
What we’re about
A diverse group of people with epilepsy / seizure disorders. Sharing stories and making friends.
Upcoming events (1)
See all- SHARE hybrid. Topic: The Unspoken Truths about Epilepsy. Details below.Link visible for attendees
SHARE --- Support, Hangout, And Relax (with others with) Epilepsy
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Thursday May 1st, hybrid SHARE meeting. Address and times below.Topic: What are the Unspoken Truths about Epilepsy. What things do we comfortably say to each other in SHARE but face risk discussing in public? Unspoken Truths examples...like law enforcement can jump the gun and unfairly arrest someone having a seizure...or a restaurant can refuse service to people with special needs...or doctors can push epilepsy patients around without discussing health care options...or our family can unfairly judge us or limit us.
Let's share our thoughts on these challenges we face that in general others in the world don't want to hear.
Meeting is hybrid. Food before and food/drinks afterwards are in-person only
- 6:00 - 6:50 is "in person" food/chat. Look for people at Roti (1311 F St. NW) or next door District Taco. Other food options nearby. Located near Metro Center metro station.
- 7:00 - 9:00 SHARE hybrid meeting. At church at 1313 New York Avenue Northwest · Washington, DC.
- 9:00 and after is "in person food/drinks/chat" nearby.
Google meet link: https://meet.google.com/cdm-oubg-pve
Any questions or suggestions for future meetings? Contact Marc Starnes (marc.starnes1@gmail.com or 571-278-6524).
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SHARE Rules of Engagement
S-supportive
H-humanizing
A-accepting
R-respecting
E-encouragingLink below is the SHARE member spreadsheet - a chance to learn about others and connect. Copy and paste to your browser.
https://docs.google.com/spreadsheets/d/18tlOXvoJnbrqhUdkn154FzY2C-drFwwBIBq6FIvO-VM/edit?usp=sharing