for everyone to *move together at the same steady pace* (about 20 min/mile). This format works best when the whole group moves in unison. If you have mobility limitations, we kindly encourage you to find an event better suited to your needs.
* Read our [Orientation Guide](https://www.theboardwalks.com/orientation) for full details.
* If you enjoy the event, send **[this](http://www.theboardwalks.com/)** to a friend or sign up for our **[newsletter](https://theboardwalks.beehiiv.com/)**. We're in multiple cities with more on the way. 🤠👋
**IF YOU WANT TO GO DEEPER...**
[The Board](https://stan.store/ellebeecher/p/the-board) is the next step: a high-trust collective for renaissance people devoted to creating, connecting, and building lives that light us up.
* This is a global HQ for people who crave big talk, deep connection, and dream collaborations with people across industries. If the walks feel like a spark... The Board is the fire. Apply [here](https://stan.store/ellebeecher/p/the-board).
Losing Weight in Columbus - Saturday morning Metro Park at Scioto Audubon Park
Join the weight loss in Columbus group at the Scioto Audubon Park for an in person meeting. We'll meet to chat casually, talk about goals and enjoy one of Columbus's wonderful parks.
We'll meet at one of the outdoor shelters, which is covered in case of rain, is close to some walking trails, and there's also a climbing gym that people can try out (my favorite past time) if people are interested.
Let's meet and see where we can take things!
Rare Disease/Conditions Events This Week
Discover what is happening in the next few days
You Exist Too Much by Zaina Arafat
[Columbus library link to book](https://cml.bibliocommons.com/v2/record/S105C3351321)
Location: The Goat River South
219 S High St, Columbus, OH 43215
Street parking is free on Sundays
[Menu](https://static1.squarespace.com/static/686d3ed16745133042482c5f/t/68ff654dbb03b96875430bde/1761568077220/all_brunch-20250311.pdf)
Book summary:
On a hot day in Bethlehem, a twelve-year-old Palestinian-American girl is yelled at by a group of men outside the Church of the Nativity. She has exposed her legs in a biblical city, an act they deem forbidden, and their judgement will echo on through her adolescence. When our narrator finally admits to her mother that she is queer, her mother's response only intensifies a sense of shame: 'You exist too much,' she tells her daughter. Told in vignettes that flash between the U.S. and the Middle East--from New York to Jordan, Lebanon, and Palestine--Zaina Arafat's debut novel traces her protagonist's progress from blushing teen to sought-after DJ and aspiring writer.
Golden Lotus Meditation & Lecture - 'Is cancelled!'
Our Sunday Meditation Service - Is Cancelled !' We will resume Sunday June 14th!
Franklin Park Conservatory / Columbus Brewing Company
**History**
The [Franklin Park Conservatory](https://www.fpconservatory.org/)’s roots trace back to 1852 when the Franklin County Agricultural Society purchased 88 acres of land to host the Ohio State Fair. After the fair moved to its permanent home, the city of Columbus transformed the grounds into Franklin Park in 1884. This transition shifted the space from a temporary event site to a dedicated public green space for the growing community. The park became a central hub for outdoor recreation and early civic gatherings in the neighborhood.
In 1895, the landmark Victorian-style Palm House opened its doors, drawing heavy inspiration from the Glass Palace of the 1893 World’s Columbian Exposition in Chicago. This iron and glass structure became an immediate icon, housing exotic plants that residents would otherwise never see in the Midwest. It remains the oldest part of the facility and serves as a primary link to the conservatory’s 19th-century origins. For decades, it stood as a singular testament to grand horticultural architecture in Central Ohio.
A major turning point arrived in 1992 when Columbus hosted AmeriFlora '92, an international horticultural exhibition. This massive event prompted a $16 million renovation and expansion, adding significantly more greenhouse space and the Dorothy M. Davis Showhouse. The festival put the conservatory on the international map and fundamentally changed its scale and ambition. Following the event, the facility transitioned from a city-run park to a private, non-profit organization.
