Rare Disease/Conditions

Please join Robert Brandau, our Founding Director, for coffee, conversation, job search assistance and just the ability to get out of the house and be with others as we look for **QUALITY** Employment. Bring your laptop, (if you need a new one, please let [Career-Confidence.org](http://career-confidence.org/) know.) there will be plenty of time for us to work seperately. Occassionally we have "on the spot" interviews with others at Fairfax Coffee. Often times some of us will go out to lunch or a simple dinner afterwards.

Discover the path to stress management, life's tranquility, and self-improvement through Heartfulness Meditation. Embrace relaxation, meditation, and emotional detoxification practices to unlock your best self. Join our free sessions every Wednesday at 730 PM at MD. Experience the profound benefits of these simple yet powerful practices. Commit to a few months of meditation and witness the transformative impact firsthand. We eagerly await your presence at these enlightening sessions.

**NoVA CBG has a turn by turn RideWithGPS club account that's free. [https://www.meetup.com/novacbg/events/271742916/](https://www.meetup.com/novacbg/events/271742916/)** **+++++++++++++++++++++** **The Ride: Summary** **(Must Read)** **+++++++++++++++++++++** * RIDE NAME: The Custard Cruise * START LOC: Shirlington Library * START GPS: [https://goo.gl/maps/y1K7iBorEgsTWBpaA](https://goo.gl/maps/y1K7iBorEgsTWBpaA) * START PARKING: Any Parking Garage * ARRIVAL: 6:00pm * SPEECH: 6:15pm * ROLLING: 6:30pm * LEVEL: Beginner Level (But All Welcome) * DISTANCE: 10 miles. * PACE: 12 mph * TERRAIN: No Hills, Trail and Street Riding. * RIDEWITHGPS ROUTE: CBG_CUSTARD_CRUISE_2026 **(UPDATED)** [https://ridewithgps.com/routes/46334991](https://ridewithgps.com/routes/46334991) **NOTES:** * No Hills, 10 miles, No Surprises, Custard! * Bring enough fluids for the entire ride. * [https://www.thedairygodmother.com/flavor-forecast/](https://www.thedairygodmother.com/flavor-forecast/) **TIMINGS (approximates):** * Arrive @ 6:00pm * Speech @ 6:15pm * Rolling @ 6:30pm * Back in Shirlington @ 8:00pm(ish) **+++++++++++++++++++++** **The Ride : Detail** **+++++++++++++++++++++** For your riding pleasure NoVA CBG presents The Custard Cruise. I would like some custard. The Dairy Godmother in Del Ray has some excellent custard (& sorbet & vegan donuts & other yummy things for just about everyone). Maybe some of you want to join me? Shirlington, to Four Mile, to Potomac Yards to the Dairy Godmother, then Commonwealth back to Four Mile to Shirlington. * No Hills * 10 miles, belly full of custard (or other yummy-ness) * Hopefully no surprises. **+++++++++++++++++++++** **The Meeting Spot:** **+++++++++++++++++++++** Shirlington Library 4200 Campbell Ave Arlington, VA 22206 GPS: [https://goo.gl/maps/y1K7iBorEgsTWBpaA](https://goo.gl/maps/y1K7iBorEgsTWBpaA) We will meet in front of the Shirlington Library by the fountains. **+++++++++++++++++++++** **The Ride After The Ride:** **+++++++++++++++++++++** What better way to wash down your custard than with a tasty beverage. For those interested we will go to Samuel Beckett’s after the ride for our social. We sit outside so we can bring our bikes and keep an eye on them. Join us if you like! **+++++++++++++++++++++** **Ride Level Chart** **+++++++++++++++++++++** NoVA CBG tries to accommodate all levels of cyclists by offering different types/levels of rides. We just ask that you come to the ride that suits your current riding ability the best. * Introductory Level: If you haven't ridden a bike in a number of years (or are uncertain of your abilities on a bicycle). * Beginner Level: You can ride for 10+ miles at a pace of 10+ to 12+ mph with potentially minor hills involved. * Medium Level: You can ride for 20+ miles at a pace of 13+ to 15+ mph with potentially moderate hills involved. * Advanced Level: You can ride for 20++ miles at a pace of 15+ mph with potentially major hills involved. Both Medium and Advanced Levels might require handling various challenges such as reading cue sheets, using a Garmin or navigation app, night riding, out of town travel, or any other odd cycling situations. **+++++++++++++++++++++** **The Fine Print:** **+++++++++++++++++++++** An RSVP of 'YES' is your digital signature and means you have read and understood MEETUP.com's: * "Terms of Service : Section 6. Release" found at https://www.meetup.com/terms/ * NOVA-CBG's "Assumption of Risk Agreement" found @ https://www.meetup.com/novacbg/pages/1942951/NOVA-CBG_Waiver/ * NoVA CBG's "COVID Policy" found @ http://bit.ly/2021_NoVACBG_COVID19_POLICY Helmets are required to participate in all NOVA-CBG rides. All riders ride at their own risk and with the understanding that cycling is an inherently dangerous activity. When coming to the meetup you do so voluntarily and are ready and able to participate in the ride as described under the conditions of the day. Be on time for the "pre-ride" preparation. If you do not attend the pre-ride preparation you will not be allowed to participate on the ride. There are NO exceptions to the above.

