About us

We're all about bringing together people with muscle-weakening conditions, along with carers, PAs, family members, and anyone else who's part of this amazing community.

What we're about: Informal, peer-led meetups where you can actually talk to people who get it. Whether you're newly diagnosed, been on this journey for years, or supporting someone who has, you'll find your people here.

What we do: Monthly online catch-ups (perfect for those PJ days!) plus in-person events across the UK when we can all get together properly.

Why join? Sometimes you just need to chat with someone who understands why that seemingly simple thing was actually a massive achievement, or who can offer real advice that actually works. Plus, we're a pretty lovely bunch if we do say so ourselves!

Got questions or want to know more? Drop us an email at info@pathfindersalliance.org.uk or check out our website at pathfindersalliance.org.uk

Looking forward to meeting you!