In 2003, the conservatory’s identity was further defined through a long-term partnership with world-renowned glass artist Dale Chihuly. After a successful exhibition, the Friends of the Conservatory purchased most of the glass installations, creating the largest permanent collection of Chihuly’s work in a botanical setting. These vibrant glass sculptures are now woven throughout the biomes, blending art with nature. This addition helped cement the conservatory as a premier cultural destination rather than just a botanical garden.
Recent years have seen the site expand beyond the glass walls to emphasize community engagement and outdoor education. The 2018 opening of the Scotts Miracle-Gro Foundation Children’s Garden added two acres of interactive landscape designed for hands-on learning. The Scotts Miracle-Gro Company Community Garden Campus also provides local residents with space to grow their own food and learn sustainable practices. Today, the conservatory balances its historic Victorian charm with modern commitments to local ecology and the Columbus community.
**Maps of the Conservatory**
Here is the [main map](https://www.fpconservatory.org/wp-content/uploads/2025/08/franklin-park-zones-scaled.jpg) of the Conservatory grounds. Here's a [map of the areas](https://www.fpconservatory.org/wp-content/uploads/2026/02/ConstructionMap-2026.jpg) in which the Conservatory has ongoing construction (see below).
**Summary**
For this event, we'll explore Columbus's highly-rated and very popular Conservatory. As mentioned above, the Conservatory is doing renovations on parts of the facility. These renovations are scheduled to be ongoing until the Fall of next year.
Basically, no matter when you go to the Conservatory over the next 18 months, you're going to see some metaphorical orange barrels. So let's just go now.
**Tickets and pricing**
On the first Sunday of every month, the Conservatory is free for residents of Franklin County and the city of Columbus. You must bring an ID to receive this discount. (Yes, they do check.) Otherwise, tickets are $25.20.
Members of the Columbus Zoo (of which I am one) do get a discount on tickets, though I have never actually bought a ticket to the Conservatory (I've always gone on free days). I believe the discount is $4.
Parking is always free.
If you have additional questions about pricing or whether and for what you qualify, you can reach the Conservatory at 614-715-8000.
**Where we'll meet**
We will meet just outside the main entrance. I guarantee there's going to be a line. The Conservatory is always popular on free days, and especially in nice weather.
**Your GPS is stupid!**
Be careful simply typing "Franklin Park Conservatory" in your GPS and going where it tells you.
The only way to access the parking lot to the Conservatory is off of Broad Street. Unfortunately, since Google Maps is unable to find its way out of a wet paper bag, it has a tendency to want to take people to a mythical, non-existent Conservatory entrance on Nelson Road.
If your GPS does this, just drive to the north side of the Conservatory along Broad Street. Your GPS should then redirect you to the main Conservatory entrance. If your GPS doesn't, then throw your phone away\* and look for the big Conservatory sign on the south side of Broad Street between Nelson Road and Franklin Park West.
You also should be able to use the map pin I've provided, below, and it should properly direct you to where you need to drive.
\* Don't really do this.
**After the event**
After stopping to smell the roses, for those that are interested, we'll head to the nearby [Columbus Brewing Company Beer Hall](https://columbusbrewing.com/location/beer-hall/) for [drinks](https://columbusbrewing.com/location/beer-hall/#draft-list) and [lunch](https://columbusbrewing.com/location/beer-hall/#food-menu).
The Beer Hall's actual address is [200 Kelton Ave, Columbus, OH 43205](https://www.google.com/maps/place/200+Kelton+Ave,+Columbus,+OH+43205/data=!4m2!3m1!1s0x883889a94ac4acad:0xadb2e60240dbc38b?sa=X&ved=1t:242&ictx=111) (it's literally just on the south side of the Conservatory). Be sure this is where your GPS is taking you when you use it, as the Brewing Company has a taproom on Harrison Avenue that is *not* what you want for this event.
We should be at the Beer Hall by 1 if you can't make the Conservatory and just want to join us for drinks.
St. Petersburg Online Speed Dating
**💖 St. Petersburg Online Speed Dating on Zoom**
Join from home and meet real St. Petersburg singles in guided one-on-one Zoom rounds. Matched by age and personality.