This group was originally started by Chad Keith who created and hosts a podcast by the same name in Charlotte, NC. I am hoping to continue his legacy here in NoVa as I recently moved to this area. This group is all about finding community around self-improvement and exchanging ideas on how to be your best self and get the most out of life. This group is for anyone who is interested in overcoming average in all areas - career, ambitions, relationships, hobbies, health, everything. I am so excited to meet driven individuals in the NoVa area so please reach out if you have any questions at all. EVERYONE is welcome so please sign up for an upcoming meetup!

Come to the Silver Spring library to play games some chronically ill friends! Members are adults who suffer from conditions including POTS, ME/CFS, long covid, MCAS, rheumatoid arthritis, Ehlers Danlos, multiple sclerosis, ulcerative colitis, autoimmune kidney disease, and more. We usually play a couple casual games, and we also have coloring books. Feel free to bring your own favorite games too! We'll in SMALL ROOM 1 on the third floor of the Silver Spring library, just outside the elevator. We ask that everyone wears a mask. There is free parking across the street in the Wayne Avenue Garage.

**NOW ONLINE** The weekly Sunday morning (10:30 am to 12 noon) class begins with a welcome, short reflection on an aspect of the teachings, and includes an arriving meditation (15 minutes) that will often incorporate poems and may end with a reflection or question. The opening meditation is followed by an invitation to each person to share their name and a few words (for example, what is alive for them right now or what their intention is for the class or the day). The sharing has been a powerful support to help welcome new people, get to know each other, and build community/sangha. Following a brief period of mindful stretching/movement, we finish with a longer meditation (25-30 minutes) and final reflections on the teachings, sharing, Q&A, and announcements. Class participants are welcome to stay and engage with other members of the community or adjourn to a neighboring restaurant or coffee shop. This space is inclusive, everyone is welcome, and we invite you to bring with you all aspects of yourself. Learn more here: https://imcw.org/Calendar/Event-Calendar/EventId/3686/e/drop-in-class-livestreamed-19-apr-2020

Let's enjoy a delicious Egyptian lunch! From the beginning, Fava Pot kept their eyes on the prize: serving the best of healthy, home-style Egyptian cuisine in an atmosphere that would make their customers feel like they were amongst a family. They do this by sourcing high-quality ingredients to cook their authentic meals. That means serving locally sourced foods such as chicken and game hens that are antibiotic-free and succulent meats that are grass-fed. And they also offer what more and more of our customers were asking for: delicious vegetarian and gluten-free options. Their motto has always been Eat Healthy for a Good Cause -through every purchase you make, they give back to Egyptian orphans in need. There is lots of free parking!

**\*TO ATTEND GET TICKET At** [https://www.socialevents123.com/event-details.aspx?id=13508#tix](https://www.socialevents123.com/event-details.aspx?id=13508#tix) (Multiple Meetup groups are co-organizing so the RSVP's shown are just a very small portion attending. We'll have at least 20 registered.) Our last online Bingo Night Party was such a BIG hit, we're doing it again! Do you like to play BINGO or want to just do something different?! Then you will LOVE this event! Here is your opportunity to have some fun playing our Live "Bingo" game. You will also get to socialize and make other friends from the comfort of your home. Prizes included Amazon gift cards, free future events and more! This completely online event will be LIVE and you will be able to see and hear the other participants while playing. You will either need to print or draw out your bingo cards. We will email you with how to get it after registering. You can have more than 1 person on your team as long as they're from your house and use same device. Friends/family around the country can also play. They would just need to also register for a ticket. This event will be held on Zoom which you would access through your computer/webcam, or via your phone/tablet. On day of the event, you will get a secured Zoom link and link to print out Bingo cards. \*RSVPS ON HERE ARE NOT REFLECTIVE OF ACTUAL ATTENDANCE as this is a multi group event. Cost: $15-$20 depending on how early you register. **\*TO ATTEND GET TICKET AT -** [https://www.socialevents123.com/event-details.aspx?id=13508#tix](https://www.socialevents123.com/event-details.aspx?id=13508#tix)

🌿 June Sistership Circle 🌿[Get tickets here!! ](https://www.eventbrite.com/e/balancing-the-masculine-feminine-within-june-in-person-sistership-circle-tickets-1989861204428?aff=oddtdtcreator) Balancing the Masculine & Feminine Within So many women today find themselves constantly “doing” — holding everything together, caring for others, managing responsibilities, pushing through exhaustion, and rarely slowing down long enough to truly receive. This month’s circle is an invitation to gently explore the balance between: ✨ strength & softness ✨ action & surrender ✨ structure & flow ✨ giving & receiving ✨ doing & simply being Together, we’ll gather in sacred community for an afternoon of grounding, reflection, connection, guided meditation, somatic practices, journaling, sharing, and heartfelt conversation. No two circles are ever the same because each woman brings her own unique energy and medicine into the room. Whether you are brand new to this type of gathering or have been on a healing journey for years, you are welcome here. 🌸 Saturday, June 13, 2026 🕓 4:00 – 5:30 PM 📍 A Call to Spirit, LLC – Chantilly, VA Come as you are. Leave nourished. Space is intentionally limited to preserve the intimacy of the circle.

**Our Meetup is off to another hiking adventure! Mt Kilimanjaro, as the tallest mountain in Africa, is included in the 7 Summits of the world.** **It is a bucket-list item for all hard-core hikers and mountain lovers.** We did this trek with Meetup in the summer of 2024 and it was a true experience of a lifetime (see photos below) Let's get to some numbers. It is 5,895m/19,340ft BUT . . . our starting elevation for the trek is 3795m/12541ft As such elevation gain is 2100m/6799ft To compare Everest Base Camp trek, is about 2754m/9035ft elevation change. And Mt Whitney is about 1828m/6000ft elevation change. The key to being able to succeed in this endeavor lays in the route and the support system. We are taking the Lemosho Route via the Northern Circuit. The Northern Circuit route is the longest and newest of the seven established Kilimanjaro routes. It's one of the best routes because it has the best acclimatization profile. This results in one of the highest summit success rates. Add to that stunning views, and comparatively relaxed pace. It is also much less crowded than the other Kilimanjaro routes. As far as our support system: We will be accompanied by experienced guides, porters and cooks. They are certified, ensuring our safety and comfort. Porters will carry our gear. We will have a high ratio of guides to hikers. Our guides will go our pace and support each and everyone of us, regardless of fitness level and pace. In other words...you go your own speed and we all get there safe. More about our trek/trip. As with all our international trips, we picked the best season/time of year to go for weather and wildlife. Lemosho and Northern Circuit is a scenically spectacular and varied route. At the lower elevations it has an abundance of wildlife such as elephant, buffalo, eland and lion which come over to forage during dry season. **Each of our trips is personally crafted to offer the best places and best use of time.** *But I don't have the needed gear?!* You don't need much more than the standard trekker's equipment. We will provide you with a list of what is already included and what can be rented there. *Does this include food?* All meals on the trek potion are included and a cook travels with us! *What is lodging like?* We are sleeping in new and comfortable tents (carried during the day by porters) *I am new at this.* That's OK. We do plenty of prep Zooms before we depart. And in California we have a number of local outdoor day or weekend outings you can test out with us. *How dangerous is this? What if I get sick or hurt?* We will be walking on an established, well used trail the entire time. **Our trip INCLUDES emergency insurance.** We are also Certified Wilderness First Responders and our guides are members of (AMREF) Flying Doctor. **Plain and simple, safety is our primary goal.** *How much does this cost?* **Kilimanjaro Mountain Trek $3950 per person, double occupancy. Land only (airfare not included). Solo supplement $600** Trip Cost includes: \- 9 nights accommodation \- 3 meals everyday on the trek \- All Fees & Entrances and Taxes \- Camping equipment such as tents\, tables\, chairs\. \- Lead Guide\, Assistant Guides\, Porters and Cook *RSVP to this event shows your interest, but does not hold your space.* ***The only way to secure your spot for this trip is a $300 deposit:*** ***[CLICK HERE FOR SECURE DEPOSIT LINK](https://www.paypal.com/instantcommerce/checkout/8P9NUAVQM8UEN)*** *Deposit is refundable up to 90 days before the departure (less PayPal fees).* *IF you need an airfare quote,* [Click here to message Anna](https://secure.meetup.com/messages/?new_convo=true&member_id=131297062) For more information about this or any of our other international events, fill out this form: **[INTERNATIONAL MEETUPS INFO REQUEST](https://forms.gle/cQdqYw74gAYqphXX8)** To see pictures from our Kilimanjaro adventure in 2024 [CLICK HERE](https://photos.google.com/share/AF1QipPkfkUp6sEZVQ-xse1di_K19d1QVmSb5KOLeIjynRoWGv_XFLXI8wBfT61XxAHavg?key=U2tKajBuOGRiZkxBOUtTUG1GbUVRVmlDaERCeG5n) We do a monthly Q & A Zoom: Meet others attending, be social, or come and get any questions answered. [Click Here to RSVP to our Zoom](https://www.meetup.com/moretoexplore/events/296044209/) The MAIN location where this event is posted: [https://www.meetup.com/moretoexplore/events/302872805/](https://www.meetup.com/moretoexplore/events/302872805/) (RSVP there for any conversation and comments) This events is cross posted to several other groups and the number of RSVPs on each is not reflective. We have a set of sister groups where we post our local free, local/regional camping, and our overseas events too. [Click Here ](https://www.meetup.com/CulturalArts/Events)for our other events: Live the adventure instead of only dreaming it! SOT 200318-10