**Choose your age range to sign up:**
- **Ages 18-32** → [REGISTER HERE](https://theliveround.com/product?productId=531.0&productType=onlineSpeedDating&city=St.%20Petersburg&groupurlname=join-our-circle-of-serious-singles&ar=18-32&face_v=3.0)
- **Ages 30-46** → [REGISTER HERE](https://theliveround.com/product?productId=531.0&productType=onlineSpeedDating&city=St.%20Petersburg&groupurlname=join-our-circle-of-serious-singles&ar=30-46&face_v=3.0)
- **Ages 40-58** → [REGISTER HERE](https://theliveround.com/product?productId=531.0&productType=onlineSpeedDating&city=St.%20Petersburg&groupurlname=join-our-circle-of-serious-singles&ar=40-58&face_v=3.0)
- **Ages 55+** → [REGISTER HERE](https://theliveround.com/product?productId=531.0&productType=onlineSpeedDating&city=St.%20Petersburg&groupurlname=join-our-circle-of-serious-singles&ar=55+&face_v=3.0)
**⚠️ Your RSVP doesn't confirm a place.** Click your age group below, register, and take the personality quiz. Spots are limited.
---
**How It Works**
1. **Register** – Pick your age group above and sign up.
2. **Take the quiz** – Short personality quiz so we can match you well.
3. **Join on Zoom** – Your host will guide you through every round.
4. **Get matches** – Mutual matches sent after the event.
---
✨ Sign up, take the quiz, and meet St. Petersburg singles tonight. 💞 ✨
COUNT RMH Housewarmer Volunteering (Ronald McDonald House)
Some trained COUNT volunteers work together once a month at RMH (http://www.rmhc-centralohio.org/volunteer.php) as Housewarmers (usually on the 1st Sunday from 1 – 5 PM). Some schedule other shifts at their convenience. You may try this out with less fuss by following a "Fast track" or go through the normal process.
Fast track
• Arrange a time to shadow a COUNT volunteer. Call Dave Nohle at 614-268-9558 (cell).
• Show up and try it out.
• Complete application, etc. later.
Normal process
• Complete an online application (http://rmhc-centralohio.org/volunteer/).
• Attend orientation in advance.
• At orientation you will complete forms agreeing to keep family/patient info private and allowing a background check and tour the facility.
• Complete one training shift. Daily shifts are: morning 9 AM - 1 PM, afternoon 1 - 5 PM and evening 5 - 9 PM.
• Schedule shifts online using the on the RMH scheduling system (http://www.volgistics.com/ex/portal.dll/?FROM=32895).
The Ronald McDonald House (RMH) provides housing and meals for families with sick children. The Columbus RMH is the largest in the world with 137 rooms. COUNT has been volunteering there since May 2014.
Housewarmers work with RMH guests to provide a home-like environment - greet, assist with family needs, answer phones, give tours, assist with checkin/checkout, prepare guest rooms after checkout, clean facility, laundry, restock supplies and staff the front desk. RMH Housewarmers volunteer at least one four-hour shift a month. All Housewarmers must complete an application and agree to a background check before they can be full fledged volunteers.
Yoga @ Goodale Park w/Victoria + Woodhouse Vegan After
Join us Sunday, June 7th at 10am for a gentle beginner-friendly yoga flow in Goodale park with Victoria, one of our very own vegan community members and certified yoga teacher!
Whether you’re brand new to yoga or a long time practitioner, this class is designed to help you slow down, stretch, breathe, and reconnect with yourself. Expect a relaxed, accessible flow focused on easing tension, moving mindfully, and leaving you feeling a little more grounded.
All levels welcome! Bring water and a yoga mat (or towel if you don’t have a mat).
A suggested donation of $10 is appreciated, but payment is absolutely not required to attend and enjoy class. A Venmo QR code will be available on-site for anyone who would like to contribute.
The class duration will be one hour from 10-11am. After class, we’ll head to Woodhouse Vegan for anyone who wants to keep the good vibes going over food and conversation 🌱
Rare Disease/Conditions Events Near You
Connect with your local Rare Disease/Conditions community
Marketing Monday Networking
Monthly working lunch for Columbus business owners. One specific topic, one to three actions you can run this week.
You can be the best at what you do and still be invisible. If local buyers cannot find you, the phone does not ring.