Join our weekly walking meetup to have fun, maintain a healthy lifestyle, meet new people, and enjoy nature! We meet Saturdays at 10am, by the bike racks and benches 150 feet in front of BUBBLES Hair Salon in Reston, leaving no later than 10:05. Every week we'll walk the Green Trail to Lake Anne Plaza (\~1 mile), pause there for 5-10 minutes (water, bio, and from April-Nov a Farmer's Market), then circle the lake (2 miles) before returning to our starting point. It's roughly 3.5 miles and takes about an hour and a half. Afterwards, some members will often head to a local restaurant to refuel and relax before tackling the rest of the day. This event is open to all ages and fitness levels, and both friends and dogs are always welcome! We recommend dressing for the weather (umbrella, water bottle, snow shoes, hat, etc.) since we'll always walk, rain or shine. By signing up, you accept and assume all risks and responsibilities with this activity, and nobody will be held liable.

***“I am struck with how rare it is to find a few good friends on the path. It is easy to find people who simply want to sit and be entertained by teachers, or who want to sit and entertain by playing the role of teacher. In other words, the quest for affirmation often outweighs the quest for truth.*** ***Yet you may have one or two good friends, and definitely have one or two waiting to be discovered. Find them; be thankful.”*** ***— Shawn Nevins*** 'What will make me happy in life?' ... 'Am I my thoughts?' ... 'What is Enlightenment?' ... We meet every week to ask questions like these in the pursuit of Self-Knowledge and Truth. We are interested in topics like: Zen, stoicism, spirituality, psychology, mindfulness, Nisargadatta, non-violent communication, Socrates, existential philosophy, Alan Watts, taoism, Eckhart Tolle, meditation, Ramana Maharshi, etc. But we are not affiliated with any dogma, philosophy, or religion. Our goal each meeting is to serve as mirrors for one another using question-based inquiry in a safe environment. In a session, every participant takes turns discussing the week's question or topic, and the group asks reflective questions without any agenda besides trying to understand the person's beliefs. A few other guiding principles of our group: * No one is obligated to share * Be honest with yourself and others * Do not try to convince others to believe or think as you do * Keep the focus on the person being questioned We meet at the [Bethesda Library](https://maps.app.goo.gl/GWMozF8zpY1m1PY26) every Monday. The library is a 5 minute walk from the Bethesda Metro on the Red Line, approx 25 minute Metro ride from Metro Center and Gallery Place stations. The library has a a parking lot with metered parking for $1/hour. \*\*\* WE WILL BE IN MEETING ROOM 3 UNLESS OTHERWISE NOTED ----- THE MEETING ROOM IS IN THE BACK OF THE LIBRARY \*\*\* Please contact us with any questions!

ASL HangOut is a safe fun social All levels D/deaf, Hard of Hearing, Hearing signers, ASL students, ASL interpreter. Hosted by Daniel Berke and his friends Jeremy, Andrew, Nathaniel. and Josh There's always a great mix of people and good conversations We will be meeting at the Tysons Corner Food Court (3rd Floor), Thursday at 7pm! Hope to see you all there! 🙂 Look for a table of ASL signers...don't be shy. 1961 Chain Bridge Rd Tysons Corner, VA 22102 join our Facebook group https://www.facebook.com/groups/468631322134694

Whether you're Deaf, HoH, an interpreter, an ASL student, or just want to learn or practice American Sign Language (ASL), we welcome all levels of signers to come join us for an evening of ASL socializing and practice. This event occurs on the first and third Sundays of every month, in the heart of Fairfax County at the Fairfax Wegman's (corner of Route 29 and Monument Drive). We can be found on the upper level, typically near the stairs. We generally start around 7 pm. ASL beginners are welcome, but you should know the ASL alphabet and some basic signs - this is not an ASL class, but the more experienced signers are generally happy to help beginners learn and improve. There is no better way to develop your signing skills than by joining the conversation with other signers. There is a place for everyone to join, learn and practice. Regardless, we are always welcoming so don’t be discouraged to attend; this is very informal and new folks are always welcome. Note, some attendees arrive early and grab some of Wegman’s food for dinner, so you can combine a shopping trip with the ASL practice.