Marketing Monday Lunch + Learn is a monthly working lunch for Columbus business owners focused on building relationships, local networking, and local marketing. Every kind of local business welcome. No pitch round, no pressure, no upsell.
**This month**
Most local businesses pick one or two places to be visible and call it good. The result is inconsistent calls and a feeling that marketing is not working. We will walk through the three places every local business needs to show up, plus the fourth place most owners ignore that quietly produces the warmest leads.
**What to expect**
Doors open at noon. Order lunch and drinks at the cafe counter or bring your own. You get real conversation with other local owners and a focused marketing lesson. You leave knowing people and with one to three actions to run that week. The room is reserved through 1:30 PM.
**Who this is for**
Any local business owner who wants clearer marketing direction and real local relationships. Service businesses, retail, home services, professional services, online owners building local presence, anyone serious about being part of the Columbus business community.
**Not the right fit if**
You are here to pitch the room or recruit for an MLM.
**Details**
* Second Monday of every month
* 12:00 to 1:30 PM
* Good Cafe Easton, 4400 Easton Commons, Ste 150, Columbus, OH 43219
* Order lunch and drinks at the counter when you arrive
* Free to attend, RSVP required, space is limited
**About the host**
Rita Suzanne is a local marketing strategist and the founder of Local Marketing Method. She runs Visibility is Profitability, the membership where local business owners build the system that keeps their phone ringing. Learn more at learnlocalmarketing.com.
Register here: [https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator](https://www.eventbrite.com/e/1989964540509?aff=oddtdtcreator)
Ticks in Licking County - Diseases and Prevention -Johnstown Library - Free
The number of ticks and tick diseases in Ohio have quickly multiplied over the last 10 years. Dean Kreager discusses tick species, tick pathogens, tick-borne diseases, tick bite prevention, and proper tick removal. Kreager is an Agriculture and Natural Resources Educator with OSU Extension in Licking County
* Lakewood Public Library (in Hebron)- May 26 at 7pm [https://events.lickingcountylibrary.org/event/tick-talk-29621](https://events.lickingcountylibrary.org/event/tick-talk-29621)
* Johnstown public library at 7:00 pm June 8
[https://events.lickingcountylibrary.org/event/ctick-talk-29622](https://events.lickingcountylibrary.org/event/ctick-talk-29622)
Free to attend, no RSVP needed
Psychic Development Series II - Pueo Group
Private Group. Closed to the Public
Knowing ourselves and understanding our abilities is the first step toward wielding our gifts with control and accuracy.
In subsequent classes we will verify and hone our talents with activities and discussion. These are hands-on workshops and participation is expected.
The goal of our series will be to develop expertise in areas of particular interest such as mediumship, channeling, divination, healing and, etc.. Our ultimate directions will be determined by class members as we evolve.
I look forward to sharing and discovering with you. - Cynthia
Speak Easy (Storytelling)
The topic for June is "Roadtrip"
Speak Easy: true stories, told live.
The idea is simple: an audience, an open microphone, and great stories. Hilarious, gripping, poignant- it's up to you. Audiences are invited to come to listen or come to tell as folks from all corners of Columbus offer their stories live on stage! Held at Wild Goose Creative's warm, intimate space, this night of tales occurs on the 3rd Thursday of every month. Doors open at 6:30 pm, show starts at 7:00 pm. Please arrive early if you want to tell, as we generally only have room for a limited number of tellers, and the sign-up sheet has a tendency to fill up fast.
Formed around the idea that people need stories--they're what hold and draw us together--SpeakEasy celebrates the strangeness and commonness of being human. And in a world of smartphones, Facebook, Twitter, and more . . . it gives people a real, breathing, in-person way to connect.
The night is geared for true stories of all kinds, taking the best tales told around kitchen tables, in darkened pubs, on the street corner, and at late-night parties and giving them an audience. Speak Easy is also a great outlet for performers, writers, and artists looking to share their favorite stories and perfect their skills. We strongly encourage tellers to please tell the story rather than read it so we keep within the spirit of good storytelling and stay engaged with the audience. All are welcome. Hang around after the show for a drink and build community!


























